Stay Strong

I have a busy day and come home to my lovely neighbour mowing my back lawn.  I chastise him and say  I would have got round to it, he knew I was struggling and came in whilst I was out.  These kindnesses make my day.  I think hubby is not looking well and voice my concerns.   Nope he says he's fine but a little niggle tells me otherwise.   I get up this morning and he admits he's not good..  appointment at Doctors and he has another infection.  I am being picked up by a friend to go to Wynyard Hall and gardens, the day is glorious and she has the soft top down,we arrive and I look like Bridget Jones after her ride in an open top car!  We have home made cake and coffee and meander the beautiful gardens looking at the pumpkins, sweetcorn and variety of flowers.  I suddenly spot a flower that hubby and I keep seeing  on our drives and it's driving him insane not knowing its name.  A lady hears us talking, takes a photo, Googles it and walks back to tell me, it's  called the common tansy. People are so thoughtful and kind!  Back home hubby laughs at the state of my hair, saying I look like I have been pulled through a hedge backwards,  charming!!  I tell him the plants name, lovely he says and promptly falls asleep on his sheepskin in the sunny conservatory.   Hopefully the antibiotics will kick in soon, I want my normal hubby back.

  • Dear Carol and anthea  so sorry about your husbands problems. We're all hoping things improve i know your not really interested in the forum just now but you have a lot of friends rooting for things to improve, and wishing you ladies well also. Thinking of you all.. Love Billy xxxxxxx 

  • Thanks Billy, our appointment was cancelled as our own oncologist wants to see us Monday, so another two days of worry.  I'll post when we get home.  Love Carol x 

  • Fingers and everything else crossed for Monday that the news isn't as bad as you fear. My poor hubby has really gone downhill since our appointment last Monday. I don't think I can cope with work much longer.  one vile woman came in on Friday, was extremely rude and then sat with her friend saying how miserable my face is and she's surprised I got a job! Talk about judgmental! My brother-in-law took hubby to watch some local football today but it's really taken it out of him. He can't walk 10 paces without getting really breathless. A nice warm bath has sorted him out now. Have a good evening everyone xxx

  • Hi Carol thinking of you and hubby, I'm surprised you didn't say something rather rude to that woman, well done, we're thinking of you and Norman remember you've got plenty of friends rooting for him........love Billy xxx 

  • Hi my lovely friends we're  back home and have a long road ahead of us.  There are five nodules on hubbys liver, the lung cancer has grown back to stage four, he has an inflated left lung, But we have been offered immunotherapy treatment and radiotherapy.  He's signed the forms today and after a Pet scan to confirm the nodules are cancer we can go ahead with the treatment and try and shrink them.  This is good news but I am not jumping for joy at what is to come, though Norman is very upbeat about it all.  The side effects can be severe in some cases and I hope we are not in that percentage, onwards and upwards we fight on.  Our girls are happy that Dad is going to be with us a lot longer than we thought, but I am a little tired at the moment and hope by the time treatment begins that I have got my act together once more.  So, bad news tempered with good news.  Thank you all for your support through this horrible few weeks, I think when you are not well yourself it's harder to cope and because throughout I have been fit I'm now struggling.  I've just had a phone call in the middle of this post to say the scan has been booked, so now awaiting an appointment.  I've had the week from Hell with my tooth and am on antibiotics again and painkillers, because I've been so stressed I've bruised my jaw thus setting off another tooth in sympathy, an urgent private referral is 6 to 8 weeks, so only 7 weeks left to suffer!!  Our GP gave us the worst case scenario last Monday, so sorry he said, its spread, its not looking very good, take care of yourself Carol, with a maudlin face, I need optimistic thoughts not negative ones.  So I'll post each day again as its another chapter in the world of fighting cancer and hopefully it will help others going through the same trauma.  A special thanks to Sue who has messaged me privately, Anthea who is going through a terrible time with unkind people commenting on her attitude when they have no idea what others are suffering and to think of me at such a hard time shows your strength of love and understanding, so sod them all Anthea, it's about you, not them.  Another friend who I met on this forum has kept my spirits up and her prayers have been answered.  I do believe in God but we tend to lose a little faith when at our lowest, its natural but you can only see the darkness ahead, not the light.  So once again, love to you all, Carol xx 

  • This is good news for you carol. My hubby had immunotherapy and hardly suffered at all with any side effects. It was while he was having this treatment that he felt well enough for us to go to Norway! The only side effect that he did get really was a nasty rash on the top half of his body. When I first saw it I thought he had been sitting out in a blazing hot sunshine! I bought him Epimax oatmeal cream and he used it to wash with instead of shower gel or soap. It really kept it under control. Today I have been to the doctors and got myself signed off from work for a few weeks. I feel like a weight has been lifted that I don't have to worry about work for a while. So with my new found freedom I have been sitting at my kitchen table making little fondant figures for different celebration cakes I'm making for family members! I have found it very therapeutic. I do hope you get some relief from your tooth soon. No pain worse than toothache as far as I'm concerned! All the very best to you all , Anthea xxx

  • Hi Carol and co ...

    Not been on much lately as like everyone here, lots of family / personal probs ... to where it's so hard trying to help others ... but I do pop on every so often and pop on to see how some are doing ... like you ..

    So sorry I missed what a hard time your having right now too ... just wanted to say, I'm thinking of you and just to hold on , like you do so well ... but we all need a shoulder to lean on , and hope you've got support right now ...  and sue too, my heart goes out to you, watching your homeland is heart breaking.. 

    I was so hoping 2020 would be kinder, but sadly it's not given any of us a break so far .. so not holding out for much improvement ... so just want you to know I'm thinking of you all ... big vertual hug Chrissie x 

  • Hi Carol, I have been trying to stay away from this forum for the past few months, just checking in now and again. I was sorry to read of your recent setbacks but it us good that Norman is going to be able to have immunotherapy and radiotherapy to keep those nasties at bay. It is 4 years ago today after Alan's scan and biopsy results that we were told he indeed had lung cancer and nothing could be done and given a prognosis of 9 to 12 months of which we only managed 6. 

    It must be so hard for you both but your positive attitude will hopefully help you on the road ahead.

    Love to all the ladies who write on this thread and Billy of course. 

    Lynne.x

  • Dear Carol,
    While the scan results didn't give you the news you hoped for, there are still treatment options for Norman and while there can be side effects everything I've read say most people usually only have minor problems, if any at all, hopefully Norman is one of those.  Norman feeling positive is great and I really feel that helps so much. You will cope as you always have, and give all the support he needs.  Hopefully your tooth will be dealt with and then you won't feel like your struggling.  Take it easy in the meantime and get well.

    Chriss, Thank you, it is very hard watching the devastation these fires are causing. 

    Anthea, Good to hear you have some time off work.  

    Billy, How are both Bren and yourself?

    Take care and love to all.  Sue xx

     

  • Hi sue we are as good as can be, we've just found out that bren could have Alzheimers, it's got to be confirmed yet see specialist in couple of weeks then hopefully something to slow it down??. Its not being a very good year so far for a lot of people can wish that things improve as the year goes on. Hope you're managing OK, haven't heard anything about the fires lately on the news hopefully there getting sorted. Think I'm mumbling a bit not a good night wishing you well     love.... Billy xxx