Hi how do you cope with it? After the 3rd cycle it's given me non stop bowle problem non stop and my hands look like old lady's. yes the same just spelt wrong
My mam was on these tablets and she had the same problems, she used aveeno cream on her hands and her feet also, she had the bowel probs too, there wasn't much she could do with this side affect though, it was prob her biggest concern as she wouldn't leave house till she had been to the loo a few times, stay strong x
Hi morag Please tell your chemo team what is happening to you asap. They may be able to adjust your dosage or introduce medication to help with side effects. It is important that this is sorted out quickly. Max x
Hi thank you for your reply. I've had to stop taking it on Friday evening, had enough of it. Only left the house yday but that was only hour. The tablets are still in me getting to flush out of of me although I'm still having the Bowle problems which is getting more annoying. I've spent whole week on the sofa and sleeping with no energy. Loosing weight too lack of eating. For my hands LRI recommend Udder cream but only can buy off net.
Do the chemotherapy team know you have stopped taking it and have they been able to help with diarrhoea? Loperamide is brilliant and you must get this sorted x
Good advice from Max56! I am on my second cycle and coping well but my hands are dry and tight, I have had some red sunburn type tenderness on my toes and yes, I've got cramps and the trots! I told my chemo nurses at the end of my first cycle and they gave me Loperamide which has really helped for the tummy cramps and diarrhoea. I cream my hands and feet with Udderly Smooth Urea cream or Diprobase cream and I try to wear flat shoes as much as possible. I'm on 2300 mg twice daily for two weeks and then a lovely week off!
Loperamide is a diarrhoea stopping medication and it is very effective and taken properly will stop this within hours and also stop the pain. You probably need your fluids checked too if you have had this a while - it can be dangerous if ignored.
I found the hand and foot problems difficult on capecitabine but must say it was an effective drug. Love to Sings dosage is quite high and I think I went down to 1500mg x 2 a day in the end so I could tolerate it.
Good luck - I know what a worry these things can be x
Hi, actually just checked yes I've been taking that too. Does work although still going to the loo. Every time I get checked at hospital with bloods, they come back fine. I do drink water all day, my salt levels and vitamins are low too but have tablets for that. have notice since being off tablets my hands aren't peeling as much although very dry. Would be amazing if we could be normal xx
Gosh wouldn't that be fantastic! Glad you have loperamide but I am not sure you are taking it properly because it will definitely halt things with help - why not give your cancer nurse a quick call? I was told it was ok to take 2 straight after an episode and another 2 if more followed. After that just one!! It really works well but you just need some medical advise from a professional who is dealing with your case. Try and sort it for the weekend x
Hello.. sorry not to reply to thread I started.. I guess I've been very lucky (funny thing to say I know).. I've been on tablets for two and a half years and not had any major problems. . Red hands and dry feet. But I cream every day - two or three times sometimes depends on weather. . Hope all tummy problems mentioned above have been sorted..
I'm about to have cycle 35 and hope to have loads more.
MoragL you inspire me! I hope I get good mileage on the drug too! I hear there's a lady in Aberdeen who has been on it for 14 years - please let that be us!
Hi jyst reading your post and I'm on second cycle of capecitabine sore hands and feet beginning what cream did u use and did u get from gp ?.. hope you don't mind me asking ?
i used udderly smooth can get it online or from hospital as I did or Aveena cream from boots or most chemists. I finished in February and feet still hurt, not sure if it was capecitibine or the oxiplatin.
