New to the Forum

Hi, I popped in last night just to ask anyone who’s Husband or yourself have been through Tonsil Cancer plus in the Lymph Nodes, My husband has had a course of radiation, then obviously had to wait for scans etc, the Consultant told us that the tumour had shrunk by half but was still active, also the Lymph Nodes still had cancer there, he’s due to start chemo this week, obviously I’m so worried think it’s the not knowing etc, thanks..

  • Hi there and welcome ... you've come to the right place, for we all know what the waiting and worry is all about ...  it's the hardest part for me was those early days where the brain was throwing all sorts of sinarios around ... and sadly theres no way around the waiting ...so your not alone ... Chrissie x

  • Thanks Chrissie, appreciate you replying, very kind of you x
  • There’s a guy called [@Vatch]‍ who’s been through this. He’s still active on here helping others to deal with this kind of cancer. 

  • Hi cas

    sorry to hear about your husband but welcome to the forum

    i myself went through 6 weeks of Tomotherapy and during that time had a once a week 8 hour chemo session.

    its a difficult process to go through, we each go through it differently, but it’s really had as a patient and just as hard as a partner watching a loved one going through it.

    Although your husbands treatment process appears to be different to mine, there will be similarities of treatment and it’s impact.

    im not sure how many session of radio therapy you husband has gone through, but is the radiation that caused most of the impact, lack of saliva, inability to swallow, talk and eat and this lasts for months not during treatment.

    as for chemo .... I looked forward to it as I got pumped full of steroids on a Friday which made for a good weekend. if you stick to the numerous and constant drug routine after chemo, you should be ok......then came the downer from Tuesday to Thursday ....then up again on Friday.

    i have sent you a link to my blog, to which hopefully you might get an insight into treatment and recovery.

    gammaraygary.wordpress.com/.../

    ask whatever you want, when you want, we are hear to help you and yourself through this process

    vatch

     

  • Thank you vatch for your reply, I’m actually sat with my husband now having his first chemo, I will take a look at the link you gave me . Mick had 5 weeks of radio therapy, thanks again cas .
  • Hi cas

    how long are the chemo sessions

    mine used to be 8 hour sessions and I got fed up of sitting in those OAP size chairs so used to make sure I always sweet talked the head nurse there.... even though I couldn’t talk at the end .... to get a bed

    It might help is you hubby is in for a long session and feeling it a bit

    lut us know how you both get on

    vatch

  • Hi vatch,  my Hubby’s session was for half an hour, flushing etc made it about an hour altogether, he goes again in four weeks time, I was surprised when the nurse said it was going to be half an hour for the Chemo,           Take care ....

  • Hi vatch, you said to let you know how my hubby got on with Chemo etc, as I mentioned he had his first session on Monday, he’s been ok but through the night last nigh,he was in some pain at the side of his face & it’s swollen, it’s been swollen before but it seems to be more this time, & it looks like he may have ulcers in his mouth at the side of his mouth area & at the side of his tounge again, same as before when he had his RT, could this be a reaction from the chemo etc,    Thank you for taking time to read & advice, Carol  (cas27)

  • Cas

    after what your husband has been through ulcers are really not much fun at all

    if I’m honest there is not much out there that will help .... time is the biggest healer for that one, but oral hygiene goes to the top of the list, otherwise those ulcers will keep coming back

    i have enclosed my blog page on ulcer remedies I hope it helps

    gammaraygary.wordpress.com/.../

    If you are worried about something, reaction to the medicine, swellings etc, always bring theses these to the attention of the medical team ... it might help

    fingers crossed that all goes well this week

    vatch