Oxaliplatin - horrible reaction

Yesterday I had my second treatment of adjuvant chemotherapy, first treatment was very managable, but yesterdays was not so nice :( not sure I want the third.... anyone else have a problem with this drug, my treatment is combination of this and Capecitabine

JB 

Parents
  • Hi, I had this treatment, was supposed to have 4 but only had 2.  It was the worst thing ever, nearly fell backwards down the stairs because my muscles would go into spasm. It affected my eyesight and my mouth used to droop on one side like a stroke.  Hands were bad and don't get cold, keep warm. I made the decision to stop,  thought I was having a stroke or heart attack on the second one so nurse stopped it. Still not sure I'd I did the right thing but have done it now. Only time will tell. My surgeon said he had got all the cancer out so that influenced me as well.  Good luck with whatever you decide.

     

     

  • Hi, I've only managed 2/4 cycles, currently in hospital after horrendous side effects so my oncologist has stopped chemo now and wants to see me in 2 weeks to discuss next steps, did you not get offered any other treatment?

  • No, no other treatment offered only that they could reduce the strength, but didn't take the chance.  So far so good and have had a scan but had to go private, everything was ok on scan. Good luck with your treatment its not easy.

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