The good and the bad

Hi peeps

I have recently been diagnosed with breast cancer. Taking the excellent advice on this website I pretty much started by taking it one day at a time. This does indeed help. 

I thought to share the good and the bad and would love to hear anyone else's should they wish to share.

Today I had both a good and a bad moment. I received 2 letters in the post.

The first was from the hosp confirming my op date (my bad moment) cos my stomach dropped and I had that now familiar feeling of anxiousness take hold for a moment but shook it off cos I know it is needed. 

The good - my 2nd letter - as if... a tax rebate - boom  . Not half put a much needed smile on my face . Reckon a my treat family meal is in order.

Eeee it's the little things ain't it. 

Take care peeps 

Sandra x ️X

 

Parents
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    Hi Sandra,

    Welcome to Cancer Chat. I am sorry to hear about your recent diagnosis.You are doing well by trying to cope one day at a time.The first letter you received today wasn't so bad.. It is going to remove the cancer in your breast and give you the chance to live a normal life once all this treatment is over, so the sooner you start the sooner you'll be finished with it all. The second was a definite bonus.

    What surgery are you going to have - a lumpectomy or a mastectomy?

    I have had 2 bouts of primary breast cancer. The first was diagnosed 7 years ago and the second the following year. Have you got a treatment plan in place post-surgery?

    Please stay in touch. Remember, there is always someone here whenever you feel like talking.

    Kind regards,

    Jolamine xx

  • Hi Jolamine.

    Thanks for the reply. 

    I have 2 small lumps in my R breast (no one can feel them nor is there any outward change to be seen nor pain. Caught on routine screening).

    They are grade 1 and grade  2 both invasive cancers. On MRI my lymph nodes look clear.

    I am having a lumpectomy on the 21st as a day case. They are hoping to make 1 incision to get to both but will re assess on day. They are also taking 2 sentinel nodes for biopsy just in case. 

    After the op all things being equal I am to have radiotherapy mon to fri for 3 wks.

    Wow how matter of fact does it all sound in the written word when it is so not.

    7yrs post diagnosis - I tip my hat to you Jolamine. When we are first diagnosed it's like our lives ended in that moment. This is so not true "living with Cancer" never a truer word.

    take care Jolamine 

    Sandra x

     

  • Hi there ... just sending you a vertual hug ... from one breast lady to another ... we've all helped ourselfs and others that come along on this rollercoaster of breast cancer ... once l got my head around it in the early days , l felt ready to take this cancer by the balls and run with it ... coz cancer wants us to panic and give in ... but we were in the same place as you and it is so emotional , and different days you feel different things ... but it's a long ol journey so when you have a down day, remember wer all on this rollercoaster with you ..

    So brave lady ... the op isn't half as bad as I'd imagined ... and some of us breast ladies were home in the evening with a nice cupper... but it is more tender where lymph nodes are taken ... that takes a while to get better ... take care Chrissie xx

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    Hi Sandra,

    I’ve not forgotten you. I had a few months when I found it very difficult to participate in anything on this site. I lost my sight in one eye and was losing it in the second in just 8 weeks. I’ve since had an operation to both eyes – and what a difference!  Where would we be without the wonderful doctors in this country? I feel very blessed to have regained my sight.

    I am glad to hear that surgery and treatment are both behind you now and hope that your appointment with your surgeon in April goes well.

    Kind regards,

    Jolamine xx

    Hi Sandra,

    I’ve not forgotten you. I had a few months when I found it very difficult to participate in anything on this site. I lost my sight in one eye and was losing it in the second in just 8 weeks. I’ve since had an operation to both eyes – and what a difference!  Where would we be without the wonderful doctors in this country? I feel very blessed to have regained my sight.

    I am glad to hear that surgery and treatment are both behind you now and hope that your appointment with your surgeon in April goes well.

    Congratulations to your daughter - one very proud mum deservedly!

    Kind regards,

    Jolamine xx

  • Hi cornishpastie

    I get where u r coming from- my thinking was - all the angst in the world ain’t gonna change a thing so...best get on then.

    Bless your other half.. I sometimes think it is harder on our families in as much as although we are going through it - they helplessly have to take a step back and pretty much watch the one they love go through it from the side lines. 

    The 13 th will b here before u know it so try nd look on the time till then as free time from everything hospital nd do whatever u fancy .. I know easier said than done.

    On the day of my op there were 4 of us in the day case room all having the same op. We pulled up our chairs ( didn’t get a bed) nd chatted nd yes... even laughed together. I was home by 7:30 pm cup of tea 2 paracetamol then early nigt - I had made the op much bigger in my head than it actually was. Next day - uncomfortable nd tender ( u know didn’t want it knocked:-) but no pain ( so didn’t have any paracetamol) nd full movement in my arm. Nurse popped in at 11:00am checked my dressing nd left. By 12:30pm I was at shops with daughter for a bit of a browse then t pub for lunch:-)

    This was my experience nd everyone is different but... can honestly say was much less of a deal than I had built it up to be in my mind.

    If u have any questions or need to voice... anything ( good or bad) we are all here for u.

    Yeah u go for that lottery ticket girl:-) a big win would be a cracking “good” wouldn’t it :-) x

     

     

     

     

  • Ah thanks for dropping by Chrisie 

    tbh my friend was.... resolved. She is a strong lady nd said straight away she couldn’t b doing with everyone who means well. She was just getting on with it cos she has to. Its that kinda attitude that will get you through:-) I know this but was still sad as I walked away.

    Daughter doing brill:-) her husband is a joiner, Tiler, Plasterer... yes all very handy;-). It’s her two lil ones I look after while they work. They r 5&2 now... love em to bits nd keep me busy:-)

    Glad hosp looking after u... they are doing the right thing playing it safe and removing the lumps. Am I right in thinking u are in next week for your op... u know the drill better than me so will b thinking of u nd that small pressure u feel on your shoulder is just my squeeze of support. Take care me dear x

  • Oh jolamine how lovely to hear from you.

    Thank you for your well wishes much appreciated... only 4 mths since end of treatment- feels a lifetime ago. Don’t think I have any tests in April think it’s a how are things and how I’m doing with the meds. 

    Our NHS is phenomenal isn’t it. So glad to hear about your sight you must be so relieved bless. You are such an inspiration Jolamine - straight back on here supporting us all....thank you so much x

  • Hi I've have also been diagnosed with invasive ductal cancer stage 1and have my op on the 17th of April does anyone know when I will start my radiotherapy

  • They won’t start treatment until you have healed. From personal experience, I started two months after surgery. 

  • Hi I'm still in shock and its hard coming to terms with it did you have time off work
  • I took time off afterwards. Took about a minth before I started feeling vaguely human again. Got thro most of the treatment altho I reduced my hours with agreement from my employer, this was due to fatigue. I went back after a month and gradually built my hours back up to full time. 

  • Hi hun

    deep breaths...u will get there.

    in answer to yr Radiotherapy query... can only tell u my timeline. 

    2017

    Op on 21st Sept  

    2nd Oct meeting with surgeon for biopsy results of excision  ( clear margins nd lymph nodes - great news cos meant I could be referred to the oncologist to discuss my radiotherapy). Referral to oncology made.

    19th Oct met oncologist nd marked up for radiotherapy 

    30th Oct 1st radiotherapy session (Mon- Fri for 3 wks)

    I had taken early retirement 9 mths prior to my diagnosis so can’t answer your 2nd query of time off work... anyone reading this who can answer Nicki72 can u please post:-)

    The 17th April will come around quicker than u think. In the meanwhile take everything one day at a time. Try to stop yourself thinking ahead and the could, would and should be scenarios. Try and use the free from hospital time to not do things u need to but what u fancy doing:-)

    Sending virtual hugs me dear. Take care x

     

Reply
  • Hi hun

    deep breaths...u will get there.

    in answer to yr Radiotherapy query... can only tell u my timeline. 

    2017

    Op on 21st Sept  

    2nd Oct meeting with surgeon for biopsy results of excision  ( clear margins nd lymph nodes - great news cos meant I could be referred to the oncologist to discuss my radiotherapy). Referral to oncology made.

    19th Oct met oncologist nd marked up for radiotherapy 

    30th Oct 1st radiotherapy session (Mon- Fri for 3 wks)

    I had taken early retirement 9 mths prior to my diagnosis so can’t answer your 2nd query of time off work... anyone reading this who can answer Nicki72 can u please post:-)

    The 17th April will come around quicker than u think. In the meanwhile take everything one day at a time. Try to stop yourself thinking ahead and the could, would and should be scenarios. Try and use the free from hospital time to not do things u need to but what u fancy doing:-)

    Sending virtual hugs me dear. Take care x

     

Children
  • Thank you its so scary not thinking I would ever get cancer but its been caught early thanks to lovely doctors and nurses at my hospital you would never think it could be you next and asking yourself why me what have I done to deserve this it's heartbreaking x

  • Hey Nikki. I'm stage 1 invasive too and have my OP on 13th April. L

  • Mines on the 17th mine was found early and its only small so I'm lucky but still coming to terms with it is hard x

  • It's a bit of a shock isn't it. I've had outbreak of eczema in places like my eye lid of all places since diagnosis. I'm trying to focus on normal daily life until my op and take a day at a time. Mine is early too so am very positive for the future.

  • I try not to think about it to much working keeps me busy hopefully I'll get more hrs but the last few days I've been so tired and just want to sleep and cry about the most simplest things x

  • Hi Nikki,

    I am so sorry to hear about your diagnosis and remember well how I felt at that time. It is a scary time when you don’t know what to expect, but let me assure you that it’s not nearly as bad as where your imagination is taking you. With regard to how you feel now, allow yourself to sleep as much as you need to. Also let yourself cry, as this is a good relief valve for stress.

    I have had 2 bouts of breast cancer. The first was 8 years ago and I had a lumpectomy followed by Tamoxifen. I had the second bout a year later and had a double mastectomy followed by Letrozole. Fortunately you have caught things early and this should give you a better chance. I was stage 1 with no lymph node involvement both times.

    Ask your cancer nurse if there is a facility at the hospital to help you with financial benefits. I have a group which I think is run by MacMillan in my hospital. It is helpful to have someone who knows the drill to fill out your forms with you. Having it done from a cancer perspective, it is useful to have it filled in by someone who fills out your form based on this. Your local Citizens’ Advice Bureau will also be able to help you out, but maybe not so much from a cancer viewpoint.

    Some benefits are means tested, but others are not, so again advice on what you are likely to qualify for is helpful. If you want help, the sooner you apply the better, as it can take some time to get payments through.

    I haven’t had radiotherapy, but I’m sure that you won’t receive this until your wound has healed. I was exhausted, even without this. I am self-employed so felt duty bound to get back to work ASAP. With hindsight, this was not a good idea, as I just felt more and more tired. I eventually developed side-effects to my medication and had to stop doing the day to day work, although I still manage the business.

    Try not to torment yourself with the ‘why me’ question. We all do it, but it gets us nowhere. Instead, think of how lucky you are to have caught it early and look to the future with positivity.  Try to keep yourself distracted from the wait by keeping yourself as busy as possible meanwhile.

    I hope that all goes well for you on 17th April. Please keep in touch and let us know how you get on. We are always here for you whenever you need us.

    Kind regards,

    Jolamine xx

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    Hi Cornishpastie,

    I am glad to see that on the face of things you are coping with all that is happening. It’s a real hit between the eyes when you are told your diagnosis and emotions are all over the place. Logic goes out the window and fear, anger, depression, tears, worry for family, etc, all creep in instead.

    I have had 2 bouts of primary breast cancer. The first was 8 years ago when I had a lumpectomy followed by Tamoxifen.  A year later I found another lump and had a double mastectomy, followed by 6 years of Letrozole. Fortunately, both of mine were stage 1.

    I hope that all goes well for you on 13th April and look forward to hearing how you get on after the operation.

    Don’t forget that we are always here for you whenever you need us.

    Kind regards,

    Jolamine xx

  • Did you suffer from fatigue at any time 

  • Can you take anything for it I'm new to all of this