Renal cell carcinoma - kidney cancer.

Hello. I can't quite believe I'm joining this forum. I kind of hope that it will be a short visit and that there won't be a need to stick around. But we'll see.

I'm a 58 year old female. I had cervical cancer 18 years ago that was treated successfully. I have had various other operations - gallbladder out, cataracts etc. Four and a years ago I lost my daughter (mental illness/suicide). Last year I lost my mother and brother, also sudden deaths. So it's been some traumatic years and I've got some theories about this profound emotional stress and the impact that this has had on me. I don't smoke, don't drink much, eat a super healthy diet, have exercise, etc., etc. Still, my blood pressure went high and my arthritis got worse. I was in pain and felt pretty ill. Then my knee deteriorated to the point that it needed surgical fixing, and so in mid-September I had a total knee replacement. Operation went well. I was recovering happily at home when I got an acute urine infection, went to GP, got antibiotics that cleared it up, but also got a referral to the hospital as I had blood in my urine. Long story short - an ultrasound, then a CAT scan, showed a 2-3 cm tumour in my kidney. Renal cell carcinoma is one of the possibilities, although thankfully there is no sign of it spreading. (at least as well as I can understand from the CAT report that the GP printed for me). 

I got that result on Tuesday. Next Monday I'm back at the hospital for a (cystoscopy?) and will finally meet the consultant. The conclusion of the CAT result was that an "excision biopsy" is recommended. 

Now I look back at all the feeling ill over the past months, hot flushes, getting up to pee at night, back pain, and I'm starting to reinterpret everything I had put down to menopause, arthritis, etc... In other words, how much of it - if anything - was from the kidney tumour? Who can say? All of a sudden my back hurts worse. I know it's because I'm afraid it's a sign of the tumour. 

It's a confusing time. Stressful. This is a journey I have been on before, and I didn't expect to be here again. 

  • I don't know where the past 6 months went. I had the nephrectomy in mid-November. Right kidney out, home the next day -- too quick IMO. Turned out to be Papillary Renal Cell Carcinoma (RCC) PT3b - stage 3 although it was small, as it was growing into the vein, but no lymph node involvement. Grade 2 so not too bad. My recovery was very slow. First week I was virtually motionless. Barely getting out of bed. After some weeks, got a bit more strength, and slowly got up. Since then it has been steady progress. I still need an afternoon nap but most days I'm functional and have managed some lovely countryside walks. So relieved I can still manage 5 miles on a good day, with sights on further. I reckon I'm at about 80% of my previous energy capacity. 

    So then there was the follow-up CT scan, a month ago. Mostly it was clear of any recurrence, but a problem showed in my breast. Next week I'm off to the breast clinic which is a frightening proposition but I'm hoping/praying/expecting it to be something benign, as I don't have any symptoms. 

    Also I'm on the list for a bone scan, as my back pain hasn't diminished. I thought for awhile it was due to slouching in the armchair and more TV than I'd ever watched in my life, but even with more exercise and physio it's not particularly improved. Hopefully it is just mechanical but I'm glad they're checking it's nothing sinister. 

    My GP has been super. Let's me sit and talk and unload when I get some bad patches. Really appreciate their concern.

    Thank you NHS, for if I was anywhere else in the world, well I don't know if I'd still be in the world! 

  • Hi Ducks, just a quick reply.  Returned 1 hr ago from 2 weeks away in Scotland.  Relieved you are recovering from your kidney op.  I think I recovered at a similar rate to you.  Do hope your breast and bone investigations come back clear, good luck and very best wishes, Maja