Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Fabulous! well done! So nice to hear this-& enjoy your well earned holiday-we were supposed to be in Greece now! :-(  but hey ho-postponed it until Sept so fingers crossed we will get there!

    My hubbys into his 4th week post treatment & slowly but surely improving-yayy! went out today for about 2 hours, an art gallery then he managed a sandwich & cup of coffee! I was delighted & so was he-it's mad these little triumphs give you so much pleasure! Its been his 1st time eating or drinking out for months- & we used to do it all the time, so yes getting a little bit of our life back too.

    So keep up the good work Dave & stay well.Thanks for sharing your good news :-)

  • Thanks Hazel Julie is very excited about going I can tell you, Im not bothered about Pogba to be honest In fact Iv lost a bit of interest in United I think its too big a job for any manager while Woodward is the CEO, he`s a clown, I think we will be out of the running for a few years sadly.

    Im more interested in playing myself for Manchester Corinthians lol we won the league a couple of weeks ago with 4 games to spare, energy wise Im good but still short on stamina and burn out quick which is obviously down to the treatment but overall Im good.

    have a great holiday x

    Dave

  • Thanks O.H. and great to hear your man is making progress, he will get there.

     

    Dave

  • Hi Dave totally agree on Man U we lost 2 giants at the same time was always going to be poison chalice .well done Manchester Corinthians mega impressed. 

    Know what y mean re stamina yes it’s great we’ve got tgecall clearcand progressing,but the way we all rapidly lost muscle mass is going to take time for us to recover. Sometimes me like you forget that ibrecent,y read and Ian backed this up our bodies everyvdaybare running a marathon and we should be fuelling up towards 6000 calories a day but don’t know about you but I am struggling to get 2000 calories most days. 

    But fuel up  on moussaka whilst away

     

    enjoy H xx 

  • Hi other half tell hubby well done even at 10  month post radiotherapy bread in most sandwich he’s can be beyond me. Although toast ans toasted sandwiches am fine. My motto is baby steps all the way slowly slowly.it the little things that mean such a lot ,enjoy summer and thanks for posting keep in touch.

    hazel xx.  

  • I’m eating smaller portions Hazel I can’t eat as much as I used to and my weight is stable, a mates brother had what we’ve had and suddenly started putting weight on after two years, strange what it does to you.

    oh and my tongue is still ultra sensitive to anything spicy.

     

    Dave

  • hi Dave

    ditto smaller portions for me as well. I have also read thatbwe should eat upmto 6/8 smaller portions a day but again find that hard. 

     

    My weight is also stable like you say for now ! Don’t want to put any back on am now at my my weight inwas a few years ago. My oncologist said my weight went up possibly as body knew the punishment it was going to take ,so who knows. 

    My tongue can’t take spicy either nearest I can get is chip shop curry sauce, dipping chips in it. Do try different th8ngs but am finding food of our childhood era at the moment isnthey way to go. Lol. 

    Hx

  • Hi All

    Alcohol

    Just wanted to share that this is my anniversary when I was hospitalised last year on 15th June and put on a drip for a week re mis diagnosis and strong reaction to wrong medication Anyways thats another story I've mentioned before.

    Nope, it's also my anniiversary of exactly one year of being alcohol free and I would be interested to hear from others willing to share on their take on alcohol consumption with this type of diagnosis and whether adjustments made or still able to enjoy. ( or not )
    Don't get me wrong, I'm not judging or saying one way or other, as each to own.
    My own honest reflection is that I drank far more than I should,have always vodka coke/soda lime and not a great beer fan unless in Tenerife :(..
    So added to fact I'm a bit OCD and kind of feast or famine mentality, I decided last year I was not going to drink again.I'm surprised how I've not bothered one little bit or missed at all as I've been heavy drinker for years.
    While you can never say never, my intention is to stay tee total and maiintain a no alcohol lifestyle. Big test may be in couple years when I hope to hit Tenerife again as it's the whole drink in airport lounge/plane and relxo in the sun thing and then I go feast again :). hope not lol. Maybe if I looked up the word moderation in the dictionary to see what that actually means.
    I couldn't just now even tho I wanted to as still recovering/medication oh and Hazel threatens me if I drink a can fizzy diet coke let alone suggesting a wee tipple.

    Anyhoos for me, its just another personal milestone on this journey that I wanted to put in my blog and therefore also share on here.
    Anyone got anything they particularily miss that they know probably out of bounds now..Mine is definatley liqorice toffee/Thortntons toffee and blackcurrent and liquorice sweets. Darn it - I've just annoyed myself for mentioning :)
    Hope I find you all well no matter where you are in this journey.

    10 days till Toy Story4 !!

    Onwards & Upwards

    Ian

     

  • Hi Ian aka  Buzzlightyear

    happy alchol free anniversary.i had my last drink 26 th April last year when I waved sister in law off  after having her for a week,so 415 days for me didn’t give up coz of the cancer ,was never a big drinker before couldn’t cope with the headaches and hangovers so maybe 10 years since I last had a decent session.

    Cant imagine alchol ever touching my delicate mouth either ,John still has a drink and he passes glass to me but even touching inside if my lips is a no nocan feel the drying effect .On the itger hand tap water does the same plus tried tonic water omg no way !!! So I must be super delicate !!litle flower lol.

    John says Tenerife no problem  ask for cerveza  sin alcohol ,honestly that’s all he drinks out there the taste of beer without the alchol content .

    Missing things.

    Crisps crisps crisps did I ever say lol Hiw much I miss them I  stubbornly sat for nearly 3 hours a few days ago  trying to eat a small pack of walkers plain ! Then gave it up thought better ways to spend 3 hours of my life ! Nuts are the same for me along with apples and pears they still have an immense drying effect .

    Chicolate toffees liquorice not a problem ,strange how we are the same but yet so different. saliva wise I noticed a little more last night to the point I could make spit bubble sleep yeah no barriers on this conversation ! Which is a good thing. But in night woke several times to un peel the tongue so serves me right .Water water water.

    Off to help John cut the hedges needs must .

    can feel the excitement in your post about Toy story  4 ,don’t want to spoil the illusion ps it’s not real !!!

    Onwards and upwards to infinity and beyond anyone ine reading these posts in years to come Ian and the gang we are proof that life does goes on One year ago I was mid diagnosis and Ians problems were just unraveling.

    Hazel x

     

  • Hi Hazel

    Stop being funny about Toy Story 4 not being real - we dont know for sure and these things can happen..It's all based on true story, events and characters. It's bad enough I'm worried sick they kill off a major character and this will be the last one.lol

    I'm the same re alcohol. I decided before I was diagnosed with cancer and it was the bowel biopsy scare and week in hospital and prior chronic 4 weeks illness, I just thought ok enough - you're getting a warning here so heed it so I have.
    I'm not that fussed re beer tbh but always enjoyed while in Tenerife. 

    I forgot about nuts..cashews were a fav and honey coated ones but I need to be more careful now because of dental issues. Not to annoy you but Ive been eating too many crisps lately and need to stop. I can get them over most of time but they are wasted calories and I need to be careful.
    Apples I cant crunch on but I eat a lot of melon/banana and softer fruit.
    So my next OCD plan is from tomorrow and back to my sheets recording fuel input etc and I'm better when I have a little focus. 
    Ians problems unravelling go as far back as saying "yeh ok" when marrying first wife but that got sorted 20 odd yrs ago lol, but jest apart yup its funny how time flies but I would also say its been a long slow eventful journey with a few ups and downs along the way if that makes sense.

    But your right Hazel and I nevre thought of that this thead and all the posts might last a few years for reference for others and not just current set of people.I just assumed this would all dry up and be lost in the dungeons of the site as time goes on. Thread starting to get quieter now and thats fine as I think its served its prupose well with a lot of positives and help and support for people and one another. And others/ new people will quite rightly start their own fresher thread as we are now on page 66 and a lot to wade through now.
    We can still annoy each other in private message though lol
    I'm not that happy at John forcing you to cut hedges... he's meant to be a carer and this slacking off and making you self suffiecient is not on. Fiona is doing same and into tuff love now with me making my own tea and even my own ironing. Mind I like my shirts without tramlines so I've always done.
    Do we have any legal redress about our ex carers?

    That said its all done tongue in cheek as our partners are a vital part in all of this and I certainly couldnt have got through all this without Fiona and still couldnt. 

    Great stuff re saliva and hope you've broken back of this issue as you have steadily been making progress with this the past wee while so that pleases me. Touch wood you have turned the corner.

    One good positive thing about my diagnosis is that I have met you on here Hazel and picked up a really good friend.
    Tell John your tired and need to rest and dont recover until hedge finsihed.Lol feel bad now as seriously, Fiona is out cutting the grass as we speak...

    have a great weekend n chat laters 

    Onwards & Upwards

    Ian x