Anal squamous cell cancer

Is there anyone on here who has had anal squamous cell cancer x

  • Hi Sue, Don’t let it worry you too much about it getting worse before it gets better, it really all depends on how your skin is now. My Radiographers told me that they tell people this as standard as if their skin hasn’t broken meaning it can get worse when it does. Mine however had already broken so never really noticed it getting worse after it finishes but what I will tell you is that when you hit that special day and turn the corner your skin heals up really quickly. It’s amazing how quickly it regenerates but what I wasn’t prepared for is how tight the new skin felt as keep applying tons of cream as soon as you can! I am just over a month post treatment and have been managed to do a bit of weeding in the garden today so things do get better!!! My thoughts are with you all Best wishes
  • Hi lynne

    great to meet you the other day I m not on here much at the moment but have been thinking of you , what time are you having your pic line in on Monday? I ve been up there every day visiting text me if you want to meet up for coffee in Macmillan love Gilliebean x

  • Hi everyone 

    have been thinking about you all and hope that you are all coping in your various stages ,I m getting stronger everyday but it does take it's toll! If anyone gets the acid reflux ,I have found purely by accident really that a protein shake works ,I take lansoprazole when I wake up and wait at least half hour ,then have a Cambridge shake ,chocolate works for me but not with laxative as they do several !  I add twice the ammount of water and blend it then sit and drink it slowly I wait at least half an hour before I have a cup of tea and then just be sensible with the eating tomatoes seemed to be setting it off so I m leaving them our for now ,I don't eat meat and I would advise not to have cheese as it's a strong flavour . I seem to be good for the rest of the day and take Gaviscon before bed. One day I did a test and didn't have the shake and it came back!  Obviously the shake is not for dieting I had them in the cupboard as I use them when I am away so that I know I m getting all the necessary vitamins. I swear there is something in them that settles or lines the stomach ,I was suffering so much and tried one to see if I could keep it down as I was bringing every thing up and couldn't believe it when it worked!  Maybe if you don't try that one you could try another make it has to be worth a go!  Hope it works for someone else! Anyway I have some family issues just now with a sick relative so that's why I ve been quiiet unfortunately it's the dreaded cancer again! So am up the hospital most days .love to you all and best of luck to you Lynne for Tuesday call me if you need me!  Love Gilliebean x

  • Hi gilliebean, good to hear from you....sorry to hear you had been having problems with acid reflux and have a poorly family member. I wish them well. Hopefully you reflux will sort itself out soon. I haven’t had this problem at all. I seem to have got away with side effects...my skin broke down badly by week 5 but this thankfully has all healed. I am getting stronger each day and not feeling so tired ....even did some gardening yesterday. I hope everyone is managing well with their treatments and side effects they may be encountering. I think of you all lots...it’s been such a wonderful little group to keep in touch with. Although I don’t post that much I read messages as they come in and it’s comforting to know your not alone. Lots of love Mandy. xxx
  • Hiya, It's Sunday morning, tomorrow is the start of week 5, I'm in a bit of pain this morning with a sore bottom, so slapping on the morphine gell. See how it goes as the day goes on. Sue x
  • Hi Sue,

    Just saw your last post, I hope the morphine gel helped. I’ve been thinking of you this morning and wishing you well for this week. Take care, lots of love Lisa xx

  • Hi Lynne,

    Just a quick message to say good luck, been thinking about you today. Today is the first step to recovery and beating this thing. We’re here for you! Keep us posted.

    Sounds like you had a lovely last day of work and had some very thoughtful gifts. You’re obviously highly thought of. 

    Lots of love 

    Lisa xx

  • Hi Lisa

    thank you have butterflies the size of elephants! Just getting ready now.  Will let you know how my first week goes,already have slapped on the calendula cream I was given.

    well here goes....eeek!

    Lynne xx

  • Hi Lisa,

    Thinking of you.  Hoping it's smooth sailing this week.

    Big Hug,  Sheri XX

  • Wishing you all the best Lynne - sooner you’re started sooner your finished - take care xx