Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Thanks Hazel its just sinking in off out now to celebrate X

  • Ian, Hazel and Emma - thank you so much for your replies and for making me feel so supported and 'at home'.  It's so kind of you to keep returning to the forum to offer assistance in the way that you do.

    As expected, teeth from both sides of my husband's mouth need to come out and he's due to have the extractions sometime next week.  Not pleasant, but if it prevents possible problems in the long term, then it's worth having done.

    Dave - wonderful news about your scan.  I'm so pleased that your birthday's been such a good one.

  • Hi Jaxter,

    Your welcome and happy to help.

    I also had both side back teeth extraction and to be honest wasnt the most pleasant experience and took a little time to recover. My gums are still a little effected on the left hand side after treatment.

    This will delay start of treatment slightly but nothing to worry or be concerned about.
    Also hope done in one go under surgery as my dental consultant was going to start pulling them a few at a time over a few days. No chance !!!!...I waited the little extra to get booked into surgery and done that way.

    Please keep us posted on progress.

    Onwards and Upwards

    Ian

  • Yes, it's being done under general anesthetic - 6 out in all, so quite a big emotional impact.  The Oral Surgeon said she hated to take out such healthy and well cared for teeth!

    They seem to have arranged the extraction so that it allows just over two weeks between it and the proposed start of chemoradiotherapy.  Hopefully that will be enough for him to recover sufficiently, but I guess there's no way of telling how speedy the healing process will be until it begins.

  • Hi Jaxter sorry to hear about Teeth extraction s I was one of the lucky one s and didn’t have any taken out. But the radiotherapy is so targeted I think I was lucky and the teeth that I had had already lost one on upper one on lower jaw was enough for the beam to work with if that makes sense.

    look at it this way if you can extraction after treatment can involved all sorts of problems ie hyperbaric chambers for up to 2 weeks of teeth need pulling for up to 6 months after treatment. Little consolation but a positive spin if at all possible.As you will get to know over time this cancer keeps taking things but keep in your mind the positive things the biggest being the end results .

    keep in touch please we are all here to help .

    Hazel x

  • Hi Jaxter as Ian says we’re here to help - we may not always have the answers and are no substitute for your medical team but we have lots of tips that may help you and your hubby aking the way. 

    My hubby had his 4 - healthy teeth - extracted under general anaesthetic- the oral surgeon saud I can take them out now uf you’d like - err no said hubby - you’re putting me out to do it. I remember being very emotional about it . When he went in to have the extractions the staff in the day unit kept asking why he was having it done as he looked so well - we couldn’t believe he looked fine but had this thing growing in there. His GP phoned in the evening to see how he was and I remember just blubbing. 

    Hopefully they can get him in quickly so he can start healing. IHave they mentioned a PEG or a RIG to help with feeding during the treatment? Paul had a RIG and although he was resistant at first it was definitely the best descision to have it. 

    Anyway keep in touch with how things are going and feel free to ask any questions you may have.

    best wishes and good luck

    Emma xx

     

  • Calm before the storm!!!

    So I am trying to enjoy this lovely Easter weather before my treatment starts on Tuesday. I feel absolutely fine with no symptoms, its hard to realise you are infact seriously ill. The sad thing is that in the next six weeks they are going to mess you up big time and I can’t help thinking is this the best I am ever going to feel again…

    Two Chemo and thirty Radio blasts to come, I thank all who have helped me come to terms with this via the forum for your support and kindness, I will update this thread and also those who have been kind enough to private message me support. Hazel (bless her she responds to absolutly everyone) Ian (another who offers help to all), J4, Clara, London and Jimbo, also Amy who is waiting to see what her next step is on this ****** journey. I wish I could feel a bit more positive but I am still terrified of everything that is to come our (myself and my wonderful Eileen) way.

    Happy Easter to you all and thank you XX

  • Hi Cotswold

    Good luck with your treatment and more importantly recovery.
    It can be challenging sometimes but there is really high success rate with this and you will have seen the positve outcomes from a few of us here so hopefully that is ecouraging to you ( and others).

    We are all here to help and support you any way we can along the way. and please keep us posted on progress

    Onwards & Upwards

    Ian