Life after whipple surgery

My husband had whipple surgery in Aug 2013 and has recovered really well. I had surgery in March this year to remove a tumour and now he is struggling due to seeing reports on tv recently that only about 5% live more than 5 years. This is proving a difficult time as there is so much uncertainty and we have a 13 year old daughter.  Anyone have experience of this surgery, would be good to hear others experiences.

  • Hi Jayne

    My Dad had whipple surgery and lived for over 15 years.  He died aged 84 of asperated pneumonia plus other complications from his diabeties.  He was sent home from his surgery only with a slim chance of surviving over a year but he was determined.  He had problems with his digestion but if he took his tablets correctly and did not eat too much rich food or dairy at one go then he was ok. His diabeties did not help.

    One thing he did get infections but they discovered it was due to a build up of fluid where his gall bladder had been and that used to get infected so he always had a supply of antibiotics at home so he could start on them right away.

    He was told before the surgery that the survival rate was only a couple of years possibly five but he decided that was five years more than if he had not had the surgery. This was in 1998 so things have probably improved since then. 

    I suppose sometimes we cant help thinking the worst but as I try to think none of us know our best before or use by date its just that with cancer it sort of brings things up close and personel.

  • Thank you as hearing positives stories really helps. The uncertainty is the hardest but like you say no one knows but until you are diagnosed with a serious illness you don't really think about it.

     

  • Hi Jayne2669; Hi river56

    i was diagnosed with pancreatic cancer in 2004 and had a Whipple in July that year — actually a fortnight after the diagnosis as the surgeon said he “had a slot”.

    I came through it and I’m still around nearly 15 years later; I was working until I was over 70.

    Obviously I am now a diabetic and inject four times a day, plus I take many pills, but that’s a small price to pay for the extra years, I reckon.

    Thought you might like another positive story!

    OC239yeo

    OC239yeo

  • Hi 

    I had a Whipple procedure. And if i was honest I found it so lonely, even though I had family all around me. It's you with the pain the worry and unless you go through this you will never understand this. But, now I have been dark I will get light and positive. You will get through this. you will adjust and you will be stronger. Please don't give up don't give in, look around you and what you already have. I look at what I have. I don't feel angry anymore. I feel lucky