Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Hi Ginny hang in there tough few weeks ahead but hey I am proof that things can only get better. Will be in touch when bsck in U.K. on boat shortly feeling good drive 4 hours up through Spain ! 

    H xx

  • Hello-new here but been reading your posts for a bit & would like to join this group-as you seem a great (& very helpful) bunch!

    I have had a few IT problems & probably will continue to-so forgive me if i take a while to return as I probably will have problems getting back on-(pw problems).

    Anyway-Thanks for all the tips-been really helpful-as it's my husband Joe who is currently going through chemo radiotherapy for his tonsil & tongue cancer-into 6th week (treatments 3 chemos & 35 rads).

    Currently just about managing to eat or slurp soups, maccies -boy does his tastes change! sometimes firmer stuff like cheese on toast-but getting harder by the day. All due to pain now & the thickened mucus is problematic-don't think there's much to improve that? He suffers bad post chemo-so dreading the last 1-so yes all in all-life's.....a challenge-to remain polite but wow I take my hat off to all of you because it's a tough road- & bless you all. I hope you are feeling ok- keep going as you are doing brilliantly! As for any 'Other halfs, carers' whatever-it's pretty tough too- & I do know  what that feels like but it's not about us-but to you all-take care & have an ok-even good day/evening.

    Joy x 

  • Joy I have just brought my husband a humidifier as someone recommended on here Hazel I think . He had the best nights sleep last night having it on . He is in treatment too & suffering like yours ! Sigh x x. 33 radiotherapy fractions in total 8 left to go .

  • My mum has base of tounge stage 4 cancer. Think the treatments are very similar. Going on my mum, and this is only based on her by week 2-3 it will hit u. As long as ur pain is managed just rest a d sleep....ur gonna do a lot of sleeping. Best wishes to you. X

  • Hi Joy

    Welcome to thread and do please keep us up to date with progress.

    Yes, there are challenges but I often refer to the fact that the light at the end of the tunnel actually exists and the success rates for this are high.
    As for "other halfs" it is about you as well. I could not have. (still couldnt) have done without my partner in all of this. It is hard on partners as well of course and they are on the journey with you not only with practical help but also providing mental streghth and often just someone to be able to talk things through. So I would say you play a vital role during and after treatment and shouldnt be underestimated what you do for us.

    Mucus is one of the unfortuntte side effects but it does clear up and doesnt last that long. I also found humidifier helpful during treatment and I also used to put in some eucalyptus essential oil in a diffuser and found that quite beneficial

    Good that still managing to eat and get fuel inside and there is also suppplement drinks available should he struggle a bit and your support team will be able to organise.
    As for pain, I'm a great believer in that there are solutions available and my pain medication was stictly controlled by my medical support team, but I would say by and large my pain was all controlled and I wasnt in too much discomfort because of, so something I would always advise.
    I have also kept a blog, warts and all from the get go and I have put a link on for ease below in case you havent seen on the thread.There is also a section on helpful tips etc picked up along the way. There is also  link to another blog from Hazel here that is also good help and worth a read.
    radiotherapythroat.home.blog

    Onwards & Upwards
    Ian

  • Hi Ginny keep on hanging in like Ian says there’s light at the end of the tunnel , just some days the tunnel seems s longvway offf ! We are proof that it does work.  Will be updating my blog in next few days will let every one know. Hazel xx

  • Hi Ginny glad humidifier is working I found it invaluable used it every nap time and bedtime for st least 5 months. Plus to be honest will use it again this summer if it gets warm n sticky. I also bought s small one will let u know about that when I get home used it for travelling round with 

    h x

  • Hi joy 

    thus is hazel on way back from Spain. Don’t underestimate your value as a carer we can’t do it without you. On my blog don’t know if u read it yet my hubby John wrote s section on how he felt from his perspective warts and all. Be prepared for having words wevdud nbee never disagree but OMG I was st times s prima Donna but we got there in the end. 

    Mucus di you have a nebuliser from the hospital? If do I used it at least 4 times a day.  Don’t put anything other than saline or plain water in it. No oils or anything. The pain relief use it tell him don’t suffer clue us in the name pain killer. Re eating if he doesn’t have a peg don’t becafrsid of getting the nasal feeding tube as eating rarely gets any better until way after trestment finished. But don’t dispair there is light at the end of the tunnel just retuning from Spain cycled 600 km walked 300 km 

    blig www.radioactiveraz.wordpress.com with links to Ian’s on it

    kerp in touch and welcome to our club that no one really wants to join but here we are a happy bunch. Lol

    hazel x

     

  • Hi-Thanks for that, nice to chat to people in the same *** boat-but yes I feel more positive after reading all your posts on here.

    Yes may ask for a nebuliser, will keep that in mind-we have a humidifier-got one early after reading about it on here & it's really helped him.

    I read Ian's & John's info afew weeks ago & they were really helpful- We are-well my husband is on Oramorph now, we've just up ed the dose to the maximum & it's helping-as the symptoms get more intense, but only 9 more rads to go & 1 chemo so hopefully we will manage. And no the NGtube doesnt worry us-if needed he will 'gladly' have one.

    Haha- that made me laugh you saying you were a prima donna! My husband is soooo much like that at the moment & it's not like him at all-I'm running around like a headless chicken & glad to be as it must be so hard to deal with all of this- our daughters laugh at what he's like (not that he knows this ;-)  ) But it is hard seeing your loved one suffer but today hes' doing good so I'm grateful for that.

    I'm also grateful for this chat room- thanks all & hope you're all having a good day too. It's very encouraging to hear you are doing so well now- & lucky you just been to Spain!  We would normally be enjoying holidays & stuff now but had to cancel 1 in April & postpone 1 in June to sept-but am looking forward to that & hopefully bgy then he will be ok. But this is how it effects everyone I guess, & makes you appreciate your health when it returns. Joy x