I’m 27 years old, I was diagnosed with clear cell sarcoma in December 2017 after initially having surgery to remove a 4.7cm lump from my left foot (thought to have seen something I had stood on years past and tissue had formed around) which was then tested and revealed to be cancer.
Due to the misdiagnosis we needed a second op to get clear margins, so a wide excision was performed (which only gave us 0.7ml of a clear margin) along with a sentinel lymph node biopsy from my groin and behind my left knee (lump was in left foot). Thankfully the lymph nodes came back clear.
A lump found from a hop spot from a pet ct scan was removed and after initially being told this was a spread from the primary cancer in the foot secondary testing from a different hospital revealed this was not that’s case, it was another rare and unusual rumour but thankfully benign this time.
I am about to finish my 30 sessions (6 weeks) of radiotherapy at UCLH and have another pet ct scan due in July.
