Bowel Cancer at 32

So, was looking forward to 2016 being a great year, new job, new motorbike and heading towards a new house with my girlfriend of 12 years.  Then it turns out I had a squatter in my bowel, who I now refer to as the "squatter", an unwelcome guest that has put one hell of a downer on the year - my Cancer is quite severe, having gnome already spread to my Liver, the Primary is in the Bowel which makes it more treatable, but nonetheless, I still have one hell of a battle ahead of me - I am making a video log of how each day is going, please feel free to ask questions about what the whole process is like, and what I'm using as a source of strength - I know in the coming weeks some days will be good, and some not-so, the Log officially starts tomorrow but I have an introductory video to break the ice

https://youtu.be/5MHwAwaKs3Y

 

Parents Reply
  • Hi norckie

    Check out my posts and links in this thread to Dan about genetic elements to bowel cancer at a young age.

    I know especially with a young familly it has the potential to be the worst news imaginable but similarly with bowel cancer at under 40 it's a definite possibility and you'll probably want to know

Children
  • Thanks I'll have a look, my oncologist has referred me on to genetics as my mums dad died from bowel cancer at the age of 51, I have recently given them permission to look at my medical notes and am waiting for a response! Im feeling quite positive at the moment all of the Tumor was removed during surgery and as yet there is no sign of it spreading but had to have 'mop up chemo' because it had gone into 4 lymph glands and a blood vessel, I'm finding the chemo hard and a part of me wants to stop and take my chances, but I get dragged there kicking and screaming by my husband and my mum! I have 4 girls and the youngest is 5 so I have to keep going and stay positive for them x 

  • Guys, thank you all immensely - what a fantastic source of support you have been, I've been feeling a bit grotty last couple days, but am starting a fresh week with even more liresolve than the last - follow the log folks, cos hard we where the real battle begins

  • Ha! The blog made me laugh! I'm sure like me you've been stuck in a ward full of old folk! ( not that there's anything wrong with old people :0/ ) And l love the hats :0) 

  • Sorry you've had a rough few days, Dan, hope you are now on the up ready for the next onslaught and keeping the staff on their toes!  We all have our dark days with this disease, that's for sure, but a sense of humour does help keep the demons at bay.  

    I will be following your Vlog to see how you are getting on, and send my very best wishes.

    Hazel x 

     

     

  • Hi norckie, what a cheek, I am nearly 72 and don't think I'd be like the ones Dan shares with! 

    Good luck with your chemo tomorrow, I know the feeling having recently finished my second bout of six after ovarian recurrence - I too was tempted to call a halt after two or three as I always felt so bad with it, but I knew I had to go on and so must you, you are nearly halfway there!

    Take care, Hazel x

     

     

  • :0) thank you, I haven't slept very well! But shall put my big girls pants on today!! xx

  •  

    Thanks for sharing your thoughts with us all. I am up to date with your video log. Sorry it's looking like the mid to end week before home. Has there been any variety of people in your ward? New faces or the same?

    I know it's easy for everyone else to say "you will be ok".It's not as easy for us to believe it all the time while fighting some of these horrible symptoms. Even having a blocked up bowel can be really uncomfortable and not ideal. That's the unfortunate thing about the  morphine based painkillers because I still take a morphine based tablet (not for the cancer for something else). 

    It still doesn't have a good impact on the bowel though. So it's good to always have something like Senna at home incase you start to feel bloated. I personally don't like the Lactulous Solution (it gives me trapped wind!) so I have done the exact same as you and not realising it was making a difference to the movements!

    Hope you see the medic team soon or have already seen them 

    And that you get your hat!!

    As always take care. Jen

     

     

  • Thanks Jen - I'm updating my log shortly, as I've just had some suppositories!!

  • That should do the job!!

    Fingers crossed it solves the discomfort.

    Will catch up on the log and check where things are at.

    Jen

  •  

    All the best with your scope today.

    Very informative update via video log today.

    Explains the primary and secondary situation.

    It was similar in my example as the secondary ovarian tumour was first thought to be the primary culprit but then biopsy came back indicating it was the secondary.

    The primary was located in the caecum part of my bowel eventually

    Take care and will catch yp on your video later to hear how it went . All the best. Jen