Possible bone mets.. Confused!!!

Hi my name is Chloe and new member to this site which was recommended to me by the Macmillan nurses. I was diagnosed with breast cancer grade 2 & ER+. A lumpectomy was carried out to remove the tumour along with a margin of breast tissue to check there was no cancer cells also had centinal nodes removed which 3/5 was positive of cancer cells.. I had a series of different scans as changes were picked up in my back, osteoarthritis was suspected but they had to follow it up with an MRI scan to rule out anything sinister. I have had 2 sessions of FECT chemo, when I saw my oncologist Wednesday he told me that it looks very likely to be secondary bone cancer.,I just sat and sobbed when I got home. Is there anyone who has or is going through treatments for secondary breast cancer (bone metastasis). At my wits end at the minute and could really do with some moral support from ladies unfortunately going through this awful journey them selfs.

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    Hi Chloe ..... I noticed that you havent had a reply to your post and just wanted to welcome you to the forum and say how sorry I am to hear of your diagnosis and that I understand what a scary time you are going through.  I do not know much about bone mets but was diagnosed in 2006 with BC and secondary disease three years ago.  My disease has spread to my abdominal/neck nodes, brain and liver.

    I do not know about the treatment plans for bone mets but I am sure if you ring the nurses here on the site they will be able to give you a lot of information and support.  Their number is free to call and is shown at the bottom of this page (office hours).  Also, if you click on the 'search forum' button on the blue strip at the top of the cancerchat page, you can put in 'breast cancer that has spread to the bones' and threads that others have written on the subject should come up.  That will give you an opportunity to contact the postees if you find something that pertains to your situation.

    I hope you are coping well with the chemotherapy at this present time and have to say that it was good to hear that your medical team have been so vigilant in their investigations.  It sounds like you are in good hands.

    Nothing can prepare us for the news of a cancer diagnosis and myself and many others here on the site will relate to the  confusion and distress you are feeling.  Be assured that there is always someone here to talk to, so please come to the forum whenever you feel the need to share good news or bad.  Sometimes just putting a good 'rant' down in writing really helps!!!

    I hope you will find friendship and support here and wish you all the very best with your treatment.  Speak soon x

  • Hi max56

    Thank you for your reply & the welcome to this site.(which I am still trying to figure out how to use it). saw my oncologist on Wednesday treatment plan now in place for hormone therapy & calcium plus monthly injections to strengthen my bones.

    i have a scan in 3 months to assess how the treatment is working for me. Been looking on the internet a lot which is not always a good thing to do!!

    Im sorry to hear about your diagnosis with secondary cancer, how is your treatment going? 

    I appreciate the information you have given to me it was very helpful. 

    Finding it it very hard to cope very tearful, how are you coping with things ? 

    Sending you love and best wishes

    speak soon 

    Chloe x

     

  • Hi Chloe,

    My dad has just been diagnosed with secondary bone cancer from initial bladder cancer. I don't have any advice or experience as we're just at the start of this too. But I can empathise with how scared you must be feeling right now. I'm terrified for my dad, but also just getting on with it because what else can we do? 

    Good luck with everything.

    xx

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    Hi Chloe, good to hear from you and am glad you found my post helpful.  I too have 3monthly CT scans to check how my treatment is working.  It is very hard to resist, but I know what you mean about 'googling'. Its really not always a good idea and a lot of the internet information/statistics is out of date and not a reliable source of information.

    Are you feeling okay on your treatment - are there many side-effects?  I have coped really well over the past 3/4 years with chemo and different procedures but this year my disease has progressed quite rapidly so I am not feeling quite so well. I am still on herceptin and a maintenance chemo drug every 3wks.  I understand completely about feeling tearful and scared and often wonder how we cope in these situations.  I really cant answer how we do, except to say that 'I dont know how, but you will cope'.  Have you got a supportive network around you Chloe?

    Please dont ever worry alone - I and others who understand are always here to listen when needed and sometimes it just helps to write it all down.  Keep in touch and take good care of yourself x

     

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    Hi Chloe, good to hear from you and am glad you found my post helpful.  I too have 3monthly CT scans to check how my treatment is working.  It is very hard to resist, but I know what you mean about 'googling'. Its really not always a good idea and a lot of the internet information/statistics is out of date and not a reliable source of information.

    Are you feeling okay on your treatment - are there many side-effects?  I have coped really well over the past 3/4 years with chemo and different procedures but this year my disease has progressed quite rapidly so I am not feeling quite so well. I am still on herceptin and a maintenance chemo drug every 3wks.  I understand completely about feeling tearful and scared and often wonder how we cope in these situations.  I really cant answer how we do, except to say that 'I dont know how, but you will cope'.  Have you got a supportive network around you Chloe?

    Please dont ever worry alone - I and others who understand are always here to listen when needed and sometimes it just helps to write it all down.  Keep in touch and take good care of yourself x

     

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