Is there anyone on here who has had anal squamous cell cancer x
Is there anyone on here who has had anal squamous cell cancer x
Hey thinking of you hope your sickness wasn't as bad this time and that you have managed to get through the week I bet it's been tough and have been thinking of you and hoping that you are as alright as it's possible to be! You re nearly there! Sending hugs your way .
Gillie x
Hi Gillie,
That sounds like a nightmare. I'm so sorry you have to wait to start treatment. I was scared of the treatment, but I was also scared it was spreading during the wait. Apparently that is an unfounded worry.
We had similar experiences except the docs wanted me to have chemo/radiation first and are hoping that surgery will not be required. No promises since it was quite large and in the wall. I still have an ulcerated area so I'm constantly worried about surgery. I will probably be bombarding you with more questions if that happens.
Keeping you in my thoughts and sending warm wishes your way.
Hi Janelucia hope you are ok been thinking about you and wondering if you ve finished your treatment ,haven't heard anything since you were going to have your last lot of chemo do hope you re ok any way just to say you re in my thoughts ,Gillie x
Hi Gillie, thanks for the message. I'm finding the radiotherapy burns painful. I hope your well x
Hello JaneLucia
Sorry to year you are having a hard time- have they prescribed oral morphine and the gel for you I found they helped also they gave me polymed pads which I found helped.
I think you’ll have finished your treatment now - I found the two weeks following that the hardest but then seemed to turn a corner,
Im sending you warmest wishes and if you can persevere for the next couple of weeks I’m sure you’ll start to feel better.
take care Sandra x
Hi Janelucia , have been worried about you and so sorry to hear that you are suffering pain from the radiotherapy just wanted you to know that both me and sands have been thinking of you and wishing you well. As sands says the 2 weeks after treatment were grim but then hopefully you too will turn that corner as she did. Wishing you a good recovery and hope that your pain eases soon . Love and best wishes Gilliebean x
Hi Jane
This is really weird that I have just found you. Its Mandy. Like you I have just received my diagnoses. I have also been diagnosed with anal cancer and will be starting treatment within the next 2-3 weeks. Its all very scarey but just found this site and it helps to read all the positive responses and people going through similar experiences. Do get in touch if you wish I would like to see how the treatment goes and I wish you well. I believe positive thoughts are a must. xx p.s. I do like to message friends so if you want to get in touch I would be happy to give you support from an old friend! x
Hello, radiotherapy finished last Thursday but was not prepared for the radiotherapy burns that continue after treatment. Have we chatted on another site or do I know you from somewhere you seem familiar. Picc line is due to come out Monday as long as all goes well x
Hi Jane
Glad to hear your side effects have settled down now and your treatment has finished. Like you I have been diagnosed with anal cancer. My treatment starts in 2-3 weeks so its early stages for me. I have been on the site for the first time today to try and get some feedback of what to expect. Its all very daunting. Like you I have a good family helping me along this road. It would be nice to keep in touch and give each other some encouragement. This site is wonderful and gives information that you otherwise wouldnt have. Wishing to all the best for the future. x
Hi JaneLucia
Sirry to hear you are having a tough time - the two weeks after my radiotherapy finished were pretty rough - I felt worse than when going through treatment - pain and emotionally struggled also felt very “abandoned” had been in a routine for six weeks then it was a bit like right that’s you finished off you go!
I was lucky had an amazing colorectal nurse who I talked to and r abused this was quite “normal”
i hope you’re getting good pain medication and after about two weeks I did turn a corner and started to feel a bit more normal.
i hope you begin to feel better soon / thinking about you
Sands x