Hello there kmullinsCCS.  Welcome to the forum.  I have no experience of CCS but I thought that while awaiting a response, you might wish to look at previous posts on the subject.  If you click on Search Forum on the blue banner above your post then enter Clear Cell Sarcoma in the box that appears you will find a list of posts that mention Clear Cell Sarcoma.  You can also contact the posters of any which interest you.  Best wishes.  Annie

Hi KmullinsCCS and welcome to the forum although I'm sorry for the reason you are posting.

I've had a quick look around the forum and sadly couldn't find any other members that have been discussing this type of cancer on the forum lately so I just wanted to share a link with you to the sarcoma uk website as it may be easier to connect with others there who also have this diagnosis. They have a support line you can contact and can help put you in touch with local sarcoma support groups or online support groups so do give them a call when their lines re-open next week as I think this will really help you at this time.

I hope this helps and that you feel less alone soon.

Kind regards, 

Steph, Cancer Chat Moderator

Thank you so much! That’s really helped ️

Thanks for your help, I’ve been on their website but they don’t have very much on clear cell sarcoma itself, I emailed them and they have given me some more websites to look at which is great though. 

Thank you again ️