Chemotherapy

hi

I am due to start five initial rounds of chemotherapy on Monday. 

I am having OXALIPLATIN and CAPECITABINE and I would be really interested to hear from anyone who has been on this combination. I must admit the whole thing is scary.....especially all the do's and dont's that you have to adhere to.  I live in a house with three males and the toilet hygiene is very worrying as I don't want them affected by anything. 

Any advice will be most welcome

Moira xx

  • Hi Moira,

    I was on EOX (Oxaliplatin, Capecitabine plus Epirubicin) for about the same number of cycles.

    There is no delicate way to put this - make sure the males in your house understand that you have absolute priority and that whatever they are doing they must get out of your way when nature calls. At some point or other the chances are very high that you will have very bad diarrhoea, if anyone gets in the way the results could be embarrassing. .  

    The side effects of chemo vary from person to person and from cycle to cycle. It will feel scary to start with, but you will find your own way of coping with whatever symptoms you may have. Not everyone has all the side effects that you will have been warned of. Throughout it all try to remember that however bad it is making you feel, your cancer will be feeling a lot worse.

    I personally found that I was dead tired for about two days after the infusions and that it was best to let my body decide when I needed to sleep. Once that was out of the way I did my best to eat well and to exercise - nothing heavy just dog-walking. I monitored my weight on a daily basis to ensure I wasn't losing too much weight and I was meticulous about not becoming dehydrated. 

    Play it by ear as best as you can and please let us know how you get on.

     

    Best wishes
    Dave

     

     

     

  • Hi Dave

    Thanks for that. I am quite lucky in that we have an upstairs and a downstairs loo and I have explained to the guys that they need to leave the upstairs one free at all times. I am not looking forward to it, yet at the same time I can't wait to get started to get it over with. I'm praying that this treatment will do the business once and for all and that life will go back to what it was before this awful disease took hold. 

    I hope that you are well and that we can continue to chat once I get Monday over. 

    Moira x