Changed appearance because of treatment.

I have an incurable rare cancer for which I have been on medication for the last 6 years. Particularly over the last two years it has affected my hair - I have gone from thick long hair to very thin, brittle and short. My skin has aged a huge amount and my eyelashes and eyebrows have changed colour. So many people no longer recognise me and I have to tell them who I am or when they hear my voice they catch on eventually. Initially I understood the situation but my tolerance has run out and I find it very upsetting now and quite depressing.  My close relatives tell me that I look the same as ever and don’t acknowledge that it’s an issue. 

Has anyone else experienced this or am I the only person? I attend a hospice day group and nobody there has experienced this. I’m beginning to feel like a young(ish) person trapped in an old lady’s body. 

Joy1234

  • Hi Joy ....

    I think cancer changes us all in one way or another ... I look down at my missing boob and say if that's the price to pay for still being here , I can live with that ... I also have scars for cyserian and hysterectomy.. bit like a patchwork quilt ... 

    You sound like a lovely lady with a big heart ... I have always looked beond looks ... Some of the prettiest people I've met are not nice underneath ... And when I worked with children with disability's, they are beautiful inside where it counts ... And I will remember them far longer then the "pretty" ones ..

    Any one who makes you feel low is not worth the effort .. those that love you, see the you they always saw ... Life throws us many curve balls ... I remember saying to my 6 year old granddaughter, how many rinkles are in my arm when I let it hang ... She said well nanny just don't do it then ... And yes it's hard when our body changes... But we're so much more then that .... 

    Sending you a big hug ... Chrissie x

  • Ask your dr to check your selinum levels ime not a dr or anything but my partner used it but you must ask your dr dont self medicate