Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • Never thought of gluten free and not sure benefits but might be worth a go.

    I'm lucky as well in that I have been able to work from home throughout treatment and found quite therapuetic and productive. Also managed to get power nap when i needed it.

    Again lucky as computer based and managed to access work networks from home so worked out well.

    I dont think I would be able to work if any manual work involved.

    4 treatments to go then hopefully on the mend and I am longing for either fish n chips or chicken korma n rice, just to make change from the esure drink menu of banans/cho/strawberry.

    Soup/custard n rice and look forward to something little more tasty end enjoyable espacially when cooking is a hobby of mine and make all sorts cuisine from scratch, but sure in good time will find taste buds again.

    its funny how you take things from granted when you eat what you want only to find them taste metalic when you normally enjoy.

    Small price to pay though short term.

    onwards and upwards

    regards

    Ian

  • Hi Ian

    gluten free is eadier to swallow as its made from semolina flour which breaks up more easily and with less saliva making it easier to swallow. On the downside ut can be cardboardy and usually has more added sugar but thats not always s bad thing when trying to maximise calories. Warburtons New bakehouse sourdough or tiger cob from sainsburys or waitrose is the best ! Steer clear from tesco own free from range ! really cardboardy . Genius products are ok to but all of the crumpets are really heavy ! 

    Emma 

  • Hi Ian 

    good luck for tomorrow your last day of radiotherapy!well done in reaching this far ,remember ask if yiu need anything or any questions .

    i brought my mask home sick souvenir I know she’s hanging in the garage some hospitals allow you to bring them home just thought I would let you know that one .a lot if people don’t want them then afterwards say wish they had kept it. I look at ut this way it saved my life fingers x.

    take care keep eating , watch out in nuggtbfir mouth getting stuck tip I gargle gently with warm salt water .taomwater too harsh for me so I used mineral in kettle and mineral water to drink and cool it down lanyway enough if my waffling

    hazel 

  • Hi Hazel,

    Thank you and one day to go !!

    I already have a mask as 1st one didnt fit and they let me take it home, but im not sure I want it around the house but thanks for letting me know.

    Stuggled past couple days with eating and from consipation to taking laxido then diarahhea.

    Feeling sick past cpl days and stuggle to get anything down so will ask for anti sickness tablets tomorrow as well.
    I have booked 3 weeks annual leave from Friday and looking forward to treatment being over as its been a long shout and ive had enough now lol.

    Sleeping more than normal past couple days, but just going with flow along with meds and trying to get through final hurdle. Aware that i will continue to feel naff for some weeks tey, but hoping to at laest be on te start of recovery once treatment stops

    kind regards

    ian

  • hi again.

    lol...day out and maybe wishful thinking..

    I have 2 more treatments to go and finish on Friday lol

    kind regards
    ian

  • Hi *** was convinced while in bath it was Thursday n. Use message u. Oops oh well thoughts are there !, gives u a day to think about keeping the mask !,,

    hazel

  • Hi Hazel,

    Hope you have found your lost day! lol

    Feeling bit better today after cpl days feeling bit washed out and after meeting with nurse today , was told to make sure I have at least 2 ensure drinks a day as struggling with taking anything and lost few pounds this week.

    But only one more treatment to go tomorrow - who and hooo....and looking forward to at least this part finishing and then buidling up strengtth as weeks go on.

    Back on nebuliser and I think I should have use more often as it maybe helps more than I thought with the mucas.

    Still trying to have positive head, managed quite a bit of work today and onwards and upwards from tomorrow

    kind regards

    Ian

     

  • Hi Ian

    made use of my lost day by dragging myself n hubby to cortonwood and xmas shopping a task that needed doing !

    good luck for tomorrow ,just a word of warning don’t try and do too much please I know 3/4 people who in first week after treatment overdid it and ended up in hospital .! Dehydration and lack of food .

    at one point. Just remember it took 6 week 5 times a week to get the radiation into yiu it takes at least 3 times as long to get it out if your system .if u touch my neck I still feel heat from it 

     I was on 5  Ensure and 2 fresubin I still take 2 30 min power naps in day one after tablets at lunch and one at tea time. 

    Re nebuliser I made it part if my routine for a good few weeks including middle of night It’s was wake up rinse take tablets try n get some Ensure down me even i night then nebulise then clean teeth put lip balm on biotene  gel on gums n teeth then bed .

    the biotene gel is good for maintaining moisture u can try and get it prescribed or get your dentist failing that boots chemist. Biotene also do a mouthwash I have ut but too strong for me still 

    good new today I am sat eating a tin if plum tomatoes admitting slowly but it’s a vegetable !!!!!! Up to now plain boiled beetroot and soft carrots if I am lucky . I miss fruit n veg.

    oh well the tomatoes have defeated me managed 3/4 tablespoons its a start  

    did I say I had a radiation burn the entire length of my tongue the oncologist had to catch the edge if tongue to ensure he had enough margins he apologised for nit telling me at the time but said it had to be done hence why I am having problem so still but looking today it’s now reduced to maybe 3 cm .

    once again slowly does it think tortoise and hare m in this case we are defiantly the  tortoises.dont iver do work either 

    thinking if yiu living in table for last time hearing the click of the mask being undone is quite emotional and at our hospital we get a bell to ring in reception I said all along I wasn’t doing it .but in the end I didn’t and hearing the clapping as getting then  congratulations made it worth while 

    best wishes

    Hazel look forward to reading uodates keep in touch 

  • That last radiotherapy session lives with you forever I reckon,remember it like it happened this morning even though the last 6 months have been a bit of a blur."Would you like to keep your mask John"? No, ******* burn it,I'm sick of the sight of it! Then ringing the bell after, not wanting too but being egged on by wife and daughter,and punching the air felt very cathartic somehow.A wonderful feeling closing one chapter.

  • Hi John 

    wel put ! Glad I kept mask though as when u shown it to people the responses i get  are incredible ,like I couldn’t have done it  it so I reply no choice it’s that or die. Plus at Halloween looks good with lights in it !!

    have a good weekend

    Hazel