The good and the bad

Hi peeps

I have recently been diagnosed with breast cancer. Taking the excellent advice on this website I pretty much started by taking it one day at a time. This does indeed help. 

I thought to share the good and the bad and would love to hear anyone else's should they wish to share.

Today I had both a good and a bad moment. I received 2 letters in the post.

The first was from the hosp confirming my op date (my bad moment) cos my stomach dropped and I had that now familiar feeling of anxiousness take hold for a moment but shook it off cos I know it is needed. 

The good - my 2nd letter - as if... a tax rebate - boom  . Not half put a much needed smile on my face . Reckon a my treat family meal is in order.

Eeee it's the little things ain't it. 

Take care peeps 

Sandra x ️X

 

  • The thought of men bringing cake,drinks putting sun tan lotion on and massaging has kept me amused all afternoon! Thank you ladies! 

    Hope you sleep well warriorqueen and chest infection better in morning x 

  • Ha ha I think the sunshine has made everyone excitable lol.....your fantasies are like a jilly cooper novel!

    I met the oncologist today and found out a lot more from her than my surgeon. Apparently the invasive area was small but I had 5cm of DCIS intermediate grade with it that she said she is sure would have also have become invasive.....so it sounds like it could have been a different t picture had I not been called auto for screeaning as part of the nhs study pilot.

    She's started me on tamoxifen and my radiotherapy will start in the next 4 weeks. However i gotta have physiotherapy first as I can't get my arm into the correct position and hold it long enough. As i had micrometastes of the node she is going to make sure that area is treated too. 

    I have to say I have never met a more approachable and informative consultant. She was amazing. I  came away today feeling like all the research I had done had enabled me to have a truly informed conversation with a doctor who was prepared to explain in as much additional detail as I needed. Even the 5 year risk of recurrence which is low at 3 to 4%.

    I suppose I felt like a person rather than a diagnosis. I'd expected to be there for 20 mins...45 mins later and armed with info and positivity and my sense of self, I left. 

  • Think that’s what we all want, to be spoke to like a person and not just a number. This is hard enough as it is.  I know some people only like to be told “only what they need to know” but I think if you know everything you can deal with it better. No hidden surprises weeks down the line x 

  • She sounds absolutely amazing. It just makes me realise how bad mine was. If you didn’t ask a specific question there was very little information offered. 

  • I am definitely a person who likes to know all information. I know generally it's not a good idea to go to Google but I read research papers about my type of cancer (tubular) , DCIS, staging, treatments, recurrance risk for 5 and 10 years, etc etc. It definately helped me get clarity and to understand the info i was given and ask follow on qiestions. 

  • Hi cournish ... bless ya , didn't realise you had appointment to day ... but good on ya finding out all the info ... that's what l try to do ... it gives you back a bit more control , we loose on the start of this cancer journey of ours ... 

    It sounds quite positive though ... you have been amazing ... so hope your getting stronger every day ... x

  • I didn’t find out stage etc until after the surgery. Talk about keeping you in the dark. 

  • That's really sad Riley. How can you make informed decisions without being informed! I actually feel quite lucky in so many ways today

  • Well you can’t and I think that was part of it.   Unless you've already been thro this before you don’t necessarliy know what’s going on and therefore be in a position to ask questions. Think that’s why I’m as arsy about the ‘my body’ bit now. 

  • Think must people will hold their hands up to going on google but it does scary you. Did you go alone or take someone with you? X