Hello girlies,  How we all doing?  I've not been on here lately as dealing with a poorly Mother.  My treatment is finished and I have had CT and MRI scans and so far all is well.  I have been discharged from Northampton Hospital and referred back to Leicester for consultaion and examination under anathestic.  (Oh the joys). I asked if I was cancer free but was told that you have to be clear for five years before they tell you that.  Love to all you bottom warriors and keep your spirits up. Jane xx

Hi Lindylou

i also like you had thyroid lump found from pet scan , had the needle in the  neck to take the cells and then they had me in within 2 weeks and took half the thyroid totally unrelated to the other cancer, strange you have the same! I have finished treatment but still go back every week for picc flush as I still have mine in. Good luck for your treatment I live near you if you want to meet up have pm you love Gilliebean x

Hi Gilliebean

where about are you?

yes that is strange about thr thyroid. I was told that if it is cancer they would wait for my bum to be treated first before they did anything, they said they are slow growers.

Lynne xx

Thank you, Mandy for the encouragin words.

Lyndy, I would send you this squatty potty but it would probably cost as much as the potty cost to mail it to you  It's sitting in my closet waiting for me to find someone that could use it.   I'll try to check with the Post Office on Monday.  You live in Wales, correct?

Hi ladies, I haven’t posted for a few weeks as I ended up being admitted to hospital. Unfortunately week 5 chemo really didn’t agree with me and my sickness/ vomiting became hard to control. As I couldn’t hold down any medication at all I had to have them administered by iv drips and drivers. The other issue was I couldn’t keep the glasses of water down before radiotherapy sessions so I needed help as otherwise I would have missed sessions and would have them tagged into the end and I certainly didn’t want that as I had my end date engraved in my mind. I am now 2 weeks post treatment and came home today. Although things got really tough at times and there were many tears I want to tell you all it is possible to do this. The area of burns surprised me as my “front bits” were affected far more than I could ever have imagined. When my skin was so sore I felt like there was no end in sight but as we are all told around 10/14 days after treatment finishes the skin begins to heal and boy it does it quickly!! There is now no more pain having a wee!!! My BM aren’t painful as such but I have a horrible “need to go” sensation all the time. One thing I wasn’t prepared for was another batch of piles, that’s what started this journey off in the first place with a pile removal. I was on plenty of pain killers to make things manageable, it’s important that you ask if you need something else, don’t suffer. I also had a portable bidet - well two actually and as I have said before they were the greatest purchase to allow me some relief. So much so, I even refused to be admitted unless my bidets could come!!!!

Another thing that I wasn’t prepared for was being given a pack of dilators, these must be used 3 times a week for 3 years to try to stop my lady bits from closing up or shrinking to the degree that it would be “out of action”. I got upset when I was given these as I just thought this journey would be ongoing more than I thought. 

Glad to be able to read you are all getting on ok Best wishes

Hi ladies,

Wow what an amazing group of strong, supportive and  brave women. I am so glad I found this forum.

I had my 9th radio yesterday, so far I am just worn out, my bloods were low before I started any treatment, so with chemo, radio, typical ‘bum’ blood loss and then a heavy period on top, I wonder if I’m more tired than I should be? I sit waiting for radio and see people coming for their appts in work attire, or just looking good, hair done make up on and I’m sat there feeling and looking like crap wondering how they’re doing it? Hahaha

I had a bad morning on Wednesday, sat eating my breakfast, suddenly thought, oh, I need the loo.... did not make it, (sorry if too graphic) sudden diarrhoea, ended up standing in the shower and stripping off, was gross and the panic then that this could happen if I was out! (Horror!)

I told my consultant and he’s given me meds, but was concerned that he didn’t want me to go the opposite and get constipated as that would be worse, he said keep to a bland diet, so far since that Wed morn, although I’m loose, I’ve had no accidents! Phew

The extra toileting over the last few days has given me a sore bottom, amazing how even the softest toilet roll is like sandpaper when you’re a bit tender! Already got my bidet, so may start to use that. And keeping slathering the cream on. 

So glad of 2 days off from the hospital. My consultant said that week 3 is the easiest week... anyone agree/disagree?  He said, chemo is out of your system and radio is not bad that week. We’ll see.

L27, you sound like you’ve really had a tough time, glad you’re home and doing well, congratulations for getting through.

Everyone else on here, have a lovely weekend, whatever you are doing.

lots of love to all

Lisa xxxx

Hi Sheri

fhank you for the offer but I think it will be too expensive to send. Also I going to buy a portable bidet at the same time so don’t worry, but thanks anyway.

Lynne xx

hi L27

Oh my poor you sounds like a really rough time, hopefully you have now turned a corner!

i have heard of the vaginal dilators, they were mentioned in my info pack the hospital  gave me. Sound awful but I guess another thing that has to done. Not been offered  them yet but I m stil, pre-treatment a the moment.

take care

Lynne xx

Hi Janelucia

great to hear from you and that’s good news. Sorry your mum is poorly hope she’s in the mend soon and hopefully ou can concentrate on getting your life back to “normal”

take care Sandra x