Hi Emma,

Thank you for your kind words and encouragement.

Im so pleased to hear progress regarding your husband and its inspiring to know that as you say, keep plodding on and it does get better and although some permanemt slight adjustments, still well worth it.

Have a great weekend

kind regards

ian

Hi Ian

deffo if  I can keep drinking the water. Plus remember what yiu can’t tolerate one day the next day or week you will be able to somits trial and error butbkeep going in the right direction

Happy retail therapy ,hope yiu are buying useful things !!!!

hazel 

Hi

No you aren’t a bad patient ,just remember  everyone of us is different if you can drink water keep drinking it really does help. Unfortunately I couldn’t drink it apart from peppermint tea for over 2 monthes it made my mouth like chalk , I could manage soda water which was ok but washing food down with it was horrid. 

Get as many dry mouth products as your dr dentist and nurse will prescribe , a good tip is get them all to prescribe something if at first they dont work keep,them as I did and eventually you will be able to use them. To start with the saliva spray smell of fish so I refused to put jn my mouth but now I use it and it gives me ok broken sleep but no longer am I awake for hours at a rime

keep plodding on if you haven’t read my blog it’s www.radioactiveraz.wordpress.com more tips and moans on there if yiunhave read it thank you.

remember next week start if anither week nearer to finishing 

hazel 

Hi Dave

umm could well ne thrush it’s quite common no matter how religious we are at mouth cleaning the tongue ceases to donits job until u can’t use it we have no idea how much work it does do.

ive had oral thrush on and iff all the way through and my mouth accordingbtindrs is one if the cleanest they had seen.

i bought iff Amazon 3 toothbrushes curaprox 5400 soft bristles they really do work think about £10 for 3 .if you find the duraphat toothpaste too strong which I did changebti mildest sensodeyne you can get.

re thrush keep an eye on it ask in Monday they should prescribe Nystatin for you , thrush can make it painful to eat and drink which is the last thing you want.

i am 15 weeks post radio and still having some issues but lunchbtodaybwas a bacon sandwich in a panini bliss ,there’s is light at the end if the tunnel.

just don’t suffer in silence see the radiotherapy team in Monday. Are you having chemo as well ? How many mire radiotherapy I had 35 sessions 

Try toneat as it’s possible thatbin a few weeks time yiu can’t ans yiu need to keep your weight in

take care Hazel

Hi Hazel im on the duraphat toothpaste and soft brushes it seems fine for me, Im having 30 Radio sessions and have 20 left to go , no chemo as I caught it early, i`ll mention my problems on monday or Iv got a hotline number  if  needed too. I know about keeping my weight up in fact I put some on in the first week to get ahead of the inivitable loss.

This bloody desease consumes  your every waking hour and half the night, sorry for the moaning Im feeling miserable today but im grateful for the help and treatment there are people 10 times worse than me.

Dave

Hi Dave 

it certainky does itsbone of my favourite sayings when something else pops up. U are entiteles to feel how u arrvfeeling we didn’t ask for it .

yiu May have told me where in uk are you ?

i only had 2 chemos which were enough ,butbjust keep remembering lightbat the end if the tunnel

shout out if yiuneed anything or just want to rant

hazel

Thanks Hazel im from Manchester and being treated at Christies so Im in safe hands.

Dave

Hi Elbie and welcome to the forum. We are a small group of people going through treatment and like me , those who are or who have supported someone through it. My hubby was diagnosed with tonsil cancer and lymph node metastasis in December 2015 after 5 cycles of chemotherapy and 30 fractions of VMAT radiotherapy plus a neck dissection he has been cancer free and in remission for 2 1/2 years - in fact 3 years ago today he was in hospital gaving had his tonsils removed and multiple biopsies. Just to say that the members here are always happy to answer any questions or just listen when and if you need us - its a tough road but you’re not alone. Caring for a loved one undergoing the treatment comes with its own stresses and anxiety so shout out if you need to chat. If youd like to chat more privately then feel free to send a friend request and Id be more than happy to chat.

Wishing you all the best with your appointment and pop back and let us know how you’re getting on.

best wishes

Emma

Hi Elbie,

Thank you for your message and Im so glad you have found my little blog helpful. All I really wanted to do was to at least help one person and I have also found it therapuetic to jot down journey.

Ask away any questions you like as often as you like and even just to chat or rant.

You are right in that its not an easy journey but there is light at the end of the tunnel and the prognosis is good and highly treatable.
You are welcome to friend request if you ever wanted one on one and if you found helpful.
Its great to have the support here and there are many practical tips that you dont really think of but are really helpful.

Lots of contributions and little things can make it just a little easier.

Pleae keep us posted on how you get on next Tuesday with Oncology ( one little tip that I pass out as definately helped me is to ask for radiotherapy appointments first thing. I had mine mostly 9.00am and helped great deal as out way first thing and didnt break up day so had rest of day for undisturbed rest/meds etc, but that was a personal thing and may not suit you )

Again as you say, early days for you, but nonetheless you are more than welcome to ask away and if there is anything I can do at all to help then please do not hesistate

kind regards

ian