Hazel you are a star . Will will carry on with the prescribed . I did actually just read last night not to put anything on before treatment and we were ! Yikes ! Bit I stopped that today and put it in after his treatment today . Why don’t they tell you this beforehand ? Anyway I saw your burns Hazel they looked nasty . I’m not showing Chris ! ;) Thank you again x x x

Hi no worries ,you can’t take it all in there is so much info your brain goes into overload. No aftershave or shaving as well ,soon Chris won’t need to shave in the neck area anyway ineemember the guys who were with me said it wasn’t the only good thing about it all they stopped shaving !!!!

alao at showmen ir bath time no  perfumed  or scented stuff I used   simple soap non allergenic stuff ,alsomon nexk area just Luke warm water lin fact i only        had  a bath as showers hurt too much later in to treatments. 

Anither good tip is Manuka honey for gargling don’t buy off amazon unless it’s from a certified seller ask therevare a lot advertised as +25 factor when theybdont use  new Zealand method of factor. I used an Aldi one at factor 10 gargle  warm water it eased my throat

night night good luck get nurses to looknatbChris neck they will have come across it plenty if times

hazel  

Hi there - Love the way the RT gives different gifts to different people. 3 years down the line and the old taste buds are still playing havoc with my shopping !! One day he can eat chocolate  and in particular waggon wheels are the biscuit of choice - I boat a boat load and low and behold now he cant taste them ! The next was egg custard tarts - Ive got a fridge full and he cant taste them now - Hagen Daz ice cream ( nothing cheap of course !) but the cold turns his taste buds off completely. The only consistent thing is Evian water which to Paul the water conisseur us like a fine red wine always to be enjoyed in copious amounts - lol.

As for the creams for the radiation burns - as Hazel saud be guided by your radiotherapy team. We used sorbaderm cream and then when the burn appeared over 2 days allevyn foam dressings and intrasite gel. You wouldnt know he’d had it and the consultant even remarked on the softness if his skin much to both their amusements - not something you hear one man say to another very often lol 

wishing everyone all the best 

Emma xx

Gosh Dave - sounds really strange and thats one side effect Paul didnt get ! There should be a guide written by those whove been through it as Im sure the medics don’t know the half of it ! lol 

best wishes 

Emma 

No  worries I never lost taste buds which was a double edge sword as I could taste everything but some times I would accuse John of over salting things. Oops as if I would  dare to accuse him. Lol. 

Yep Emma we’ve got a fridge full of what I call my fancies. Today I wanted an egg custard wish u had known you had a fridge full u could have sent me some. John gad the temerity to sayveggs incuoboard make some lol as if

night everyone

h x

Hi Laura and Mick

wow you  dont do  by half’s do you !!!!!! Makes me tired just reading about it !!! You deserve a break if yiu can get one some time this year ! 

yep we are still,in Spain we sent specially the weather to the U.K. over Easter just for my fellow cancer suffers lol we had 3 days  of torrential rain ourvdaughter and grandson were here somplayed lots of car games !! They went home  sunday and today normal weather has returned ,have biked uowards if 500 km we’ve just short if 2 weeks left have coped pretty well with the sun factorv50 and false tan. 

The peg episode sounds interesting it’s marvellous what the human body can do when’s it has to ,good news about the lung and camera. 

Thank you for kind words like I keep saying in the start I did it all selfishly for me but now am pleased along with Ian and rest of our gang to share our experiences albeit ones we didn’t want to have any of us. For you now Laura it’s the long slow road to recovery am sipure you will get there yiuve xome this far remember the early days ! And look whee youbare today

keep in touch I will be updating my blog when we get home will post on here when it’s done.

love to everyone 

Hazel xx 

Hi Laura 

Great news on the ENT follow up and gosh no wonder you haven’t had time to pop by - you definitely have your hands full. What excitement as well with the RIG balloon and poor Mick having to hold it in all that time.You must have been pulling your hair out with all the caffuful - lol . Glad you got it sorted in the end and you are definitely right the gift that keeps on giving !! 

Keep up the good work and I hope the rest of Micks recovery is uneventful.

best wishes

Emma xx

Hi Laura,

Thats a lot to cope with for you and heart goes out to you.
RIG sounds a bit of a nightmare but glad now sorted. Never had one so cant really comment but might have benefited from one with hindsight, but shame you had to go through that trying to get changed.

Good news that the consultant happy with Mick and long may it continue.

Keep as positive as you can I keep talking about the light at the end of the tunnel and the fact it exists.

Hope Mick continues well in recovery and please keep us posted on progress.

Onwards & Upwards
Ian
 

Evening  you lovely lot . I thought I would give an update on Chris as today was day 19/33 so over halfway woo! 

I went with him today as Thursday is doctor, dieticians& speech therapy day. 

No wight loss probably due to all the mash and semolina I am forcing him to eat .

very sore red neck with blisters - given a new cream gel.

lost his voice this morning he was unhappy about that came back a little this evening but hoarse was told to drink more fluids to keep throat moist .

Speech therapist happy  .

Pain in throat becoming worse but he loathes to take  pain killers but has been told he must take them regularly and don’t fight the pain . He was given morphine to have during the night when it’s at its worst as it will work quicker than the regular co codamol .

Doc was happy with him and is as good as can be expected but it could become worse over the next days! 

Must say everyone in the hospital are absolutely wonderful . We are so lucky to have the NHS .  Kind regards Ginny x