Triple negative breast cancer grade 3

Hi everyone.

I have triple negative breast cancer grade 3 and start my chemo in 2 weeks. 3 sessions of FEC - T then 3 of docetaxel.  Have been looking at wigs but just doesn't feel right. I'm scared and don't wanna know to much about it if I honest just want to know that it's treatable and curable which docs have told me it is so that's good enough for me. Has anyway else had this diagnosis or treatment and what can i expect. The fear of infection while going thru treatment scares me also. How has everyone else been with that ?? 

Sending love n hugs to all fighting cancer 

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  • Hi Dondon0808,

    I have empathy for you and all who are fighting cancer.  I understand your fear but recommend educating yourself as much as possible.  Knowledge on what you have, what it means and what your options are can be your sword during your fight. 

    I am proof that you can overcome this diagnosis.  In May of 2005, at age 39, I was diagnosed.  Scariest day of my life.  I had breast cancer -  triple negative, stage 3 grade 3 cancer...it was very aggressive.  The initial treatment plan was to do chemo and then a lumpectomy.  After an MRI revealed a second mass deeper in the breast, the treatment plan changed. I now had two differnt types of cancer growing in me and all I ould think of was "GET IT OUT NOW!!"  But I had to wait a bit.  On June 13, I had a modified full mastectomy (lymph nodes were clear!) with a natural reconstruction at the same time (8 hour surgery). I started chemo (8 rounds) one month later on July 13.  I had a small infection that postponed one chemo treatment but otherwise infections were not an issue. I did lose ALL my hair as the cold caps had not been invented in 2005. Me personally, I could not where a wig...not for lack of trying...I had 3 different ones.  But the chemo had also put me into a temporary menopause state so the hot flashed were unbearable with a wig on.  And it's not like you can just pull the hair off when it public...it freaks people out. Hahaha, I still remember this ladies face when I did that!.  Plus, when I would where the wig, I didn't feel like myself.  I felt like a different person and that did not work for me.  It felt like I was hiding. So I went with hats.  Wasn't a great look, but it was me.  I was open to the ridicule (and boy, people sure can be mean) if it meant people would stop calling it the "C" word!  I had CANCER and what good would it do to hide?  Anyway I finished chemo on October 26th and then had one last surgery in December to balance out the breasts (DD to a C).  I now call it a long journey on my life path and I joke about having a belly boob (reconstruction used tissue from my belly)!!  

    This journey changed me in many ways!  I now think that it was a way of preparring me for my next steps in life...showing me how strong I can be!  I truly would not want it to be any different.  The trials we go through, shape us into who we are supposed to be.  This might not be where you are now, at this stage in your treatment, but someday.

    So, 15 years, 5 months and 11 days after diagnosis, I am still here and healthier than before.  It took several years of figuring out the best ways to get the nutrients built back up in my body after chemo. But I have learned so much about holistic and natural ways to do this with supplements and diet. I AM healthy, I AM not taking any long-term medications or suplements and I AM so much more aware of my body, how it feels and how things affect it.  It brought me closer to spirit and showed me the link between mind, body, health and spirit.  I discovered that "dis-ease" of one's spirit causes "disease" in the body.  It showed me love and support like I had never known before.  Many, many good things came out of what I had thought was so very tragic at the time.  

    So, keep a positive attitude!!  This is key...do not let yourself become a "victim".  Watch as many funny movies as possible or what ever makes you laugh and your heart smile. 

    Peace and love to you!

  •  Dear Kem, no words, just thank you so much for your post. It has made my day .

    justaphase80

  • Thankyou for your post gives me hope iv had 6 lots of chemo lumpectomy going through radiotherapy now had full pathological response clear margins no lymph nodes involved full response to chemo hope there ladies that’s had lumpectomy with long remission story to thanks for making me smile today
  • Can totally understand we’re your coming from I can’t move on at all for worrying about it coming back I had great response to chemo  surgery but just can’t shift this fear or move on with my life am trying to see it as a bad year not a bad life but it’s so hard xx

  • Hi Lovely Ladies 

    New to posting, was having a bad day but read your posts and words of encouragement .....thank you all so much and hope your all having a good day !

    R

  • Hi issylizzy1316. I’ve just been diagnosed with triple negative breast cancer. Not started chemo yet. I’ve git this fear it’s a waste of time for me before it begins. Like yourself I’ve got this fear it will return.
  • Hi Liz55,

    I’ve hopefully just come to the end of my treatment for triple negative breast cancer. I was diagnosed last  November. It completely blind-sided me, as I had just gone for s mammogram and possible biopsy and they’d said 7 days for the results and the consultant called me instraight away and said”you’ve got cancer”. Like you it came back as triple negative, and me being the kind of person I am googled it so I could find out what I was dealing with, then immediately wished I hadn’t. I had about a quarter of my breast removed in December (there were three different tumours) and chemotherapy from January to June. I then had 4 weeks of radiotherapy which finished in August. I had many times (and I’m still having them) when I thought what if? I found several different things helped. Telling others was good because I realised it was normal to think that. When Icaught myself thinking what if, I’d acknowledge the thought tell myself it was normal then say “but what if it doesn’t?”. I also thought about it along the lines of the national lottery. I put money on every week thinking what if...imagine if you had as much chance of winning the jackpot as you do of beating breast cancer.....I’d be putting a heck of a lot more on each week than I do now! Cancer treatments are also coming on in leaps and bounds, if I can survive 5 years before it comes back, who knows what treatments they will have then? If I can survive ten...well they may have a cure for every type of cancer. If it comes back before then at least I’ve had some more time to Spend with my daughter and watch her grow up. I guess what I’m trying to say is how you’re feeling is normal, and natural, and about as bad as you can feel because as time goes on you will find ways to get yourself through this and to deal with these thoughts. Just try to remember you have more chance of a full recovery than not. Good luck with your journey.

  • Hi

    My diagniosis came straight out of the blue 'I had a feeling something wasn't right' turned out to be TNBC grade 3. Had surgery chemo and radiotherapy.  I'm now 6 years down the line and enjoying life with both hands.Time living in fear is not living and time wasted. the NHS will do its best for you and there will always be the Breast care team that will give you the support you need.

    I hope all goes well for you and its important to remain positive even at the darkest times, (my brother died during my chemo treatment). You will get through the treatment and be able to look back and amaze yourself at your strength................

  • Thank you pinky and perky. 

    Its great to hear good news stories like you. Thank you. This time last year I had my lumpectomy grade 3 TNC and was going into chemo next month. One  year later and I am going to Dubia next week to see my nephews.  What a difference a year makes. Live life. hopefully I’ll be able to post in 6 years time also. 

  • so glad to read this after  just being diagnosed  

  • Hi I have been diagnosed with stage 3 breast ductul  cancer triple negative  last week  I not sure what's going on I have had three biopsys  which show three further lumps   My surgery is in two weeks delayed due to Coronavirus not enough threathers for breast surgery 

    but since last night I have had pain in my arm pit and loses down in my breast and my breast seems  to have got larger and my veins are showing more on the effected breast 

  • Hi Minny,

    I'm so sorry, what a horrible situation you have found yourself in, you are probably all over the place at the moment. Hopefully, you will have been allocated a Macmillan nurse or breast care nurse. If so, I'd ring them and speak to them about your symptoms. No symptom or question is too minor or trivial for them to discuss with you, theyve seen and heard it all and fully understand how every new symptom or twinge will make you feel. They will either reassure you or arrange for you to be seen by you surgeon.

    If not, then try to get in touch with your oncologist, again, no question or symptom is too small or insignificant. Try to stay positive, I had TNBC diagnosed in November 2018, I had three tumours, one was several cm and another looked to be breaking out as I had ulcers on my nipple. I was given the all clear last December at my annual mammogram.

    Good luck with your journey, we are all rooting for you

Reply
  • Hi Minny,

    I'm so sorry, what a horrible situation you have found yourself in, you are probably all over the place at the moment. Hopefully, you will have been allocated a Macmillan nurse or breast care nurse. If so, I'd ring them and speak to them about your symptoms. No symptom or question is too minor or trivial for them to discuss with you, theyve seen and heard it all and fully understand how every new symptom or twinge will make you feel. They will either reassure you or arrange for you to be seen by you surgeon.

    If not, then try to get in touch with your oncologist, again, no question or symptom is too small or insignificant. Try to stay positive, I had TNBC diagnosed in November 2018, I had three tumours, one was several cm and another looked to be breaking out as I had ulcers on my nipple. I was given the all clear last December at my annual mammogram.

    Good luck with your journey, we are all rooting for you

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