Radiotherapy for Throat Cancer

Hello all,

I have posted my little story on introduce yourself and basically I have been diagnosed with Stage 1 Throat cancer.

The prognosis is hopeful and I remain cheerful and positive. Its taken a while for the actual treatment to start so glad to get on with it at last.

I started my first day of radiotherpy today and have 29 more treatments to go over 6 week period.
I have made a little computer programme that logs my side effects and summarises episodes of each heading and I plan on keeping a daily log of how things went/ how I feel ( good and bad ) and map out my journey. I find it therapuetic.

I will share periodically in the hope that even if it helps one person as well as myself  it will be worthwhile.

So day 1 was fine and I dont really feel any difference or notice anything.
One small point is that the mask made was slightly harder than when it was first made as it has set little harder over the weeks and was a little more moveable on the day made.
Took about 10 mins for actual radiotherpay treatment itself.
Drove home fine.

Meet with advanced practioner nurse every Thurs to discuss progress.
Aware might be a little different along the way but all good after day 1.

 

kind regards

Ian

 

  • NHi Ian congratulations on week 5 I had 7 weeks radiotherapy n 2 sessions of chemotherapy.i burn eucalyptus oil in an oil burner my MacMillan nurse advised ninto putting in nebuliser for fear of it burning the throat ,suppose up to  you but wouldn’t put too much in. 

    Weight wise I started loosing after radiotherapy but everyone is different just keep doing what you are doing. I am sat here dipping a walkers shortbread into a latte if yiu would have told me that 2 weeks ago I wouldn’t believe yiu things change daily. For tea u managed mash with lashings of lurpack a smallmyorkshire pudding cabbbage and stew gravy but meat is a hit and miss .for lunch 1/2 a steak pie with soup as gravy went down .

    tablet wise still on ibuprofen for swelling cocodomol 2 tabs and have reduced ora morph to 2.5 ml from 5 daily  .

    good luck for next week ,ps started reading at night time this week plus been shopping baby steps  just taking a day at a time ,some people get little side effects some like me get longer side effects  git my scan late December with results early January aren’t worrying about them as can’t  worry about something I can’t influence  

    just a word be careful of people who have had flu jab or git cold as live  vaccines exposure isn’t good for us  at the min

    enjoy weekend 

    hazel

     

     

  • Thank you Hazel and like the sound of how well you are progressing with baby steps and on the right road.

    My den looks like a chemists and on so many meds for different things but not too bad. Would say just bit washed out just now.
    I agree re cold/flu and one of the things I have little concern over as would really struggle with mask and flu!

    I know still quite a journey ahead but will be glad when the treatment stops next Friday and then take it from there.
    I am trying hard to keep weight on during treatment and forcing down liquids as muc has I can .Struggle with any solids as tastes so awful.

    At least reading your steps does give me hope for my first tasty fish and chips or chicken korma and rice..mmmmmmm

    Think your right and will just keep to saline in the nebuliser

    kind regards

    ian

  • Hi Ian 

    at some point you will feel dried out with saline tip u can use just plain water still effective but doesn’t dry your mouth .

    luckily my taste buds never went but that works against u as well if h can taste everything sometimes u just can’t eat it. Met a guy 3 weeks behind me and he was eating everything fish j chips curry’s chillies he was lucky didn’t get muscosis although lidtvradrlodt taste d buds good luck with flucozole I ended uo  with nystatin as flucozle didn’t clear the oral thrush. Tonsil cancer I call it the cancer that just keeps giving us problems. People can’t understand  why we can’t eat get comments my friend had breast or / bowl cancer and  could eat!! Umm mouth radiation stops u eating not all cancers are the same !!

    one tipfor trying to get food down is pretend u are a chicken and throw you head forward like u are pecking not a pretty sight but can work !!!

    night night hazel ps am also a branch of boots the chemist !

  • Hello there.Just came across this site this week whilst trying to find out about squamous cell carcinoma of tonsil after being diagnosed with it in June this year.I intentionally avoided googling anything whatsoever to do with cancer and indeed was warned not to by oncology staff.Glad I did as it left my vision clearer and helped me focus on my recovery.Anyhow,today is the 12 week anniversary post treatment and after reading a thread started by gamma ray Gary (vatch) it struck me that  everyone has had chemotherapy.I opted for an alternative called Cetuximab,one of the so called targeted therapies.I just wondered if anyone else had been offered this course too.

     

    John.

  • Hi john I am also 12 week post radiotherapy todsy I gad cisplatin. How are u feeling are u eating yet ? I am just starting hsve read vatch v goofd I also have a blog l

     

    www. Radioactiveraz.wordpress.com last blig is first do scroll down if u want to read from beginning  

    hazel

  • Hi Hazel,yes I'm eating in a fashion.As you probably know,it's 2 steps forward and 1 back at this stage,slowly slowly catchee monkey! Some days you can eat with relative ease and the next it doesn't feel too good.I had the peg fitted before any treatment and I still have it thank good as I didn't eat for weeks.I was back at Weston Park hospital last week after 4 really good days followed by 2 worse and 1 much worse only to find the dreaded thrush is back (3rd time),so another fortnight of flucanazone.I put it down to loading up on all the sugary crap like biscuits and deserts I've had to try and gain weight back.

    John.

  • Hi 

    western park Sheffield ? Ok was st james Leeds live half way between the 2 of them so 90 min journey when rush hour. 

    Yes I am also on my 3 rd round if oral thrush if fact nystatin is in my repeat script !!

    lol

    yes suppose it’s the sugary stuff this week I discovered I can eat chocolate !!!!!!!!!! So 2 hero’s equals 98 calories! Nevertheless thought I would be counting calories to eat instead of diet. 

    Do u have a scan date yet ? Mine hopefully between Xmas n news years  will find out on the 26 th 

    keep trying to eat I am finding meat pies are edible as long a slice j dip the pastry in soup !!!! Weird but fresh meat is a big no no answer I miss fruit so much 

    take care

    hazel

  • No peg for me not given at Leeds ended up With feeding  tubes for 45 days lost 18lb in weight bulkedmup when diagnosed put nearly a half a stone  in was eating magnums morn8ng noon n night as u knew the weight would come off .

     

  • I lost 30lbs or 14kgs if you like.Have a hospital follow up on 20th December but they said scan will be before that.

  • Hi Johnny

    good luck for the 20th keep me posted. Strange how each hospital consultant does it differently guy who I went through treatment with has his scan next week but my consultant waits 4 months as long as results are what we all hope for fingers x. 30 lb *** bet you’ve had to buy a new wardrobe of clothes !i am not too bad as am just under 10 stone n still get in my clothes MST have been a snug fit some if them prior to cancer visiting  me !,,,lol

     

    kerp in touch just had half a pork pie warmed n dipped.  Soup strange how some things are easier to eat but last night chicken was a big no no even with gravy. 

    Plus I am dunking biscuits in coffee which I have never ever done but needs must xx

     

    take care

    hazel