Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Buzz

    wont reprimand you for missing the duraphat ! don’t want you calling me a bully lol ! As if. 

    I reckon the duraphat toothpaste lasts me between 4-6 week ps and I use it at least 4 times a day you onky need a quarter of normal toothpaste using duraphat ,there’s no real fresh feeling to it but it works , the inter dental brushes as well you will be surprised how much crap gets left as our saliva isn’t doing it’s usual job of removing food. Intend to brush after every meal .

    you will find if you ordered 2 a month yiu will soon have a stock and then won’t need it every month .

    bbq was good over 60 people so fireman John was busy all day , I socialised , snook into house for poached eggs on toast b b q food plus we made pulled pork a,s hit chilli weren’t going anywhere near my mouth !!!!!!!! 

    yesterday  bad saliva day , today I can feel it in mouth so that’s good and made koftas for tea managed to eat 2 patties spiced up with cumin and a little paprika impressed myself  

    Hope you don’t get over excited at toy  story 4 !!!!!! Lol

     

    keepmin touchhazel H x

  • Hi Hazel

    just quick wee note - your right about these wee brush things...they are good though and mouth feels cleaner after using them. Havnt got the toothpaste yet and I will get in the next day or 2. Carer's duties these days are getting more and more thin on the ground lol..So I...yes I know Hazel, I myself, will have to go in car, all the way to pharmacy 10 min drive,no traffic, ALL by myself.

    One wee tip I forgot to mention, but I stil use them and they are super if you even wanted to add to your blog re tips is the plastic medical sterile syringes(no needle - just plastic). I've used from the get go and although maybe a bit late for most here now, it's one to keep in mind.
    I've posted a link and you get pack of 10 for £2.70 and instead of making a mess with a spoon re oralmorph as an example, you just use syringe, sook up 5ml then empty in mouth,Exact measure and so simple and clean to use and each one reusable for a while. It's one of these things where sometimes the simplest little tips of help are the best - like the Cupranox toothbrushes. Anyways, one to add to your knowledge database

    5ml Becton Dickinson BD Plastipak Medical Sterile Syringes Luer Slip without Needle for Medical and General Purpose Use / Packs of 10

    or just type in Medical Sterile Syringes in Amazon..

    chat laters

    ian x

  • Hi Ian 

    Thank you good to know I have my uses !!

    Yes total agreement our other half’s are deffo slacking tomorrow I am on Grandparent duty driving all of 5 miles to do school run pick up as do I look like I get up early enough for drop off ! unlike you I can sleep I won’t berate yiunfor being up at 0532!!!!!!! Obv you cant  sleep!!!! 

    Yes I used the syringe s mine came with the oramorph though agree very useful.

    A but if indulgence now.

    For everybody out there who doesn’t know I am doing a charity bike ride on 27th if July for research into head and neck cancer I have a page set up 

    on 

    https:/www.justgiving.com/fundraising/Hazel-Turner24 or search Hazels Tour de Wakefield.

    In the words of Tesco every little helps.

    Its a 40 mile ride with me and John doingbut along with anithee couple who the guy i met during Radiotherapy.

    onwards and upwards everyone 

    H x

  • Hi Hazell

    ol....I forgot I posted 5.30am

    well sleep still fragmented and I cant lie in bed so I just get up

    On the plus side, I get to spend more quality time with myself.

    Me and Me get on great and we agree on everything.

    ian x

  • Hi Ian. Lol got to love ourselves dontvee let’s face it cancer card now worn  out. If you are bored there’s a hospital seriesvthink amazon prime Nee Amsterdam set in New York medical director got throat cancer follow s his  his story.  

    H xx

  • Hi all I hope everyone is as doing well as can be expected, Iv just had my first appointment since getting the good news which was two months ago, I dont know where the time goes.

    This was with the surgeon who will now take over from the Oncologist for examinations every two months, all good he was pleased with everything he looked in my throat and had a good feel around my neck and was happy with everything, my saliva has started to return to my tongue and inside of the cheeks are nice and moist but still a bit dry at the back of the throat.

    Off to Greece on tuesday for two weeks  :)

    Keep fighting, Regards Dave 

  • Great stuff Dave and love to hear all the positves.

    Enjoy your hols

    Onwards & Upwards

    Ian

  • Thanks Ian although I wasnt expecting any bad news theres a nagging at the back of the mind after what weve all been through so it was a great to hear the words. 

     

    Dave

  • I know what you mean Dave and especially with your cheery wee soul of consultant. I'm sure he must read his kids ghost stories for bedtime stories lol

    But all good and yes, we do need reassured and sets your mind at rest , just in time for hols so have a  great one - its well deserved.and also Ole will buy you some nice new shiny players for your return.

    Onwards & Upwards

    ian

  • Hi Dave brill news ,glad all good. Enjoy Greece remembered  it’s your favourite place tell Julie to,chill,l out as well. Presume you’ve heard that Juventus are in London talking to Man U about Pogdba going back wonder if we will make any money on him this time. !

    we fly off  for a quick break on 25 th June more to see how I cope with the heat just 16 days  time. Got my 3 rd appointment mid July.its a year this month since diagnosis day which looking back can’t decide if it was a long time ago or not. But darned pleased not being repeated this year !!!!

    saliva is like yours slowly coming back can eat most meals without drinking which is a bonus. 

    Keep in touch like Ian says onward and upwards

     

    Hazel  x