Hi there and welcome to the forum - hopefully you will find plenty of support from the members who are going through the same sort of experience as you.

My hubby had tonsil cancer diagnosed in December 2015 and today is the 2 year anniversary of his neck dissection and us hearing the words ‘I have removed all of the tumour and you are now cancer free ! ‘ 

Prior to this he had had 6 weeks if chemoradiation- 5 cycles if Cistplatin chemo and 30 fractions of VMAT radiotherapy. To be honest we didnt know what to expect and the experience is different for everyone but I can say that from talking to others there are recurring themes that can be helpful to know. The treatment is difficult that cant be denied but there is definitely hope of remission and a light at the end of the tunnel.

I would be happy to give any tips and share our experience of coming out the other side if you would like. I often think to be ‘forewarned is to be for armed ‘ is appropriate.

Anyway best wishes as you start the next part of your journey

Emma 

Hi Legionaire

so welcome to club I had my mask made yesterday and today been for the marking of the mask readynfor radiotherapy on 16 July .alsomsamemday  I have first chemotherapy I know what you mean by scared ********. I am 61 female ni pain swallowing no weight loss just what Ithought was pulled neck muscle been in Spain cycling for 7 weeks done 1100 km quite proud if my self but then a lump appeared on neck we were due home so carried in for a few weeks as still felt well and un fact still do .Apart from a bit more tired .

long story but biopsy showed right cancer in tonsil plus 3 enlarged lymph nodes my treatment in Yorkshire led by consultant going for chemotherapy and radiation 7 weeks radiotherapy and 2/3 chemotherapy 

so looks like we will be journeying together .

i know what you mean by control I like to plan and be in control and have found that by owning up to the cancer personalised the lump and mask by giving them names and saying these ain’t going to beat me ,I have also delegated tasks to various pesky relatives , ie they can research sod high calorie food etc,

Have also bought a nutri bullet and pea protein powders getting ready for when the mouth and throat are sore trying to keep as much of the swallowing  action so spinach kale blueberries are my new best friend  Git confirmation yesterday that mine is HPV16positive I am determined that this cancer ain’t going to defineme .ps also has a meltdown in local garden centre on Sunday all about a stupidness plant inner demon saying don’t buy it unwont be here to see it flower  Sane part if mind told me to grow up this ******* ain’t going to win.

will send you a message so if u want we can exchange tips privately as well I see newlywed has replied she is very very helpful 

keep in winning

we can can do it.

RadioActuve Raz aka Hazel

Thanks for the reply.... I start my first chemo on the 24th July so between now and then i plan to shove as much food into me as poss as i know i will adventually be back on the nasal feeding tube. Was back in today for a biopsy on my thyroid sore as hell as the wound has not yet healed from the op a couple of weeks ago, there is a small tumor about 6mm but they said the chemo should blast that away. 

I think putting the wife (Annette) through all of this is very difficult for me as she dose not keep too well herself, she says she is fine but i know she has sleepless nights worrying....so i am looking forward to getting the six weeks over with and as soon as i am able a wee holiday shall be on the cards.

Hope all goes well for you, keep in touch

Mo

Thanks Emma...Just about to start this awfull journey 24th July first session) but i am thinking possitivly and am detirmined not to let this beat me.