Hi there Joy from a fellow other half ! My hubby was diagnosed with SC Ca tonsils with lymph node tumours in Dec 2015 and after 5 cycles of Cistplatin chemo and 30 fractions of VMAT radiotherapy plus a neck dissection he has been in remission and cancer free for nearly 3 years. Its definitely is difficult to watch your loved one go through such difficult treatment which impacts every aspect of their and your lives. Its definitely true that we run round keeping everything together- getting them to the treatment, ensuring they’ve creamed their necks, taken on fluids, tried to eat, take their meds plus keeping the home going. Were glad to do it as we want to give them the best chance to get well but it can be tough and very lonely.

. Paul tells everyone that he thinks it was more difficult for me than him as he was so engrossed in just getting through the day and feeling so unwell that he didn’t really realise what was going on. In fact its like child birth - the brains way of coping with such a difficult situation it just shuts off and he cant remember alot if what went on. And yes he admits it was an ‘all about me’ situation that we can laugh about now - diva is the word. 

Wishing you loads of luck with tbe rest of the treatment and if you fancy chatting then send me a friend request and Id be glad too.

best wishes

Emma xx

Thanks for that-yes I bought a humidifier early on-as I read somewhere on here..they helped and he has it on most of the time, says it really helps. Good your husband is benefiting form one too.

When is the last day-Thursday? As my husband has 9 to go & 1 more chemo (not looking forward to that).

Yes it's a tough road but worth it to cure and return to a normal life.

Hope you and your husband are doing ok at the moment.

Take care Joy x

Hi Joy thanks for kind words. Just remember when trestment finishes that’s when the hard work starts   I liken it to an oil filled radiator that’s got to Leech out the radiation and chemotherapy over a period of weeks radiation tiredness is like no other read Ian s blog onbthat had and still us suffering from those side effects. But look forward to your holiday since treatment finished ivevfone s 16 day a 18 day and just returned from 8 weeks just west factor 50 on his neck bkendrdcwith s bitcof fske tan if vain like me. Lol. Yep a vain prima Donna. Pluscsclight scarf 

kerp inbtouch h xxx

lol Hazel - get a spell checker

nice to see your back safe n sound and hope you brought the weather back with you.

ian

Hi all,

Just for info in case any unaware and wondering re frequency of check ups post treatment.

At my check up today with consultant - (just a little swelling still back throat but its fine)
They feel neck, have a look around mouth and I got scope via nose. and ask you how you are feeling/getting on. Appointment lasted about 15 mins I guess.

Anyhoo on checks ups I was told ( assume same for others )

Check up every month for first year after treatment

Year 2 to 4 checked every 3 months

Year 5 every 6 months

Hopefully then all still clear and in remission and no further checks.

Onwards & Upwards
Ian

Hi Ian brought the rain back with me ! Has brill crossing was quite worried as last May I was in a state in the boat , obv didn’t know at the time that it was the cancer upsetting my equilibrium! Spelt that without a spell checker. Lol ! My brain works too fast for  I pads keyboards that my excuse or other excuse I missed the week at school when we did spelling !!! Plus no one would have anything to laugh at if I didn’t do  typos  i have  proof read the above and maybe for once perfecto ! Grammatically rubbish probably. !

love being away but  like Insaybto John it’s a fantasy life we lead over there back home it’s the real world and wouldn’t want to be there permanently.

cathcing uo with game of thrones and tour de yorkshire

keep in touch buddy onwards and upwards.

H x 

Hi Ian just shows how things are different in different areas .

i haven’t had a scope up this diagnosis day mine don’t believe in doing them after that 

year one every 6 weeks ( I negotiated holidays ) saying you told me to go and live my life so that she what I am doing with provision I would fly home immediately if I felt anything wrong .

year 2 every 2 months 

year 3-4 every 3 months

year 5 every 6 months.

My check ups are flashlight down into mouth whilst he holds my tongue with a piece of gauze,that makes you feel sick.Good feel of neck area and general conversation of how I am feeling eating etc .

Maybe it’s coz us Yorkshire birds are tough !!!!!

Hope this helps people as like we say we are all different with the same diagnosis.

h x

HinDave how are you doing glad I make your day !!!! Back in good old Blighty .wwont ask what the boys are doing but a few of them need their p 45 s pretty dam quick without big payoffs . 

Thursday night europa leagues not going to do us any favours next season either.

keep in touch superman 

H xx

Im good thanks Hazel, still dry mouth problems especially when excercising playing football etc, I get bouts of fatigue too but overall good thanks, I have a check up mid June then every 2 months (I think) we are off to Gran Canaria at the weekend first holiday since last September when all this started, really ready for it :)

Dave