Hi zgraeme yes the icy hand stage should pass I got ut around you4 stage  now it’s nit all the time and onky finger ends. My oncologist said it’s all about our body thermostats that have been fried due to treatment and when blood circulates it’s protectingbthe vital organs first heart kidneys etc and fingers n toes are at the extremities that are farest  away if that makes sense. It’s like everyine on this path we are all the same but different and get things at differing times. .

ps won’t mention Man U games yesterday suffice to say we were bad heaven help us Wednesday 

hx

Glad it’s not just me then everyone seems to have muscle loss, my arms and legs look pathetic at the moment but I suppose Im still early stages in recovery, yes Iv had the cold hands too when the weather is cold but ok like now on a warm day.

We better keep quiet about United Hazel, :(

Dave

Hey super Dave better get some kryptonite soon can’t have u wasting away. Lol. Yep let’s not say anything about footy. 

Mid you gave a decathlon near u they do some good exercise tension bands for building legs n arms back up 

h fingers x fir Wednesday 

h d

Just when we think the thread has offered  all of its help we get more. I  got shrugged shoulders from my docs about cold hands, and muscle loss wasnt mentioned. But now i find it is common among us. Thank GOD for this forum and Ian's thread, let's keep updating folks, this road  is longer than i thought and even an update just when we want can be invaluable, today certainly has.

Great stuuf Luiosabel and glad to hear how well hubby is doing.

Even more impressed he got to PAris with family so that was a great boost.

Figurers crossed contunues way he is going.

Onwards & Upwards

Ian

I agree Graeme and this has been a great thread for  help/support and tips and so many of us have pulled together for each other and sharing experiences. I certainly have found this invaluable.

I'll keep updating with anything I can of value.

Ian

Yes! As well as being underweight my partner has lost muscle. So much so I'm surprised he has any strength left. He amazed me this week by going to my allotment and doing some digging! (I haven't been there since October!). I didn't ask him to go, he did it on his own accord. All I've told him to do is try go for a walk everyday.

While we are mentioning side effects etc, Iv had a strange one that Iv just found is related to head/neck radiotherapy, when Im out walking which we do regularly Iv been getting mild electric shocks from my waist down the back of my left leg in the last few weeks.It only happens if I tilt my head forward to look down.

Its called L’hermittes sign, Iv literally just googled this and found out what’s causing it, it’s not painful, more a strange sensation or mild electric shock, anyone else getting this?

Dave

never heard of that one Dave and nope not effected by that at all.

Is this every time you look down or sporadic?
I'd probably mention to your team..do you know if temporary?

thats a stange one and sounds unpleasant albeit not painful.

Hope clears up for you

ian