Please Help - Going through the emotions

I am 27 years old and i  have recently been diagnosed with a Malignant Myxioliposarcoma in my left thigh. I have just completed 5 weeks of daily radiotherapy and now in a 6 week break until my surgery on 12th August. My skin and surrounding area of treatment is on the last stages of healing - after many painful areas of burns, open wounds and blisters. Before treatment started i had a CT scan and a Pet Scan to check the organs and cells throughout the rest of my body - These have come back all clear, thank god.

 

The surgeons have advised the surgery is straight forward to which they will be removing the whole muscle in my thigh. They have advised it has been successful many a times. I have been off work since the day i got told since April/May 2015 as to begin with like most people i was suffering panic attacks and anxiety. I would’nt leave the house and just literally fell apart. I then became confident enough for a while to carry on and felt better speaking out to my friends and family - although i am only happy to know as much as i want to know, if that makes sense.

 

Everyone is advising how brave and strong i have been but i guess its just what we have to do. I am really struggling with life right now, being my age also a lot of friends are in the process of becoming engaged, having children, buying houses or just generally partying, holidays and having a good time. I still have the questions why me? what happens if this happens or that happens and just feel stuck in a rut. All my family and friends can do is support me and remain positive. I just want to make some friends who have either had/have what i have or people who are around my age group going through cancer to just know i am not on my own.

 

This year was the first year i literally had planned in advance and have had to cancel everything from a few trips abroad, 6 hen do's, 3 weddings and the list goes on. Im so down and it's now affecting my relationship with my boyfriend as i'm so angry and uptight, cry myself to sleep and just hate everyone and the world right now although i know its no ones fault. My boyfriend and my Mum have been rocks up until now but i just feel like a burden and its just too much for them to take on with full time work and their own lives.

 

Is there anyone to reassure me i am not going crazy and life will get better. The main problem is trying to move on after surgery. Im so worried it will come back, it will destroy my life. I feel as if i can never have children now, if it came back i couldn't possibly look after children as well as try and look after myself. I love going abroad but worried incase anything happens. My head is going around in circles. I am drained and tired.


I would appreciate any help. xx

  •  

    Hi Katie .....  I replied to you on your other thread earlier and am sorry that no-one with the same condition as you has turned up yet.  It is a good idea of Jules for you to email the Moderators because they will know of any recent activity or if there are other members with the same disease.

    Although I do not have MM, I am also suffering with cancer and can relate to all you say about the emotions involved.  My prognosis is 'terminal' and I too feel a massive sadness about all the things I can no longer look forward to when others are making plans for the future etc.  It is a hard road to travel and I sometimes wonder how we get by, but somehow we do.

    It is good news that your surgeon feels very positve about your surgery and you must try and focus on that. It will be hard to go through but rest assured that you are not going crazy - just reacting like anyone would who is faced with such a situation as yourself.  It makes me smile when others say how brave we are - cos we dont actually have a lot of choice do we?  Its also really encouraging that the scans show no disease in other areas and very 'normal' to worry about recurrence.  My advice to you is to take each step at a time - there is no point in worrying about what could happen at this moment in time because, cancer or not, none of us know what the future holds and hopefully yours will be good and by this time next year you will be preparing for a holiday and life will be back to normal for you.

    Please be assured that there are many people on the forum who will be feeling the same emotions as you  and hopefully some will be along soon to give you the support you so desperately need.  We all need a rant now and again and sometimes it just helps to write it all down.

    Hope to speak again soon, take care sweetheart x

  • Hi Katie

    It's great to see that London 2014 has replied to your post and offered to support and advise you. I wonder if you would consider posting on Tiger830's thread as you may get a response there too?

    Best wishes

    Jane

  • Hello,

    Thank you for your response it means a great deal. Although you have probably heard it a million times, im real sorry to hear of your situation. 

    Im glad you have reassured me that i am not crazy and losing the plot it means a great deal. I am so worried of even having surgery as i have never stayed overnight in hospital in my 27 years let alone had any surgery. I keep worrying whilst laying in bed if the op is not as easy as they said or something goes wrong during..... i guess im just worrying too much and should leave that down to the proffessionals.

    xxx

  •  

    Great to see you have found other members of the forum with MM who can help you.  I have had several operations now and please dont be scared - you will be fast asleep and not know a thing! x