Help with coping

It is ten months since I was diagnosed with lung cancer left lung and lymph nodes in chest plus paralysis of left vocal chord. For several weeks the intermittent pain in back shoulder, uper arm has been stronger, I am more fatigued and feel so weak when stood or walking. Also nauseous more often and under the weather. Is my condition worsening, am I on the way out. On the 19 th may I have my first ct scan scan since last October then I see oncologist 22nd may for results of radiotherapy done last October - November. I am trying to stay positive but deteriation is depressing me, I am not ready to die, is this the beginning of the end? I feel so sad.

  • Please, please don't be depressed by second guessing what your results will be in a months time.  If they are good you will have wasted so much time worrying and if they are not what you would have hoped you will wish you had spent your time better.

    I last saw my oncologist 6 weeks ago when I found my cancer had spread and was incurable.  I have taken a hormone pill since then as experimentation because I didnt want chemo and have had my scans.  Tuesday I go back for results.  I refuse to waste these days worrying because who knows.  Life is precious - try to be positive, I know how hard it is.

    I hope you have some pain medication.  Am thinking of you and, believe me, I understand and empathise, with you, we all have those thoughts.  Let us know how you get on, please.

  • Hi Pauline so much has happened since I last was on the site.  GP took bloods in May, results indicated could have problem with ovaries, had ultra sound, saw a gynaecologist  said all ok something called Ct15 was up. Ct scan 19 May saw consultant 22nd. Cancer in 2 nodes still active but not growing but spot on right hip bone. Had bone scan, pet scan ALK test on original biopsy waited 3 weeks for result of ALK and it was negative, no good. Saw consultant 12 june told no suitable for anti Cancer pill but pelvic bone clear. Found lump in neck Monday 22 GP wrote to professor at christies, Saw her on 26 June confirmed 2 tumours in neck lymph nodes. Now on palliative care, started 3 July  had 10 days radio but half way through found lump under chin left side. The prof ordered a fine needle aspiration  with ultra sound, have it this Friday nearly 4 weeks later. Feel neglected. Mac nurse at christies said they have not given up on me they are trying to give me more time. See oncologist 14 August 2 weeks wait again to discuss what next?

  • Knew mine was incurable from diagnoses last June but they tried to stop progression. It is a dreadful disease no matter where you have it. I have been on anti depressants for 3 weeks and I have remained calm, not depressed but sad. Have they given you a time scale, and how do people cope? Pray for a miracle they do happen, God bless.