Hi Ian sorry for late reply couldn’t sign on site iver weekend properly. Fish supper n fillet steak if y do I Ann coming up. Goingbtinteynfish n chipsmon fridaynfrom chippy! I am one if lucky ones know Vatch couldn’t do chips for a very long time I can do home made ones .thinknthe fillet steak is a long way off meat is deddomthe hardest. I am fast becoming pie girl !! Previously never touched them now pork pie steak pie chicken pie cheese pasty doesn’t matter what pasty either . But tried a tiny piece of mince in a lasagna no way was that going down my throat so strange.

tipmdor the Ensure I poured it into a glass and found no it much easier than the straw took me weeks to find that out though so try it .

off to my dentist this am clean and polish I hope as long as she isn’t gentle 

happybretail yherapy

Hazel

Thanks Hazel,

you seem to be doing great so well done you and long may it continue.

And as for pies - go for it girl lol !!!...much better than these damn ensure drinks !!

Aware its just a time thing and bit washed out this weekend and just tired all the time, but staying positive and marching on lol.

I know in my mind I want a fish supper and fillet steak with peppercorn sauce, but sensible head knows I cant. Might try my home made lasagne later this week as an experiment.

kid regards

Ian

Hi Ian thank you for kindness words 3 steps forward 1 step back now which is an improvement in  a few weeks ago ! The tiredness is the radiation is still working it’s maguc inside our bodies I was napping at this stage ,in fact I still have 2 x 20 min power naps now lunchtime and tea time . They say the time can be uonti 18 months for all to feel better so bsbyvsteos. 

I dream if food neve4 used to but woke up other night convinced I could smell chop shop salt n vinegar. I wish. 

Good luck  with lasagna  maybe leave utbtombe cooler than you would normally eat justvtemeber eatlybdays if u can’t eat ut this week next week might be different 

keep in touch 

Hazel

Hello all

and a quick update on my little journey and this is the end of the second week following the completion of my radiotherapy.

So i guess I would say not much improvement in terms of fatigue and if anything , slightly more tired, but off and just go for power naps when I like.
Still of variety of meds and defo needed just now but apart from I would say last Sunday when really washed out, Ive been relatively settled this week.
I'm still on the dreaded bushtucker trial Ensure drinks and am on 4 a day..meant to be 6 but im sticking to 4 and trying a custard or something to replace as they are gross lol.

Maybe I can liquidise a fish supper?

Gonna stick with it this weekend then maybe try and experiment with soggy cornflakes/rice pudding n stuff and see how I get on.
its right that there is no way that you just ping wide awake as soon as radiotherapy stops and a longer process, but little baby steps and im hoping slowely slowely progress will catchie the monkey.

Staying positive a a little more retail therapy, which is vital, has went a little way again to bring some cheer.

Staying positive tho as always and just getting on with it.

I wish you all a good weekend

kind regards

ian

Hi Ian 

baby steps are the way to go. As for food try anything and everything it’s the only way ,some things yiu can tolerate one day and the next day will be vile !

the endures are still doing my head in but head down and drink. 

Toda6 I thought if you had fish n Chios from chippy first time in years managed a quarter of fish before it was cold n a few Chips  ditto .as yiu progress yiu will find that it takes so long to eat anything that it’s always cold u can re heat so many times before you’ve had enough but inward n upward . Mashed potatoes n stew gravy the meat no matter how small can be difficult.

retsil therapy alwats helps 

how’s the mucus plus watch out for oral thrush it’s around now that yiu May get it yiu will kniw as it’s painful 

good luck keep in touch

Hazel 

Hi Hazel,

Thanks for posting and keeping in touch.

Mucas, I would say a little better...not dramatically and still sticky mouth a lot, but do feel some improvement.

As for oral thrush....they did think I had at one point but was swabbed and came back negative so one less medication to take.

My doc prescribed to the chemist direct a months supply worth of Ensures !!!!

lol chemist scatching head and double check as so damn many, although Im hoping I would need to use them all.

So all good I guess ish...sleeping more than a hibernating bear but again slowly slowly and will get there in the end

kind regards

ian

Hi Hazel,

Why such a battle for drinks?

My docs really supportive and never batted an eyeline and ordered a months supply with no issue.

I see them as medicine as its not something one would volunteer to drink on an ongoing basis.
Aware budget restraints and they are actually quite expensive. I think I worked out from Amazon they are around £2 per drink so 5/6 a day x a month is expensive.
I hope I will not need them all and wil return what I dont need but if you need medication you need medication.As there is a reason for prescribing them, Im not sure how practical or useful handing out 12 drinks for the month are?

At least some improvement re mucas and im pleased at least one sign of improvement but as for sleep its a funny one. I can be watching something for example then its a wave comes over me that I just need to go to bed. Often just power naps for a couple of hours then im fine again, but I find the need to sleep is still there quite a lot and would say Im with you on 2 naps a day and very occasionaly 3.

How long do you nap for and do you get a full nights sleep?

Glad you keep posting as its good to bounce off someone who has been there and knows exactly what I am talking about re symptoms.
You have done great tho Hazel and interetsting how your body is slowely adapting and how you experiment with food intake to see what works for you and what dosnt.

So one thing I wanted to ask you was your experience with the morphine.
Ive been on oral morph for some time now and around 4 weeks on MST crystals as well. The slow releasing MST, I thought wasnt working until I reduced for a day and then got some pain back in mouth.

So basically, if you dont mind me asking, what do you take in way of morphine now and was it done on reducing dosage? Im keen to come off but obviously will do so in conjunction with medical advice.

You still pie girl? lol

enjoy rest of your weekend too and apologies if I talk too much.

kind regards

Ian

Hi Ian

Firstlybthe oramorph or my best friend in hour if need as I called it.lije u didn’t want it but didn’t want the patches either  have been in it since middle of August .i tried about 4 weeks into recovery tomreduce ut but in too much pain. So 2 weeks ago. Week 12 I’ve started reducing ut every 2/3 days was taking 4 times a day 5 mls sole to Macmillan nurse they said slowly do it so yesterday I was down to half a mill 3 times a day and 1 ml at night. Thus morning I didn’t take any been 4 hours and am ok somwatch thus space will takenhalf at lunch time none tea time n half bedtime slowly slowly monkey. Co codomol next but will leave anither week Before I address these 

Napsdown tin25 min after lunchtime tablets and power nap go to bed fully dressed n snap 25 mins later up same atvtra time tablets 25 mins .

nightime I see unwere up at witching hour 0400!!!!

it will stop but around week  10 inwakemupmaeound 2 am 3 am but now lean iver getba drink of water 

Spray saliva in my mouth woke then e at 0615 tablets back to bed til 0845 it does get better it’s just forcing thatbsip of water in.

as for drs onkybresponce ingit was budget budget wouldn’t mind proormtomthus I made an appointment to see one if the partners as I don’t go to drs from one year tonnext oh he made all the right noises but when it came down to it it’s all about the money .the hospital were disgusted but likewise they couldn’t prescribe as didn’t want it from there budgets ,got a 6 page letter addressing my complaint with every other line being if we have let undown we apologise fat good that was when I needed the drinks yes expensive we are buying complan toneek them out as i don’t want to go back and face anither battle  

thank you for complement s will take them n if u can help anyone I will willingly  yes still the pie girl meat n potato for lunch today and wait for it bbq spare ribs from Tesco for tea the meat is surprisingly soft just don’t put the extra sauce in 

keep in touch 

don’t be in a rush re oramorph it’s there for a reason I found out the hard wayb3 days pain for trying to be brave slowly soowyHazel

Im 8 sessions in of 30 radiotherapy for throat cancer and feeling nausious pretty much all the time now, I wasnt expecting this as one of the side effects has anyone else has this symptom?