Ongoing Prostate Cancer

 I was first diagnosed with locally advanced prostate cancer in july 2013. I underwent radio therapy with the Varian machine in October to December 2013 alongside Prostap depot injections. About halfway through my therapy I was further diagnosed with serious heart disease. Two stents were fitted to my heart in March 2014. In September 2014 I attended a routine Oncology follow up who were horrified that I had this heart condition and immediately stopped the Prostap injections and substituted Bicalutamide daily and a weekly Tamoxifen. According to my GP I was the only person in his surgery listings who was on this cocktail. The Bicalutamide continued until December 2015 and my PSA readings went along the lines of 0.3, 0.09. 1.2 and just now in March 2016 9.6. So it looks as though the whole of the radical therapy was a complete waste of time and I am completely symptomless as I virtually was when I VOLUNTEERED for the initail PSA test which was 59. Gleason score was 9. So what is happening? I am booked in for a raft of scans and tests and I suppose I will need to wait for the results. Anyone else on here hve the same diagnosis?

  • Hello Lady-Hay,

    Many on our forum have been affected by prostate cancer and I am sure they will be there soon to share their story with you.  You seem to have gone through a lot since 2013 having been diagnosed with a heart condition at the same time as receiving prostate cancer treatment.

    If you have any questions about the scans and tests you are having for example, our nurses are available on this free number 0808 800 4040, Monday to Friday 9am to 5pm.

    I will now let our members come and say hello and share their own story with you.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hi I'm sorry to hear about everything you've been through. I know we're all going through similar situations, some worse and some better than others. But we're all going through cancer of some sort, whether it's ourselves or a family or friend we care for and love. 

    My dad was diagnosed with terminal aggressive prostate cancer 3 months ago, he's currently on hormone therapy. He is unable to have any treatment as its spread to his lymph nodes and his lungs. He seems ok physically at the moment, but he still rushes to the toilet and can't always make it in time :(

    hes only 65 and we don't know how long he has left. His Gleason score is 9. We're waiting to hear if he has it in his bones. His next oncology appointment is in a week's time.

    It feels like a bomb ticking away waiting to go off, as we don't know how long he has left, or when he will start deteriorating. I can't cope, life still goes on and we still have to go to work, put on a front. Days of feeling angry and upset. But also making the most of the time my dad has left. Also scared about my mom incase something happens to her too, and she isn't great medically either. My grandmother isn't great either. And my little sister is going through some medical issues of her own too. I feel like I'm the strong one and inside I'm falling apart and constantly feel down. 

    Coming to this site and forum helps, as well as talking to friends, but u hate to be a burden, and hate being miserable around others. So I keep the hurt and anger to myself. 

    I guess u can only try to do what u can, make the most of the time, be positive (well I hate being told that as we can't receive any good news now!) 

    see what treatment u can have, and what is best for u, as every individual is different. Prostate cancer is becoming more and more common but everyone is different. Do what makes u happy (as can be!) and make the most of the positive out of a horrible situation