Triple negative breast cancer grade 3

Hi everyone.

I have triple negative breast cancer grade 3 and start my chemo in 2 weeks. 3 sessions of FEC - T then 3 of docetaxel.  Have been looking at wigs but just doesn't feel right. I'm scared and don't wanna know to much about it if I honest just want to know that it's treatable and curable which docs have told me it is so that's good enough for me. Has anyway else had this diagnosis or treatment and what can i expect. The fear of infection while going thru treatment scares me also. How has everyone else been with that ?? 

Sending love n hugs to all fighting cancer 

Parents
  • Hi Dondon0808,

    I have empathy for you and all who are fighting cancer.  I understand your fear but recommend educating yourself as much as possible.  Knowledge on what you have, what it means and what your options are can be your sword during your fight. 

    I am proof that you can overcome this diagnosis.  In May of 2005, at age 39, I was diagnosed.  Scariest day of my life.  I had breast cancer -  triple negative, stage 3 grade 3 cancer...it was very aggressive.  The initial treatment plan was to do chemo and then a lumpectomy.  After an MRI revealed a second mass deeper in the breast, the treatment plan changed. I now had two differnt types of cancer growing in me and all I ould think of was "GET IT OUT NOW!!"  But I had to wait a bit.  On June 13, I had a modified full mastectomy (lymph nodes were clear!) with a natural reconstruction at the same time (8 hour surgery). I started chemo (8 rounds) one month later on July 13.  I had a small infection that postponed one chemo treatment but otherwise infections were not an issue. I did lose ALL my hair as the cold caps had not been invented in 2005. Me personally, I could not where a wig...not for lack of trying...I had 3 different ones.  But the chemo had also put me into a temporary menopause state so the hot flashed were unbearable with a wig on.  And it's not like you can just pull the hair off when it public...it freaks people out. Hahaha, I still remember this ladies face when I did that!.  Plus, when I would where the wig, I didn't feel like myself.  I felt like a different person and that did not work for me.  It felt like I was hiding. So I went with hats.  Wasn't a great look, but it was me.  I was open to the ridicule (and boy, people sure can be mean) if it meant people would stop calling it the "C" word!  I had CANCER and what good would it do to hide?  Anyway I finished chemo on October 26th and then had one last surgery in December to balance out the breasts (DD to a C).  I now call it a long journey on my life path and I joke about having a belly boob (reconstruction used tissue from my belly)!!  

    This journey changed me in many ways!  I now think that it was a way of preparring me for my next steps in life...showing me how strong I can be!  I truly would not want it to be any different.  The trials we go through, shape us into who we are supposed to be.  This might not be where you are now, at this stage in your treatment, but someday.

    So, 15 years, 5 months and 11 days after diagnosis, I am still here and healthier than before.  It took several years of figuring out the best ways to get the nutrients built back up in my body after chemo. But I have learned so much about holistic and natural ways to do this with supplements and diet. I AM healthy, I AM not taking any long-term medications or suplements and I AM so much more aware of my body, how it feels and how things affect it.  It brought me closer to spirit and showed me the link between mind, body, health and spirit.  I discovered that "dis-ease" of one's spirit causes "disease" in the body.  It showed me love and support like I had never known before.  Many, many good things came out of what I had thought was so very tragic at the time.  

    So, keep a positive attitude!!  This is key...do not let yourself become a "victim".  Watch as many funny movies as possible or what ever makes you laugh and your heart smile. 

    Peace and love to you!

  •  Dear Kem, no words, just thank you so much for your post. It has made my day .

    justaphase80

  • Justaphase80 

    You are welcome.  This is actually the first time I have shared my story in a public format so it makes me happy to know that it made your day.  Many blessings to you and hope the treatments are going well thus far.  If you ever need to talk about your journey, feel free to reach out.

    Best Regards, Kem

  • I have just been told on 2nd November that i have invasive ductal cancer grade 3 triple negative.  It has been a crazy 2 weeks with apointments doctors tests . I start my chemotherapy today at 11am i am so scared. I am going to try the cold cap and also been told that sucking ice cubes while have chemo help to stop getting sores in the mouth , so i will try it . Hope all of you going through this will be ok . Lots of love to you all xx

  • ZeldaC,

    My advice is do your best to push that fear out.  Fear is due to the unknown so by end of day today you will know what to expect.  Take the nausea meds on time and it should help.  Also if you are getting Adriomycin, take some hard candy to suck on...it will help with the metal taste.

    If you don't have a port, get one. It will be less stress on your veins.  You will get through this!!  Think of it a a long journey where you will be rewarded in the end with a cancer free body.  Stay strong and positive...watch funny movies and laugh as much as you can!  You got this!!!!

    Many blessings.

  • Thanks again Kem, 

    prayers for all. X

Reply Children
  • Hi I have been diagnosed with stage 3 breast ductul  cancer triple negative  last week  I not sure what's going on I have had three biopsys  which show three further lumps   My surgery is in two weeks delayed due to Coronavirus not enough threathers for breast surgery 

    but since last night I have had pain in my arm pit and loses down in my breast and my breast seems  to have got larger and my veins are showing more on the effected breast 

  • Hi Minny,

    I'm so sorry, what a horrible situation you have found yourself in, you are probably all over the place at the moment. Hopefully, you will have been allocated a Macmillan nurse or breast care nurse. If so, I'd ring them and speak to them about your symptoms. No symptom or question is too minor or trivial for them to discuss with you, theyve seen and heard it all and fully understand how every new symptom or twinge will make you feel. They will either reassure you or arrange for you to be seen by you surgeon.

    If not, then try to get in touch with your oncologist, again, no question or symptom is too small or insignificant. Try to stay positive, I had TNBC diagnosed in November 2018, I had three tumours, one was several cm and another looked to be breaking out as I had ulcers on my nipple. I was given the all clear last December at my annual mammogram.

    Good luck with your journey, we are all rooting for you

  • Thankyou I've left  a message with the cancer nurses I think there nobody there because of Friday holiday I'll try again good take 

  • It might be worth trying 111. Is your breast hot to touch?