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p******** off at hospital messing me about !!

suziesuze
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Omg I am sooo p off !

 

on way to hospital today after waiting over a month to start radio T they rang and decided to do a holding breath procedure instead ! rang me on the bloody day ! yet planning was done over 2 weeks ago. now they want me to go back for more planning and start the drugs NOW and stop taking the drugs then start AGAIN after the radio T !

why are they messing me about ? no one also mentioned any risks of heart problems associated with radio thearpy ! 

Left sided breast cancer is always going to be next to the heart why did they no suggest this holding breath thing from the start ?  ALSO IS IT ACTUALLY  safer or proven ? I do not want to be involved with a clinical trial.

The hosp also put my treatment back another month !!

Parents
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    Hi Suziesuze,

    What a frustrating time you are having. I don’t know exactly why your treatment plan changed. It is possible that after the initial planning it was decided that this was the best treatment for you.

    Not everybody who has left breast cancer needs to have Deep Inspiration Breath Hold (DIBH) radiotherapy. It depends on exactly where in the breast the treatment needs to be given and how close the radiotherapy will be to the heart. In some women there is a sizeable gap between the area for treating and the heart, in this case DIBH is not needed. When taking a deep breath in and holding it, the rib cage is lifted away from the heart therefore lifting the breast away from the heart.

    Studies over the past few years have shown that this is a technique that is proven to have great benefit to women. It means that the breast can be fully treated with radiotherapy and any damage to the heart can be minimised. This is a method of giving the radiotherapy which is being used more and more because there are now lots of radiotherapy departments who have staff trained to do it. If it was a trial you would be asked before and you would need to give your consent to be part of a trial.

    I hope your treatment starts soon.

    Kind regards,

    Deborah

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    Hi Suziesuze,

    What a frustrating time you are having. I don’t know exactly why your treatment plan changed. It is possible that after the initial planning it was decided that this was the best treatment for you.

    Not everybody who has left breast cancer needs to have Deep Inspiration Breath Hold (DIBH) radiotherapy. It depends on exactly where in the breast the treatment needs to be given and how close the radiotherapy will be to the heart. In some women there is a sizeable gap between the area for treating and the heart, in this case DIBH is not needed. When taking a deep breath in and holding it, the rib cage is lifted away from the heart therefore lifting the breast away from the heart.

    Studies over the past few years have shown that this is a technique that is proven to have great benefit to women. It means that the breast can be fully treated with radiotherapy and any damage to the heart can be minimised. This is a method of giving the radiotherapy which is being used more and more because there are now lots of radiotherapy departments who have staff trained to do it. If it was a trial you would be asked before and you would need to give your consent to be part of a trial.

    I hope your treatment starts soon.

    Kind regards,

    Deborah

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