Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

Parents
  • Hi

    I just wanted to thank everyone involved in this thread, as reading it has been incredibly helpful over the last few weeks.

    My husband had a swelling on his neck diagnosed as cancerous at the start of this month (April 2019).  It was a shock: he's never smoked, rarely drinks, cycles regularly, eats sensibly and is in good health - or so we believed.  Since then he's undergone a CT scan and biopsy which have confirmed the tumour as being at the base of his tongue and HPV16+.  He hasn't had his tonsils removed, as the sugeon doing the biopsy/panendoscopy thought they looked OK, but going by the scan the consultant thinks one has been affected, as well as some lymph nodes.  He gets assessed by the dental team tomorrow and has an MRI booked for the end of this month, plus whatever other appointments are yet to be arranged, with chemoradiotherapy due to start in about 4 weeks.

    The last couple of weeks have been stressful (to say the least!), but this - and a couple of other similar threads - have been incredibly useful, as have the wonderful blogs by Ian and Hazel.  Having an insight into the treatments and their side effects meant that we felt quite well informed about what lies ahead even before speaking to the hospital consultants, and instead of everything being a blur, we were able to take in what was said and manage to ask some sensible questions.  Without all of you generously sharing your experiences it would have been a very different story.

    Because of that, I wanted to let people know how important this thread has been for us - and that all your tips for coping with the treatment etc have been gratefully noted!  It's not a good situation to find ourselves in, but we feel pretty positive that we'll come out the other side in one piece.

    I hope everyone who has posted, or who might be reading this, is doing well and continues to do so. 

    Thanks again, and best wishes to you all

  • Hi Jaxter,

    Thank you for your kind words and i'm really pleased you found the thread and both blogs helpful.

    I'm sorry to hear of the diagnosis but its good to note your positive attitude as I am a firm believer that is a tremedous help.While you will have read of the challenges, you will also have read the positives and noted that the light at the end of the tunnel actually exists
    Please keep in touch with progress and also post away here on the thread.

    Let me know if I can help in anyway at all.

    Onwards and Upwards
    Kind regards
    Ian

  • This throat cancer  Family blog has been a lifeline for me . My husband had his 13/33 radiotherapy session today almost halfway ! Just making another batch of full fat semolina ! . It’s puddings  for breakfast dinner and tea in this house ! Hugs to you all . X x  Ginny 

  • Hi Ginny no problems only too willing to help   Must day semolina was never my favourite st school but it’s surprising how childhood food quickly become a staple of our new diets. 

    13/33 well done the next stages may get difficult but positive mental attitude gets us there. 

     

    Kerp in touch. Hazel 

  • Good stuff Ginny and edging towards halfway through.

    What a great idea re semolina. I used to love as a boy and forgot all about it. 
    Now you have put me in the mood, I'm gonna have some.

    Hope all going well and hubby coping ok but please keep us posted with progress.

    Onwards and Upwards
    kind regards
    Ian

Reply
  • Good stuff Ginny and edging towards halfway through.

    What a great idea re semolina. I used to love as a boy and forgot all about it. 
    Now you have put me in the mood, I'm gonna have some.

    Hope all going well and hubby coping ok but please keep us posted with progress.

    Onwards and Upwards
    kind regards
    Ian

Children
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