Janelucia, if you have privacy it helps the skin to heal if you don't cover it. Maybe leave off underwear and wear a skirt or sleep in a gown and maybe only use the bed covers on one side. I was able to do that while in the hospital, but it became difficult once I got home due to my teenage grandson in the house.
It takes a while, but I hope you feel better real soon.
how are you doing. I started my chemo and radiation today .i hope that you are not suffering to much since finishing your treatment however even the nurses have told me that a few weeks after is the worst! You ll soon be on the up I m sure. Sending best wishes to you for a speedy recovery and relief from the burns love Gilliebean x
I'm curious to know if anyone else experienced hair loss? My chemo oncologist said that most people do not loose their hair with this treatment, but his PA said that I would. ??? I lost most of mine, but it did not come out in plugs like other cancer patients. Thankfully I had enough hair for two people so it's just super thin now. I'm not confident enough to shave it unless it falls out more although I see many women that have and they look great. The chemo nurse said my hair loss was related to my nutrition. I got off to a rough start and lost 20 lbs that I didn't have to loose. It seems to have leveled off now at 17 weeks post treatment.
Thank you for your reply. I am in touch with Janelucia and she has been a rock with all her experiences but its also nice to hear from others going through similar. I feel that my tumor was simlar to yours in size, spread etc so guessing that the experience of the treatment may be similar. I however, have felt fine except for a sore bum! I hope you are feeling better and and wish you well at your next followup. I see you mention hair loss in another post... I was told its unlikely I will lose hair but again everyone is different so I am anticipating its possible.You seem to have had a rough time with weight lose but hopefully you have a better appetite now? xx
Thank you, Mandydk. I felt fine with just a sore bum until about a week before I got in to see the doctor for a third opinion. I waited too long to try to get a third opinion and it was a 6 week wait to get in. I kept thinking I would get better, but that didn't happen. I got off to a rough start. Spent lots of time in and out of the hospital. I've always had an appetite but there were many days that I had to stop eating to get my tummy under control. I'm getting better each week.
Did you start your treatment or do you have another week to go?
Im just to start the treatment and meeting the Dr on Tuesday. I am having mixture of chemo and radiotherapy and chemo tablets. I will be going every day for 5 1/2 weeks. I think most on this site are the same. All I know is that my tumour is large - or as they say advanced. Its not spread elsewhere so localised. The thing with me is I had no symptons. No pain, blood etc. im sorry to hear you had a rough start but hopefully you are on thte road to recovery ....getting your appetite back will definately help - its good to hear you are getting better each week - this is good news! xx
Hello everyone, I have been reading your posts about anal squamous cell. I was diagnosed early December, after going to my gp with what I thought was a prolapsed hemorrhoid. They didn't realise it was cancer until it was removed, my consultant is sure he got it all but as it was an aggressive one I'm waiting now to see the radiotherapy oncologist, which I hope will be next week, prior to my p!anning appointment for radiotherapy, I'm told I will have chemo too in tablet form. All this waiting is terrible!
