After 2 lines of chemo 6 cycles EC Jan 2015 then reoccurrence Feb 2016 another y cycles of chemo Doxetacol now starting chemo tablets capecitabine feeling very low thinking is this going to work I can't snap out of it wondering. ...
Hi Kate
Lovely to hear from you, yes I managed to get away with girls early September and I just got back from few days in Cornwall with hubby and next week we r off to majorca for few days again, I have been put on rest for 3 weeks from chemo tablets as have really sore hands and feet, a side affect I'm afraid. As I have rest from tablet I'm thinking it's growing again ... I have my scan middle of Oct with results by the end of October I really hope and pray this works as I'm begi6to have doubts scan time again .....
I'm so glad your dad iside clear hope this continues, and a massive thankyou for you still chatting with me it really lifts my spirits, if you want and I understand if you don't but do you do Facebook we then could become friends that way too, I understand if you don't want to??
Lovely to hear from you xxx
sorry I've taken so long to reply, Sam has been having a difficult time with some students at college, all my alone time has been sitting up with Sam into the small hours. Well I'm longing to know about your holiday to Majorca, I ve never been but it's looks lovely. I have to be honest I haven't been abroad for 16 years, I've never taken the boys on a plane, with their autism it just always seams too problematic. We bought a static caravsn on one of the haven sites instead. We sold it this year for a tourer so we can do more exploring, gets a little boring being in the same place after a while. I have to admit though I long for some Sea and Sand in a lovely sunny climate and the experience of other countries. I have been to France, Cyprus and Egypt and loved the experience all before children.
Unfortunatly I don't have a Facebook account, Ive never really fancied it. I hope your hands and feet are feeling better, I had to see my GP my feet are so sore too. The skin is very very dry and then it gets itchy and burns. The GP thinks it's some kind of eczema, must say it makes my feet look very attractive . Aren't feet ugly anyway, unless your under the age of 5 I think they should be hidden out of sight !! It's really miserable weather here today, grey skies and rain, a lovely day for ducks my nan would say. How are you bearing up, I do hope things go your way do you have a date for your results. There's nothing worse than waiting, I'm not going to say keep busy blah blah blah....you know the drill....I m just going to say I'm rooting for you.
Well it's time to feed the masses, my lovely nephew is here for a play date with his favourite cousin Jacob..I'm just not going to look in Jacob's bedroom till much much later, they are building a den ! Oh to be that age again hey.
Know that I am thinking of you and wishing you well, talk again soon
I know exactly about the chemo tablets you will be having, went through 6 sessions of ECX chemotherapy pre and post operation for Oesophageal Cancer. Must admit that the tablets were the hard part of the chemo process 6/8 a day. In my case unfortunately after recent CT results indicated a secondary in my liver, now palliative, but I am strong and positive which you must be too!! I have good news that I can take Herceptin over the coming weeks,months and maybe years to come, and will live life to the full
Hi Kate well September turned into holiday time 4 days with girlfriendsome to majorca, then came back 4 days then went off to swanage with family one night then off to Cornwall with hubby 4 more nights gets back at weekend to go off to majorca again hubby and I in an adults only was brilliant I love my lads but it was so peaceful ! 1st day I decided to faint a few times as you do I bump my head cut lip graze elbow bruise shoulder twisted knee and pulled ligaments in ankle very painful couldn't walk had to use a stick what a great start !! Just getting better and bit now. Went for my scan last Friday and because my veins have shot it they couldn't get canola in after 3 attempts they need that to put die in my body. I am nervous and anxious as I'm hoping no new lumps and bumps but with die it helps to show things up.
They did scan I get results 26th October I'm hoping and praying for a good scan see if the chemo tablets are working.
Everything is the waiting game, some bits have got smaller but ... my feet hands just beginning to get sore again after 3 week rest great isn't it ???
Your life to sounds so chaotic too in a great way with the boys bet it's half term soon, again thanks so much for your reply it really cheers me up to hear from you
Helen xx
Thanks for your reply, I'm actually in a sort of good way at moment but I'm now worried next scan results I'm praying it's a good one hopefully the chemo tablets are working fully, results 26th this month it's waiting game hey ? Thanks for your reply I too try to live life to the fullest keep strong and healthy
Oh my...you have been busy, I'm so pleased for you, a holiday with the girlfriends has to be one of the best medicines going followed by lovely breaks with your hubby, bliss . Notice I skip past the part you went ten rounds with the footpath in Majorca ! On your first day too.... I hope your bruises are healing and your poor knee and ankle..ouch ..must have been so painful for you.. I'm sure a large glass of wine or similar would work wonders to help alleviate any pain..purely medicinal of course lol .
You poor thing, being used as a pin cushion for cannula's the docs always struggle with me, apparantley I have tiny veins that flatten so they use the tiny baby cannula's on me. I wish I could say something to make the fear and anxiety fade away for you whilst you wait. Truth is I can't, but I can say have faith in your treatment, can you remember how low you felt when we first made friends ?? Look at you now, I know your scared but your posts are so full of life, your fantastic life. Your current treatment is working for you. You are doing well, there are going to be bumps on your road at times but I truly believe there are going to be some clear roads too. Tell me what have you and your lovely hubby planned for your next adventure. I'm going to be 50 next year (I'm still in shock, my brain tells me Im 38 max) and have decided I want to go to the Carribean...but....NO KIDS....allowed. I'm saying it very very quietly so the boys don't get wind of my intentions ! Sam will be very indignant and Jacob will just go mad lol .. Still like you said, we love our children dearly but to have some adult only time is just fantastic. it's a long way of yet I'm a November birthday I'm clinging on to 48 for as long as possible...
Well Im not in the Carribean yet...the school/college uniforms are waiting to be ironed, school bags checked and packed lunches need sorting. What's that song..Back to life, back to reality...
Thanks for your reply, it's always nice when someone takes the time to respond, just finishing chemo tablet treatment 4 scan results week wed hopefully things are working!
We have nothing planned as yet but hopefully I have good results and HOPEFULLY scan in jan/Feb will be good the thing is dec Jan is always not good with results so here's hoping !!!!
I turned 50 in june and had a big party, I never sat down once I danced all night, it was a pink theme and my friends ladies and gents wore pink wigs, Clothing etc, as I had no hair then but it was fantastic, my cousin from Australia who I grew up with came as a surprise it was just fantastic, I couldn't not celebrate. I try to live my life as full as can be but something tries to stop me grrr
I'm getting nervous too as scan last Friday they couldn't get canola in as veins have shot it, so no die in body to show a clear picture of anything new... I don't want to hear anything new but I'm a little scared to be fair.
Went to a wedding on Sat and everyone keeps telling me I look great which is a real boost, keep Jacob and Sam busy in school break yikes !!!
Lovely to hear from you Kate your a special lady /friend
Hope all is well with your dad, was just thinking about you and would like to wish you a very Happy Christmas and healthy new year. I'm doing OK ish at the moment, another scan 1st week of Jan, things always go wrong in jan so I'm hoping and praying we have a good start to the year, we have also planned another holiday in jan so I have scans, then holidays, then results. Hope your ready for Xmas and the boys are too, take care
