Metastatic Breast Cancer

Hi all, dont really know what to say as frigtened as what will come back. HAD DCIS in 2011 had lumpectomy radiotherapy and tamoxifen all was good then xmas 2014 told c had come back but this time in breast collar bone lung and sturnem GUTTED !!! After 3 chemos some has disapeared partial response on sturnem and was just wondering if anyone is so unlucky to have a similar story ??? Im going for no 5 chemo today have been told will not cure me but hope to keep it under control i pray everynight that i have many many years ahead of me, im now 48

Parents
  • Sorry to hear your story - it's kinda similar to mine.  I had Breast Cancer in 2006 with no lymph nodes affected.  I did the lumpectomy, chemo and radiotherapy and then did 5 years on Tamoxifen followed by 3 years on Letrozole.  Just as I was expecting to finish all medication for good, I took ill at Christmas and in February this year, I was diagnosed with secondary Breast Cancer in my pleural wall around my lungs, in my liver and I have 2 tiny spots of cancer in my ribs.  Needless to say I was gutted that after all this time cancer free, here we go again!  I have just had 3 FEC chemos and on Friday, I'm getting my mid way scan.  Fingers crossed - the chemo is kicking that cancer's backside!  I identify with all you say and I hate hearing that my cancer is incurable and this keep being repeated.  I want to live and stay strong and with a positive outlook coupled with the advances in research, I want to be alive for many many years to come.  It's not the same journey second time around - I do feel more vulnerable but I am coping very well.  I had oestrogen positive breast cancer first time around and I've been told that it can just lie dormant and come back again in some people for some unknown reason.  I do think knowledge is power though and I wish I had been more informed about where it could come back and what symptoms to look out for.  I wish you well with your treatment - it's helpful to know there is someone out there feeling as I do.

  • I thought that I would reply as I am having a sleepless/anxious night waiting for results of a ct scan taken yesterday as a result of an initial ct scan taken 4 weeks ago showing pneumonia and enlarged lymph nodes in mediastinum.The breathlessness has gone, but I seem to have developed further swollen lymph nodes in the upper chest area and pains in the ribs.

    I had bc  grade 3 stage 2 in late 2012 with no nodes affected, had a mastectomy following  a lumpectomy that didn't show clear marginsand followed up with chemo FEC and radiotherapy and still on  letrozole. As a precaution I opted for a second mastectomy Nov 2013.

    The waiting for results is pretty awful, as has been the waiting for the 2nd ct scan to happen- I am fearing the worst! I am just grateful that I am not alone with my fears.

     


     

     

Reply
  • I thought that I would reply as I am having a sleepless/anxious night waiting for results of a ct scan taken yesterday as a result of an initial ct scan taken 4 weeks ago showing pneumonia and enlarged lymph nodes in mediastinum.The breathlessness has gone, but I seem to have developed further swollen lymph nodes in the upper chest area and pains in the ribs.

    I had bc  grade 3 stage 2 in late 2012 with no nodes affected, had a mastectomy following  a lumpectomy that didn't show clear marginsand followed up with chemo FEC and radiotherapy and still on  letrozole. As a precaution I opted for a second mastectomy Nov 2013.

    The waiting for results is pretty awful, as has been the waiting for the 2nd ct scan to happen- I am fearing the worst! I am just grateful that I am not alone with my fears.

     


     

     

Children
No Data