All New to Me

Hello.  My name is Phil, and I'm 69 years old.  My wife, Pat, who is 67, was diagnosed with lung cancer in March, and that's when everything changed.  About a week after diagnosis, she developed a blood clot in her lung, was rushed into hospital, nearly died, and was only saved by the skill and expertise of wonderful hospital staff.  She started chemotherapy, but was plagued by side effects - and it didn't work.  We are now waiting for her to start a short course of radiotherapy to alleviate the pain in her back, and then, if she is strong enough, her oncologist will consider second line chemotherapy.  We have been told the chances of this working are small - about 1 in 10.  But I don't think we will ever get to that because she is too weak.  We are getting support from the experts, as well as all the medication we need.  When I look around the living room, it seems that we have more drugs, pills, and potions than Boots.  I suppose that my reason for being on here is to 'touch base' (I hate that expression) with people who know what we are going through.  Friends and neighbours are very kind and sympathetic and make all the right noises, but they don't know what it's like.  That's partly my fault.  When asked how I am, I always say that I'm OK.  I come from the post war generation where showing emotions was considered a weakness.  Stiff upper lip, spirit of the Blitz, and all that stuff.  My wife is very brave.  She has taken the poking and prodding, the blood tests (she has a real phobia of needles), the CT scans, bone scans, biopsies, and everything else, and kept smiling through it all - including the injection I have to give her each day to keep the blood clots at bay.  I don't think I could have borne it so well, if at all.  She sleeps a lot these days.  Now she's having difficulty getting up the stairs to bed, but we have a stairlift coming in the next week or so, so that should help a lot.   She doesn't have much appetite, and it's difficult to get her to take nourishment.  Sorry to go on.  I usually deal with any problems myself without bothering other people.  But this is different.  It feels as if we are the only ones going through this, but I know there are thousands out there in the same boat.  For the first time in my life, I feel the need to unburden myself, and to ask for help and advice from those who really know what I, and, more especially, my wife, are going through.  Thank you for reading this.

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  • Hi, Phil, and welcome.  I am so sorry for what you are going through.  I have cared for my mum and brother with this awful disease and now have incurable cancer myself.  I am about the same age as yourself and, yes, you are right about how we deal with feelings.

    I remember when I came out of hospital and was told I had to inject myself in my stomach for 28 days, I nearly fainted with fear.  I live alone so there was no choice but to do it, and I have realised since then that being strong is not a choice.

    When people ask us how we feel we invariably say, I'm fine, simply because we can't describe our feelings. I see a counseller at a cancer charity now and spend an hour once a week just letting all my feelings of anger, frustration and resentment go.  It helps. But, yet, here I am at 3.00am still awake.  Phil, I send you and your wife all my best wishes and hope that you will come and talk to us whenever you feel the need.

  • Hi Pauline

    Thank you so much for your reply.  I am so sorry to hear that, after all you've been through with your mother and brother, you too are now afflicted with this cruel and horrible disease.  You're quite right about there being no choice as regards to being strong.  A man I know - just an acquaintance, not a friend - will occasionally ask me how things are, and will say, ' I don,t know how you do it.  I couldn't.' referring to giving injections, mopping up vomit, and all of the other unsavoury aspects of this disease.  I tell him that you have no choice.  You don't think about it, you don't question it, you just do what has to be done.

    Pauline, thank you again for replying to my post.  I feel better for simply hearing from someone out there who truly understands.  I anticipate using the Forum quite a lot.  I'm so glad I found it.

    I wish you all the best.  Take care.

    Kind regards

    Phil.

     

     

Reply
  • Hi Pauline

    Thank you so much for your reply.  I am so sorry to hear that, after all you've been through with your mother and brother, you too are now afflicted with this cruel and horrible disease.  You're quite right about there being no choice as regards to being strong.  A man I know - just an acquaintance, not a friend - will occasionally ask me how things are, and will say, ' I don,t know how you do it.  I couldn't.' referring to giving injections, mopping up vomit, and all of the other unsavoury aspects of this disease.  I tell him that you have no choice.  You don't think about it, you don't question it, you just do what has to be done.

    Pauline, thank you again for replying to my post.  I feel better for simply hearing from someone out there who truly understands.  I anticipate using the Forum quite a lot.  I'm so glad I found it.

    I wish you all the best.  Take care.

    Kind regards

    Phil.

     

     

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