The good and the bad

Hi peeps

I have recently been diagnosed with breast cancer. Taking the excellent advice on this website I pretty much started by taking it one day at a time. This does indeed help. 

I thought to share the good and the bad and would love to hear anyone else's should they wish to share.

Today I had both a good and a bad moment. I received 2 letters in the post.

The first was from the hosp confirming my op date (my bad moment) cos my stomach dropped and I had that now familiar feeling of anxiousness take hold for a moment but shook it off cos I know it is needed. 

The good - my 2nd letter - as if... a tax rebate - boom  . Not half put a much needed smile on my face . Reckon a my treat family meal is in order.

Eeee it's the little things ain't it. 

Take care peeps 

Sandra x ️X

 

  • Hey Chrissie...i love your new focus.

    Some info for you....everyone lwho provides any informal support to another person is entitled to a carers assessment to determine the impact on them of theilr caring responsibilities. This should be requested through the local authorities adult social services department. They can also request a care needs assessment of the person they care for.  Once eligible needs that are having a significant impact are identified, the local authority has a duty to arrange support. This doesn't necessarily mean that the local authority provide the Care but it does mean that they should look at both formal and informal support networks and services to meet these needs. I hope this helps in the situation. If you need any advice private message me x

  • Hi Sandra , I wish you good luck On your mammogram, I know everything will be all right. That’s a dreaded moment for all of us  that have gone through breast cancer . :) 

     

    hugs

  • Thanks cournish ..

    Been on Marie Currie today .. I thought they only did night respite .. but they do loads more .. but for terminal diagnosis .. which is where I'm hoping for a change .. I want them on diagnosis to get a pack separate from all the loads of leaflets ..as those helpline numbers get put aside when there's so much info to take in .. in that folder ..  info on local help like councilling .. number where someone will call them and help with claiming benefits.. and most of all a critical number when they come up against a brick wall ... with someone asking them, what they need to make things easier .. maybe help with a carers housework / shopping / respite / then getting it put in place .. without them taking all their time up trying to find the help they need .. 

    Marrie Currie ask on their home page for suggestions where things fail .. they want to put it right ... so I'm gonna start there .. I'm going to make a mock up info pack for them to see .. with things I've learned on here .. listening to carers say they can't take any more .. and wanting to give up ... no where to turn ..

    And if I can do this right, get it handed out to everyone on that diagnosis ... big ask I know ... but with support l can only try .. then if that's o.k .. turn the benefit system around to give them access to information about benifits.  That may give them the means to look after termanally ill because they have more funds to do what they need to make life bearable .. l like a challenge ... think I've picked a Werth while one lol ... 

    If needing to chat any time I'll remember your offer of P Ms .. thank you ..

  • Hi Sandra, thanks for thinking about me. I’ve been away for about a week, had to go to San Diego Tuesday whenHi Sandra, thanks for thinking about me. I’ve been away for about a week, had to go to San Diego to stay  with my grandkids asked my daughter was traveling to Argentina for a week. Came back yesterday, I was going to stay home because I was really tired but my friends called and they were going dancing  so what did I do instead of staying home? Of course go out with my friends Peter LOL LOL .  I had so much fun but this morning I am exhausted  so I am here laying on my couch *** I write . 

     I asked from my health I am feeling good, but I think I have to talk to my oncologist because I probably need some kind of therapy. I am obsessed with the idea that every little thing I feel every pain that I have I’m thinking oh my god this is cancer. I also have to work a lot so I think therapy could help me go on with my life without worrying so much .  It’s up tough of when you’re going through cancer and recovery you’re always thinking it’s coming back it’s something then it’ll probably hunt me for the rest of my life Uh? 

     Now I have little red spots on my arms like broken little broken blood vessel‘s   And it’s probably from all the medicine I’m taking, injectables for Rheumatoid arthritis and the cancer pills  they are probably making my blood more liquid or not as thick . 

    Im  tired of going to all these different Dr’s ,  how terrible to get old and be sick and still having to work I don’t have time for everything . 

    I’m so sorry I don’t mean to be so negative but you guys are the only ones I have to let everything out. My problem is that I look fine on the outside and everybody thinks I’m such a positive and happy person but on the inside I’m suffering.  I think I really need some therapy, I will save my oncologist can set that up for me because you say no way to live my last year’s of life. 

     I enjoy all your amazing stories my friends all your successes makes me happy so keep them going and I send a hug to everyone ,  even though I don’t know you guys personally I feel like you guys are part of my family and I love you all . 

     

    Xoxoxo 

     

    Liliana

  • That sounds like a really large but worthwhile piece if work Chrissie. From my experience there are usually at least one local organisation in each area that offer benefit checks and support/assistance to apply for benefits. McMillan can be really helpful but may not have a local face to face presence for this.

    Good luck hun. You could defo make a difference x

  • Hey liliana - what you're feeling is ttly relatable.  Hey it's normal - I feel that way whenever I get stabbing take my breath away pain in boob or armpit. I learned to slow down and listen to my body the hard way. We have to work but don't think we give our bodies enough time to recover. To me the question I ask is will I ever recover fully? Will I be able to keep the pace I did before? The answer right now is no. Hopefully that'll turn to yes one day. So keep going, keep fighting but listen to your body. We have to change the flow of our lives and that's hard. It's scary and we can't be positive all the time so don't feel you're being negative is a bad thing. It's normal.

    Sandra - always praying that your results are positive.

    Ladies - always praying every night to give us all the strength we need.

  • Hey liliana. Im completely the same hun. I get sharp stabbing pains in my boob and i do have a panic. I am getting better though with the negative thoughts. It's still part of the rollercoaster x

  • Evening ladies just catching up on everyone and what’s been happening think a big group hug is needed!! 

    The good- helping each other out specially the new members. Everyone’s journey has brought us all together for each other 

    The bad- new members everyday

  • Morning ladies.

    Hey the new members are on the radar, being treated and are exposed to a group of amazing, sexy babes!! Always a positive!

    Well I don't know what this b.s. is but for last 4 months I'm getting a painful period which seems to be getting heavier each time. I went on tamoxifen Feb 2017 and they stopped apart from 2 spotting days. Has anyone else had This? I was pre-menopause before diagnosis and was just turning 50. I was so happy I got rid of them. Well jave appt with onco gynae tmrw for follow up appt so shall ask my 10 million questions. They must see my name and think 'oh no not her!'

    Have an amazing day ladies. Keep going and enjoy your day and keep well.

  • Hi Ladies,

    Has anyone experienced rib pain after radiotherapy? I've developed a feeling like bruised ribs on my lower rib cage which hurts more when you stretch your arm in air. Been reading about various syndromes post radiotherapy which cause rib pain and as usual trying to diagnose myself! I think I might have aggravated things by lifting heavy suitcase on holiday. 

    Getting fed up as I want to go climbing soon!

    WQ xx