Hi Chloe ..... I noticed that you havent had a reply to your post and just wanted to welcome you to the forum and say how sorry I am to hear of your diagnosis and that I understand what a scary time you are going through.  I do not know much about bone mets but was diagnosed in 2006 with BC and secondary disease three years ago.  My disease has spread to my abdominal/neck nodes, brain and liver.

I do not know about the treatment plans for bone mets but I am sure if you ring the nurses here on the site they will be able to give you a lot of information and support.  Their number is free to call and is shown at the bottom of this page (office hours).  Also, if you click on the 'search forum' button on the blue strip at the top of the cancerchat page, you can put in 'breast cancer that has spread to the bones' and threads that others have written on the subject should come up.  That will give you an opportunity to contact the postees if you find something that pertains to your situation.

I hope you are coping well with the chemotherapy at this present time and have to say that it was good to hear that your medical team have been so vigilant in their investigations.  It sounds like you are in good hands.

Nothing can prepare us for the news of a cancer diagnosis and myself and many others here on the site will relate to the  confusion and distress you are feeling.  Be assured that there is always someone here to talk to, so please come to the forum whenever you feel the need to share good news or bad.  Sometimes just putting a good 'rant' down in writing really helps!!!

I hope you will find friendship and support here and wish you all the very best with your treatment.  Speak soon x

Hi max56

Thank you for your reply & the welcome to this site.(which I am still trying to figure out how to use it). saw my oncologist on Wednesday treatment plan now in place for hormone therapy & calcium plus monthly injections to strengthen my bones.

i have a scan in 3 months to assess how the treatment is working for me. Been looking on the internet a lot which is not always a good thing to do!!

Im sorry to hear about your diagnosis with secondary cancer, how is your treatment going? 

I appreciate the information you have given to me it was very helpful. 

Finding it it very hard to cope very tearful, how are you coping with things ? 

Sending you love and best wishes

speak soon 

Chloe x

Hi Chloe, good to hear from you and am glad you found my post helpful.  I too have 3monthly CT scans to check how my treatment is working.  It is very hard to resist, but I know what you mean about 'googling'. Its really not always a good idea and a lot of the internet information/statistics is out of date and not a reliable source of information.

Are you feeling okay on your treatment - are there many side-effects?  I have coped really well over the past 3/4 years with chemo and different procedures but this year my disease has progressed quite rapidly so I am not feeling quite so well. I am still on herceptin and a maintenance chemo drug every 3wks.  I understand completely about feeling tearful and scared and often wonder how we cope in these situations.  I really cant answer how we do, except to say that 'I dont know how, but you will cope'.  Have you got a supportive network around you Chloe?

Please dont ever worry alone - I and others who understand are always here to listen when needed and sometimes it just helps to write it all down.  Keep in touch and take good care of yourself x

Hi Chloe

my mum was diagnosed in January with bone mets after being breast cancer free for 9 years and we had never heard of this or knew anything about it. Mum is only 48 so this came as a big shock. I'm no expert we are learning everyday. Mums mets are in her hips ribs spine pelvis and skull but the treatment she is on at the moment seems to be keeping her stable. If you have any questions or need somebody to talk to I'm here. Thinking of you during this horrific time. Xxxx

Hi Chloe,

Welcome to the forum - I hope you find the practical and emotional support you need on here - as I have.

Like Max I don't have any direct experience of bone mets but I'm sure someone on here must have as I believe it is a very common secondary for people with Breast Cancer. Contacting the nurses either by phone or by reposting in the "Ask a Nurse" section is a great idea.

Best wishes
Dave
x

Hi Chloe.

Like you I have been diagnosed with secondary breast cancer which has metastasised into not only my bones but also small bits in my lungs and lymph. However unlike you I had two and half years between my primary cancer diagnosis and treatment and this metastasis. It's still difficult to accept and adjust to and I do still get angry and resentful, not to mention sad and despondent at times. However the treatments are going ok so far. I am on four-weekly IV bone-strengthening treatments (Zometa), calcium tablets, endocrine therapy (Exemestane tablets) and I had one dose of radiotherapy to my hip which has helped to reduce the pain somewhat. I am expecting another scan in Sept, then I will probably be starting more chemo. I have been told that I will be on chemo drugs Docetaxel (which I had first time round) and Paclitaxel, plus more targeted therapies Heceptin (Trastuzumab) and Pertuzumab. So far my main symptoms are hip pain when I walk, constipation from all the codeine and treatments plus fatigue. I hope you are beginning to adjust to your new diagnosis, and get some support from friends, family, this website, Macmillan and Breast cancer Care. All the best!