Anal squamous cell cancer

Is there anyone on here who has had anal squamous cell cancer x

  • Hiya Lisa, it takes us about 45 minutes each way (depending on traffic), it's straight down the A55 so it's not a bad run really. They didn't ask me what times I prefer so they are all over the place., and if I have other appointments as well it can sometimes be a long day. Well I'm off now to meet my friend for afternoon tea! Sounds posh doesn't it?....it ain't lol it's at the garden centre!!! Sue xx
  • Thanks L27,

    I bet ringing that bell was incredible! The day I was at my planning apppintment, I heard a bell ring in the distance and I filled up, was so emotional! 

    Its good to hear from people have got through it, I think it is a very tough, intense treatment and odd in that I felt really well with cancer. You’ve had an extra tough time but how lovely to meet someone going through the same as you, yes that experience will certainly give you a friend for life! 

    Question for you, how was your first week of chemo? Where you really unwell then too? Or was it just the second cycle that your body reacted to?

    take care, 

    Lisa xx

  • Hi Lynne,

    A bidet is a must, get one in preparation, I began using mine yesterday and it was very soothing.... 

    How are you doing? 

    Lisa xxx

  • Hi Lisa, I also had treatment at Clatterbridge. I would have been there at the same time as you on Thursday just gone. I was still staying in hospital and I came down to congratulate a friend I met during this journey have her last session and to be there to ring the bell!!! I was at Laurel at the time you would have been there- small world!! Best wishes xxxx
  • Oh wow, that’s amazing, yes a very small world! 

    The staff there are fab, mind you I’ve found everyone there to be brilliant. 

    Best wishes xxxx

  • Hi Lisa 

    The first round of chemo made me sick physically on the Wednesday night but went into triage Thursday morning and had an injection in the tummy and got stronger anti sickness tablets and off I went, I was ok then and had no more problems....however week 5 I was sick from the Monday evening. I think it may have been that I wasn’t given 4 steroid tablets when bottle was attached like I did on week one. Had same injection etc and other things but sickness didn’t stop, so much that I was actually sick numerous times after drinking my water before treatment. The poor student always ended up dealing with me and my little sick bowls. I guess my body was just stronger during cycle one than week 5. 

    Wishing you all the best xxx

  • Hi Lisa, 

    Have you been over to Maggie’s, they are amazing over there also. Do you recall us being there on Thursday? 

  • Hi Lisa

    im ok just getting every ready for when treatment starts, I’ve really benefitted from being in this group as I have managed to pick up lots of hints and tips for the others who have or are going through treatment. I’ve only a week to go. Although apprenhensive I just want to get started.

    Hope you are feeling a bit better.

    take care Lynne.xx

  • Oh that sounds rotten! Poor you! Hmm I wonder why you didn’t get the 4 steroids as before? I did feel very poorly but was not physically sick. 

    I can’t think if I’d of seen you or not, I didn't hear the bell! 

    I was at Laurel from 5.30 that day, was a bit late for my 5.45 time slot. Left about 6.30.

    Not been into Maggies at all, keep planning to but as my appointments are later, we get there half an hour before and just head straight home. Luckily not had gaps between appointments, may go this Friday as I have my picc line flush and redress but then have a bit of a wait before my radio. 

    Lisa xxxx