so good to hear from you and the wonderful news of the forthcoming wedding. You do seem to have had a rough time and I can’t believe no mention of the water drinking prior to treatment. It was something I just assumed we all had to endure. There was a girl having treatment with me who just couldn’t manage the amount we were told to drink.. 4 1/2 cups Within the half hour prior to treatment..so your bladder was full and she struggled to hold it in. It also made weeing afterwards so painful because of the raw area......I’d never drank so much water in a short space of time in my life! You have managed to increase your weight which is good...not too much suddenly may have a chance to stay on...I always feel small meals and very regular help to keep weight on... Plenty of creamy pasta, roasted potatoes and puddings with every meal! Easy to say if you have a great appetite... I’m still in touch with one girl who started her treatment and finished prior to be starting mine and we met up in the summer which was really lovely. It would be good to meet you all some day....thank you for staying in touch. Love you all my dear friends. Mandy x
Lovely to hear from you, I'm glad your getting on ok still, you sound in about the same place as me , I do still get quite tired easily, and I do have to watch how much fibre I eat, but after what we've been through I'm amazed how much better I feel, I do still fart a lot too!!
I'm back at work full time, and not had any more days of sick since! I think my worst complaint is how much back pain I sometimes get but I know what painkillers to take now to get that under control, and I don't need them all the time.
I've just told Sheri I've not long come back from holiday to South Africa for 3 weeks, it was a fantastic holiday and I thoroughly enjoyed the experience, I did wonder at one time if I'd ever be able to do long haul again but I was fine.
forgot to mention the farting. Yes like you it’s quite something. My family will vouch for me in saying I never did it before but I just don’t seem to be in control now. It has got better so hopefully I won’t be an embarrassment to them for much longer. The holiday sounds great. I’ve not be outside the Uk yet, for no other reason than work and other commitments.. I’ve kept myself busy which I found to be my saviour. I only had 4 days off after treatment which was straight after the Easter break and took a few shorter days I.e. finished work at 4 instead of 5.30... I found this helped as it kept my mind free from nasty thoughts and constant googling..which I am sure we are all guilty of. I do feel less tolerant in conversations and easily loose concentration..unless it’s just age that’s causing this ..do keep in touch and wishing all you girlies well. Mandy x
If anyone is on Facebook I would love to keep,in touch..I don’t post regular I.e. what I have just eaten or where I have just been...but it keeps you in touch with friends easier...up to anyone but happy to. X
What a lovely idea that you are connecting with other members on this thread, forming great friendships and exchanging Facebook details. It's nice to see you are all getting on so well.
However, please do not exchange details of your Facebook profiles on this thread as by posting publically you would be sharing this information with anyone who sees the thread which is against our terms and conditions.
You can however safely exchange this information via private messaging ;)
Thanks a lot for your understanding and best wishes,
Yes, it's very frustrating to me that the radiology oncologist did not know this or maybe he expected his nurses to tell me. I actually started feeling better last December but still have a long way to go. If I could get my weight back on I could eat different foods that would be more gentle on the digestive tract.
South Africa sounds wonderful! I'm so glad it went well and your are back to your old self before treatment.
im currently in Cuba this was the holiday we had to cancel when got diagnosed so it’s a major milestone to be here. All is good with me although yep Mandy the farting can be a bit embarrassing lol and sometimes when I need to go I need to go! But on the whole physically not too bad I do seem to get tired a lot quicker and the concentration isn’t what it used to be but maybe that is just age!
i did struggle a bit mentally at the end of last year thinking everything just caught up with me and the reality of what I’d ben through hit me. I’ve got great support at the Maggies centre and made friends with a few lovely ladies - it’s just taking it a day at a time.
Ne g check up 23rd March so fingers crossed. Sorry you’re still having such a rough time Sheri hopefully in time things will improve
Lovely to hear you are good and enjoying some time away....say hello to Cuba for me!
I know what you mean, everything catching up with you....I get that feeling every now and then but having suport from friends and family have pulled me through it those low moments... Its good to hear from you and wishing you good health, happiness and lots of love inthe future. Do keep in touch every now and then.....Mandy x
Lovely to hear from you, I'm so glad so far we have all survived , we all seem to be experiencing the same after effects, I can't believe what we've been thru and managed to come out the other side more or less ok.
Hope your having a lovely time in Cuba, I came back from South Africa 3 weeks ago, that was a fantastic holiday which I thoroughly enjoyed with my sister-in-law.
My next check up is in April, hopefully it will move to every 6 months after that, ( I still struggle with those dreaded appointments)
I too keep in touch with a lady who I met at the hospital with the same cancer as us, she lives locally to me too, and she is doing ok as well.
