Just started chemo need advice to manage side affects

Hi

I had by first round of Chemo last Friday on Sunday night terrible pain in legs the same on Monday with added scores in mouth,

pain better Tuesday. Just felt sick Wednesday lost voice, Thursday felt better but still had no voice by the evening chest pain during the night chronic back pain and upset tum I don't have a tempature but the pain is chronic ,

Any one got any tips please much appreciated :) 

Parents
  • Hi Suran

    Sound similar side effects that I had.  As the others have said speak with your chemo team.  I kept a diary how I felt so that I could relate all this to the Doctor and they reduced one of my drugs.  The more information you can give them the better.

    Agree with the drinking plenty of water especially before during and for several days after treatment. Including during the night if I woke up.  It can make you feel a bit sickly so sometimes I mixed Crannberry or Blueberry juice with it 50/50.  I also had sores in my mouth (did not lose my voice) so they gave me "Difflam oral rinse" I also brushed my teeth every few hours using a soft toothbrush and a small amount of sensative toothpaste. This stopped me getting a sore mouth.

    Through the routine - I had treatment every three weeks  I found that the pain went in cycles usually started two days after treatment and lasted 4 days, easing off on the 4th day.

    I would recommend - No Alcohol, no coffee starting the day before treatment and until the pain went and the same for spicy food.  It does not stop the pain but did reduce it.

    If you have any heat pads use these on your legs it does ease the pain but you will probably have to have pain killers for the worst days.

    I also had a reaction to the steroids that they gave me as a premed and two days supply after so (with the doctors agreement) I did reduce my evening dose and this seemed to help with the upset stomach and strangly chest pains.

    When my pain was at its worst my feet & legs were so painful it was difficult to walk across the room but once it had subsided I used to take short walks every day and went on the exercise bike.  Keeping active  between sessions really helped.

    Fortunatly I never felt sick during my treatment but did get tired and you do just have to rest.

    Hope some of this helps.

     

     

     

Reply
  • Hi Suran

    Sound similar side effects that I had.  As the others have said speak with your chemo team.  I kept a diary how I felt so that I could relate all this to the Doctor and they reduced one of my drugs.  The more information you can give them the better.

    Agree with the drinking plenty of water especially before during and for several days after treatment. Including during the night if I woke up.  It can make you feel a bit sickly so sometimes I mixed Crannberry or Blueberry juice with it 50/50.  I also had sores in my mouth (did not lose my voice) so they gave me "Difflam oral rinse" I also brushed my teeth every few hours using a soft toothbrush and a small amount of sensative toothpaste. This stopped me getting a sore mouth.

    Through the routine - I had treatment every three weeks  I found that the pain went in cycles usually started two days after treatment and lasted 4 days, easing off on the 4th day.

    I would recommend - No Alcohol, no coffee starting the day before treatment and until the pain went and the same for spicy food.  It does not stop the pain but did reduce it.

    If you have any heat pads use these on your legs it does ease the pain but you will probably have to have pain killers for the worst days.

    I also had a reaction to the steroids that they gave me as a premed and two days supply after so (with the doctors agreement) I did reduce my evening dose and this seemed to help with the upset stomach and strangly chest pains.

    When my pain was at its worst my feet & legs were so painful it was difficult to walk across the room but once it had subsided I used to take short walks every day and went on the exercise bike.  Keeping active  between sessions really helped.

    Fortunatly I never felt sick during my treatment but did get tired and you do just have to rest.

    Hope some of this helps.

     

     

     

Children
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