Hi Ian

my husband has larynx cancer an just finished 6 weeks radiotherapy on fri it’s been long six weeks an he has done really well as when he first started they told us the downs I wrote him off week two but he still got his voice just about an kept his weight keep on top of your pain his neck is really sore now and got sore throat but they said next two weeks will be tough good luck with your treatment

mansy steve

hi mandy just git to hang on to things willgetbbetter I am 10 weeks post radio,eatingbstill difficukybthank god for high calories drinks but little by little am eating and regaining strength 

I have written a blog if yiu want to read the ups  and down s feel free to ask any questions between us we all help each other

www.radioactiveraz.wordpress.com

hazel 

Hazel Im red born and bred. :)

Had trouble swallowing today so I contacted Christies.. to cut a long story Im on Oramorph and some drops for Thrush.

Dave

hi Dave 

wontbxomment kn resukt

oramorph is ok I was on it for 3 months just weaned my self off ut this last 3 weeks but omg if u need it it certainky help save ok u may need naps but sleep is good . Keep up with the thrush drops as well as they take a few days to start working and finish the course 

glad I got sorted 

hazel

Thanks Hazel always good to get the heads up what to expect, I know we are on different tailored treatments but good to hear all the same.

Shocking result today but not surprised.

Dave

Hi Hazel,

ah well just to share with you my friend that for the first time today,  I have managed a little food.

2 fresh thin frankfurters and little heinz sauce to help go down. First of something hot and solid that I have tolerated for some considerable time now and hope the baby steps of some progression

So chuffed as not great but I did manage as little worried about weight loss so these are quite fattening so should help.

So i now have a menu that i can tolerate of think frankfurters and mini curl wurlys for dessert.

Who and hoooo....a la cart or what!

Hope you are still doing well and enjoying your pies !

kind regards

ian

Hi Ian

bravo what a great start. But one thing is missing a starter !,,, no Michelin award sorry. 

I kniw the feeling of elation ,when I had the inside of a m n s pork pie you would have though I had won the lottery. !

had some good news one of the girls who I got to know early in the process had her scan mri yesterday n consultant later who although couldn’t give her a full clearance until due process has been done was very confident the cancer had gone. She like us had been unable to eat for weeks and during treatment was sick up to 8 times a day so anither good great prognosis. 

Keep up the eatng ok it’s repetitive but any food is better than constant shakes .what are u like with eggs ? Poached are easy to slip down on a bed of *** white toast spread with lashings of lurpack I find toast easier than bread on its own.  Dont get down if one day frankfurter s seem off it can happen just find a replacement then try them a few days later  strange but the processed meats are much easier ok nit first choice normal but at thus stage take anythjng  

corned beef hash n Yorkshire puddings are another good one  

have u tried plain vanilla ice cream ? J couldn’t eat ut for a while then all of a sudden I can it opens up the possibility of buns n cakes just put on top let it melt makes it easier to slip down.

i am ok steak pie chips only a few n beans tonight  followed by a chocolate eclair  notbtried one recently

like u my weight dropped but has remained stable now for last few weeks not increasing but not lost any more  off oramorph totally n started reducing co codomol 30 mg to 8 mg doing it slowly replacing one tablet every 3 days

kerp in touch

hazel

Hi Dave

sho are we going to get then ? 

Ole gunner or Keano

On a serious note how are you doing how’s the thrush ? And treatments doing it’s not easy but there is light at the end of the tunnel judtvremember that  see my posting to ian re another success story

hazel

Hi Hazel I think Ole as a caretaker with Carrick and maybe Poch in the summer?

Saw my doc today its not thrush..the whole white stuff is Ulceration, he said its unusual to have this at early week three and im sensitive to radiotherapy, I can up the Oramorph if I cant swallow and he thinks Im going to have problems. He`s putting me on drink supplements from tomorrow. Good news is my weight is stable but I cant think why. 

hanging in there..Dave

Hi Dave

yiu hsve ny deepest I had that as well another name is mucositis it is painful I had ut combined with thrush .the seinks are to ensure that you get nutrition down you. I was on fresubin to start with followed by Ensure and at week 4 ended  up with the feeding tube .its bearable I was afraid if it to be honest but it did it’s job when it became too painful to eat and drink the drinks my weight held steady right up to last week if radiotherapy.they don’t want you to loose weight as the mask won’t for and cost wise to make a new one i was to,s £7k. How true I don’t know .

top tip if u have the tube ask for a drink of water take a straw with yiu and when they start drink and swallow it goes down easier my first one was in 21 days then ha s to have another one on a plus side you’re medication can go down it as well .it does take a worry of you am nit saying that’s what will happen but don’t be afraid if it does  I am living proof that it works ,it frees u from the worry if eating you can still concentrate on drinking as calories are important at this stage answer for recovery.

read my blog if u haven’t already 

ps I ahted the chocolate flavours couldn’t stomach them strawberry banana vanilla were palatable answer if u ddind them too thick get some complan and water them down more Calabria’s and more hydration 

www.radioactiveraz..wordpress.com

shout out if u need to know anything. And don’t worry

hazel 

Thanks Hazel I dont fancy the tube at all but If I have to I will of course, doc says I can lose 10% body weight before that will be considered though, my wife Julie is trying to get food into me at every opportunity :)

Good news is Iv not felt sick for a few days, If this Ulceration dies down a bit i`ll be well chuffed.

Dave

HinDabe n Julie

eat what u can while u can keep on top of teeth cleaning and gargle with warm salt water.i lost 18 lb I. Total but know if people who lost over 3 stone .

keep going nearly half way there , recovery is a long slow process but we all getbthere in the end. I’ve just had a few chocolate s which when I was at your stage never thought I would eat chocolate again

take care

hazel 

HinDabe n Julie

eat what u can while u can keep on top of teeth cleaning and gargle with warm salt water.i lost 18 lb I. Total but know if people who lost over 3 stone .

keep going nearly half way there , recovery is a long slow process but we all getbthere in the end. I’ve just had a few chocolate s which when I was at your stage never thought I would eat chocolate again

take care

hazel