What a way to start November

Good morning "gang" and a pinch, punch, first of the month to you all.

I feel a bit sorry for myself today and would like some advice please.  After four sessions of chemo which, we all know, is not the best way to spend a day, and getting through the side-effects which, although not very nice, I was always able to tell myself that after three days at the most, I would start to feel human again.  I have now been put on radiotherapy and it was my first week this week.  I feel absolutely shattered, weak, sick and very sorry for myself.  When I told my consultant on Thursday the answer I got was along the lines of "if you think this is bad, wait until next week"!  I was told that any possible side-effects wouldn't start until the middle of next week but, being greedy, mine have started already, griping pains, diarrhoea, to name a few.  Even my poor little fat legs are so painful and weak and I can't stay long in bed as the pain in my hips and legs make it impossible to sleep.  Neither paracetamol nor co-codamol helps.  Has anybody some good news along the lines of: it WILL get better, not that it will only get worse?  My journey to and from hospital takes at least 2 hours each way and by the time I get home, I just collapse in the chair and sleep.  The annoying thing is I'm not usually like this. When I was diagnosed, naturally it was devastating, but I got angry with the cancer and called it all the names under the sun.  I got through the surgery and chemo with the same attitude but this has really knocked me for six.  I've not been able to do any housework or laundry so if there is anyone reading this who would like to do some extra vacuuming and ironing, then do feel free to let me know (hee hee).

My best wishes to all of you.

Battling Babe xx

  • Hello Pauline

    How are you getting/how did you get on with the hormone therapy?  Are there many side effects to it?

    I hope your scan results show an improvement on Tuesday.  With a bit of luck the DLR strike may be called off.  I have checked and it seems there will be a bus replacement service for some areas, if the strike goes ahead, but I don't know exactly where.

    Oh, by the way, wonders will never cease.  I asked at the hospital reception how I would find Cheapside.  I had been told that there were quite a few shops along there and although I can't yet walk that far, I thought I could get a bus and be nosey out of the window in readiness.  The receptionist said he'd never even heard of Cheapside.  I came out and saw a (horror of horrors) traffic warden so I asked him.  He was so helpful and at one point I thought he was going to take me there.  It's only a few minutes from the hospital so the receptionist should have known.  I caught a bus along Cheapside to The Bank and came home via DLR.  So although I've lived in London all my life, I'm still finding strange little ways to get to places.

    Once again, good luck on Tuesday.

    It's been nice "talking" to you Pauline and I'll say night night for now.

    Take care.

    Carol (BB)

     

     

  • Hello River

    Thank you for your very helpful advice.  I, too, had endometrial cancer which had spread to the lymph nodes and even though I know it does me no good at all, I still wonder if things could have been easier for me if I hadn't had to wait seven months before I was diagnosed!

    Yes, I'm due to see the "naughty nurse" about a dilator on Wednesday and have even been given details of a "women's only" emporium.  That made me smile (a bit, anyway) because, to be honest, I have no colour at the moment, I have no hair to speak of (I wear a wig and a hat pulled down over it), my legs don't let me walk very far or fast and I feel slightly Tom Dick most of the time since radiotherapy, so who, in their right mind, would want to be intimate with someone like that?  Yet I have still been given these things which now makes me think that maybe there is light at the end of the very long and winding tunnel after all.

    Night night River and do take care.

    BB

  • Well dont fancy no ironing or housework. But just joined this group. Can say to you that i have completed radiotherapy on july 31st, and i had similar feelings of fatigue and exhaustion at start of treatment and would fall asleep on the way home and as soon as got home. It does get easier!! But i have still got bone pain and some tiredness but not as much as while having the treatment and first month after. I do take letrozole which also causes bone pain. You will feel better after its completed and gradually get some energy back.

  • Hi, Carol, took me 2 1/4hours to get to the hospital today and then had to wait for 2 hours for my appointment and another 2 hours home.  And, on top of that I had bad news because my tumour has nearly doubled in size.  So I have stopped the Letrozole.  I also arranged for my care to be transferred to another hospital.  Life is full of ups and downs and we have to weather them and get on with it.

    I hope your journey today wasn't too bad, Carol, and that your treatment went well. x

  • Hello Supernova and welcome to the forum.

    Thank you for that and saying that it does get easier.  I hoped that it would but during treatment you just can't imagine feeling any different (better) than you do at that time.

    I hope it continues to get easier for you.

    Do take care.

    BB

  • Oh Pauline,  I'm so sorry to read of your devastating news.  You must feel sick with disappointment and worry.  And I bet that two hours getting home was one of the longest journeys you have ever had.  What an absolutely awful day for you.  Is the hospital that you've transferred to nearer to you?  I hope so.

    I didn't feel all that good today Pauline so I didn't go but will try to get there tomorrow if I can.

    Please do take care.  Sending you love and a big, warm cuddle.

    Carol x

  • I do hop you are feeling a little better now, Carol.  Perhaps you would be best not to go tomorrow either with the train strike especially if you arent feeling 100%.

    My new hospital is straight up the motorway, takes about 40 minutes but in the car so not so bad.

    Wishing you all the best if you do go tomorrow.x

  • Hi Pauline

    Sorry to hear about your news but at least you have found a hospital that is nearer and suits your needs better.

    Hi battling

    Does the hospital have ambulance transportation.  I was offered this before starting my chemo and radiotherapy - well I say offered they asked how I was getting to the hospital and then said they do have transport if I am finding it difficult but that they may get you to the hospital early/ late and you may have to wait to be taken home.

    I used to get a taxi on my chemo days because I was there for so long (6 hours minimum) but during the radiotherapy I or my Husband drove. Been to the hospital today for a check up scan will get my results in two weeks so fingers crossed.

    Best wishes to you both.

     

     

  • Hi River, I asked for transport and was told that unless I was on benefits I would have to make my own way.  Not sure if different parts of the country have different policies regarding this. 

    I do hope your scan results are good, please let us know. x

  • Hello Pauline. At least travelling to your new hospital seems easier and quicker for you.

    I did go for treatment yesterday although I didn't feel like it but it was just as well as only missing one day's treatment meant I had to see a doctor!  It felt a bit like being sent to see the headmistress at school (not that I ever was, of course!!!).

    I left home this morning at 9.15am and got back at 4.40pm this afternoon.  They said the DLR was running; could've fooled me.  I had an hour's wait for a DLR which normally runs every 5 minutes at the most (having had two days off they must have forgotten the route and got lost) and when it did eventually arrive, instead of letting us get on it, those already on it were chucked off as it was being taken out of service.  Eventually another one came along, we all packed into it (sardine days once again) and when we got to Canary Wharf we were all chucked off again because of signal fault.  Another one came in and I and a few others got on and, yes, we were told to get off again!  I ended up getting two buses and getting to the hospital for my 10.55am appointment at 12.40pm. I left at about 1.50pm, didn't chance the DLR so got buses and got home at 4.40pm, tired, wet and thoroughly fed up with it all.  I think I'll have to get a cab tomorrow (so expensive but easier on the nerves) as I have to be at the hospital at 9am!

    I suppose it's too early for you to have heard anything about an appointment yet?

    Do take care.

    Love Carol x