Maybe you should change your name from Rocker to The Moosic Man !   Or with your acting experience and using horse linament, maybe you could audition to be in Neighbours.   There must be something to help with metal-mouth but I will have to give it some thought! How are you doing?  Trotting along nicely perhaps or feeling a little hoarse? X

lol....good one Max....yes...trotting along....seem to like jumping over fences now. I have acted so many ways that a horse/cow would be a challenge. I have done Santa, crazy doc, old lady, princess, etc but no animals yet.

If the metal mouth would leave I might lose some weight....I seem to need something in my mouth every 15 min to keep taste away

never tried it. used to like liquorice babies

so I finally threw in the towel on chemoo for now. The problems with me feet, hands and even spasms in my legs along with the metal mouth dragged me down too much. Hope I do not regret my decision too much. I will admit...have not ever made a tougher decision

Hi rocker

Sorry you gave up on the chemo but I can understand it.  After my last session (last march) I thought there is no way I could cope with another dose.  I did say to the Doctor after my first session that I would rather not have the treatment than put up with the pain that I got in my joints fortunatly they could reduce the dose which made thing more bearable.

Fingers crossed for you.

Hi Rocker ..... that really must have taken some deciding my friend.  Will you stay chemo free for a while or are there other drugs beside Crappycitabine that you can try?  I do hope that your legs/feet and hands improve quickly.  X

I hopefully will stay chemo free for a long time. They got me to 70% of the strength I was supposed to have and never knew if it was helping me or not. After 3 tries I never made it past 11 of 14 days so guess it is not for me. I do admit the staff and some of the patients did help me get through the head spinning decision before I drove home

thanks....if I could fingers and toes would be crossed. I get a blood test in Januray which hopefully will show clear

Rocker - you can only do what you feel is right for you. There are so many decisions that go along with this disease that sometimes I feel overwhelmed by it all! Said to my husband tonight that I find it difficult to know what the point of being scanned every three months is - it's never good news so why wait for more bad news to worry about.  I really don't need to hear it anymore lol!  I am pleased that you feel good about your decision. Promise to keep in touch and let us know your test results. X