Welcome to this little group, I only joined a couple of weeks ago and have found it invaluable. The girls on here have really helped me. Also it helps knowing that you are not alone.
I have yet to start treatment, I start on 17 April. Hope yours is going well and not being too unkind.
Sandra, Mandy and Gilliebean, phew! Treatment now over must be relieved. I think I would like to do what Sandra did and go away, hope you had a great time.
Sheri, so sorry that you are still having problems and I hope they can sort your tummy problems out soon.
Sue loose clothes and big knickers already bought, what cream are you using?
Morphine is much better that tramadol so have been feeling better in that respect. I have an ultrasound to do this week to look at my thyroid, but apart from that I have a hospital free week from the cancer. Due back at work today but need to clear a few things before I go off again when treatment starts. I find going to work and interacting with my work mates keeps me sane as cancer can be all consuming can’t it?
take care everyone and let us know how you are doing, by the way I call you my botty girls!
Had a really lovely time in Portugal can’t actually believe that’s us back and if you’d told me few months ago I’d have been away wouldn’t have believed you!
big knickers are a must and my specialist nurse recommended creams for me and also had morphine gel which was good - I was ok for the first few weeks so hopefully you’ll be the same.
I don’t know where you live I’m just outside Glasgow all the other girls seem to be doon South - my treatment seems to have been wee bit different as I only had one intravenous chemo then it was tablets daily in conjunction with my radiotherapy.
Im not sure if I’ve put in previous posts but we have a Maggies Centre at the Beatson hospital which has been just wonderful for me - lots of support and just a safe space with other people who know exactly what you’re going through.
Best advice I got be kind to yourself, don’t put up with pain and sleep whenever you need to.
Welcome to our little group, we all have the cancer on here, I've found the girls on here a great help. I' just into my 3rd week of radiotherapy, I too had chemo on the first week via a picc line. I found that week I was super tired but that' gone now. And I had a really sore mouth but that' ok now too. I' just beginning to feel the effects of the radiotherapy on my bum, it' not been too bad so far, although I have bouts of being super itchy! The only cream I'm using at the moment is Diprobase, but I'm due to see the Dr. on Thursday.
What can they do about the lessions they found in your liver? Hope you get on ok, any questions please do not hesitate to ask.
Hi ladies and thank you for your kind welcome. It is so nice to hear others in the same boat.
My mouth is sore with thrush, hospital were great and gave me anti-fungal tablets and a mouthwash so hope that it starts to feel better soon.
Day 6 of radio today, all fine with that.
With regards to the liver lesion, my oncologist said that I need to remain focussed on my current treatment, (chemo should help the secondary) then 6 weeks after I finish they’ll rescan me and decide on the plan of action then.
He said that there are a few possible treatments including liver resection(which I think I’d prefer... cut it all away my liver will grow back!) so a waiting game really.
Anyway you all seem very upbeat on here so that’s fab! I intend to try to be positive too.
By the way, I live in North Wales and attend Clatterbridge Cancer Centre, where is everyone else?
Hi Sheri, Reading your message seems that your cancer is similar to fine. Although I wasn’t poorly prior to treatment my tumour was large and very low down...showing from bottom. Like you I still have blocking from the exit which I what is causing me the biggest problem because it causes pain when pooing! In fact I dread this and feel the day revolves around this procedure.... to all girlies on here..or my bum buddies....try anything to ease the pain...we can get through this.....together! I have found several things ease the pain but You’ll try anything to help so all the advise helps.
Sheri your daughters wedding will give you something to aim towards...you’ll gain the weight you need to and look a wonderful mother of the bride I’m sure!
I feel having something to look forward to helps. It doesn’t have to be anything big...just some warmer weather will help.
I’m still feeling tired. How long does this last? I don’t feel like dropping off every few minutes...it’s just everything feels a bit of an effort. I do something and after 10 minutes I have to sit down for a while.
Keep your spirits up..there will be light at the end of the tunnel. My next visit to Dr is early May....I’m hoping I won’t be sore sore then....
Thinking of you lots..Mandy Xxx
hope you had a good Easter. Pleased your planning has beeen organised. It won’t be long and you’ll be starting and it then feels such a relief. My treatment is over now. The next stage is waiting again to see the Dr before the scans which I am told is around 3 months after treatment, then again 6 months after. I feel tired but it’s manageable... the pain in my bottom is probably the worse which happens towards the end of treatment, together with being sore when you wee. My best advise is organise a small bucket or trug to sit in to ease the pooing if you find it sore in this area...some warm water to poo in and pour down the toilet afterwards, although sounds undignified is wonderful for easing the pain plus a jug to pour water towards the front end when you wee as it can sting towards the end of treatment when weeing....,,it’s still like it now so I’m hoping this will ease in a week or so..fingers crossed.
i will be thinking of you and wishing the best during your treatment. Take easy, rest when you can and be kind to yourself. Mandy xxxx
Hiya Mandy, I'm a firm believer in having something nice to look forward to. I'e always said this to my kids. The kids bought me a helicopter ride over Snowdonia for Christmas, I'm hanging on to that until my treatment finishes and I feel better. Soooooo looking forward to that.
We we are all in this together! Everyone is on the same journey although we are at different parts of treatment. It’s been such a good group to keep in touch with. Any concerns ask, there will always be someone who has had something similar so they can give advise...first hand.
My treatment I.e chemo and radiotherapy has finished. It’s early days, no follow ups yet. I have dr appointment early May and 3 months after treatment I have MRI.
you sound like you have a good plan in motion. The liver grows back so cutting a piece off and it growing back sounds good. Staying positive, laughing a lot and keeping busy helps.
keep in touch and I’ll be thinking of you....Mandy xxx
you sound my kinda gal! Never a truer word spoken. Laugh lots, stay positive and keep busy.....looking forward to the better weather when it arrives! This will uplift spirits...thinking of you bum buddies always..Mandy xxx
