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Metastatic Breast Cancer

hellsbells66
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Hi all, dont really know what to say as frigtened as what will come back. HAD DCIS in 2011 had lumpectomy radiotherapy and tamoxifen all was good then xmas 2014 told c had come back but this time in breast collar bone lung and sturnem GUTTED !!! After 3 chemos some has disapeared partial response on sturnem and was just wondering if anyone is so unlucky to have a similar story ??? Im going for no 5 chemo today have been told will not cure me but hope to keep it under control i pray everynight that i have many many years ahead of me, im now 48

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    Hi HB ......   Are you the same hellsbells that used to post on the forum before the changes?

    I am so sorry to hear of your recent news - its an awful shock to get BC second time around, particularly in a different area cos we never really know what we are dealing with.  I was told that mine had mestastised to my liver in 2012 after 6yrs cancer-free.  Be assured there are so many new procedures and drugs being discovered all the while and you will have several years ahead of you.  Its good news that you are responding so well to this chemo and there are many other regimes to go on to if you stop responding. I am now approaching my 4th year of chemo and doing okay!

    I wont be naive enough to say 'dont worry' because I know what a nightmare situation this is.  All I can do is offer you my support. I am a few years further down the road from you, so if there is anything I have been through or drugs I have taken that I tell you about, please free to ask and I will do my best to help.  Keep in touch and take good care x

  • Offline in reply to max56

    Hi max 56

    Nice of you to reply, im still waiting for results on whst type of bc it is my other c back in 2011 was hormone but the tamoxifen didnt work for me in the end as it came back, i feel the hospital are keeping me waiting which i know its not all about me as there are so many other people in the same boat but i have one more chemo then im not sure either herceptin or another tablet, but i  very wary on taking a tablet because of before, im pleased you are now in your 4th yr but not happy for you in chemo but you know what i mean, thanks for your reply it does help in a funny sort of way that there is other people going through the same tough times, i am scared of passing away and i dont want to but they have told me there is alot of treatments available but i cant get my head around them saying we cant cure you

    Thanks again for your reply i wish you well in the future

    Oh and no it wasnt me before im new to this site

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    Hi,  no wonder you choose the name Hellsbells, I think I would have felt the same.  It must have been such a shock to be re-diagnosised, especially after having DCIS, which I am lead to believe is cancer contained with-in the duct and if removed is unlikely to spread!!!    A friend of mine had cancer return after being told 6 months before that they had got it all and would not need raditotheraphy after all  -  Absolutely gutted when the 6 months scan revealed a return - now not even sure of the primary.

    Glad that the chemo has done some good, remember its keeps working for some time after the last session and as Max say there is new things in the pipe-line and outcomes are allways 5years  (and sometimes much longer) out of date.

    Sounds as if you have a 'can do attitude' which I think helps fight this disease, but should we have things to get off our chest, its  good we have this site to come to.

    I do hope things improve for you, take care, gardenlady.

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    Sorry to hear your story - it's kinda similar to mine.  I had Breast Cancer in 2006 with no lymph nodes affected.  I did the lumpectomy, chemo and radiotherapy and then did 5 years on Tamoxifen followed by 3 years on Letrozole.  Just as I was expecting to finish all medication for good, I took ill at Christmas and in February this year, I was diagnosed with secondary Breast Cancer in my pleural wall around my lungs, in my liver and I have 2 tiny spots of cancer in my ribs.  Needless to say I was gutted that after all this time cancer free, here we go again!  I have just had 3 FEC chemos and on Friday, I'm getting my mid way scan.  Fingers crossed - the chemo is kicking that cancer's backside!  I identify with all you say and I hate hearing that my cancer is incurable and this keep being repeated.  I want to live and stay strong and with a positive outlook coupled with the advances in research, I want to be alive for many many years to come.  It's not the same journey second time around - I do feel more vulnerable but I am coping very well.  I had oestrogen positive breast cancer first time around and I've been told that it can just lie dormant and come back again in some people for some unknown reason.  I do think knowledge is power though and I wish I had been more informed about where it could come back and what symptoms to look out for.  I wish you well with your treatment - it's helpful to know there is someone out there feeling as I do.

  • Offline in reply to loves to sing

    I thought that I would reply as I am having a sleepless/anxious night waiting for results of a ct scan taken yesterday as a result of an initial ct scan taken 4 weeks ago showing pneumonia and enlarged lymph nodes in mediastinum.The breathlessness has gone, but I seem to have developed further swollen lymph nodes in the upper chest area and pains in the ribs.

    I had bc  grade 3 stage 2 in late 2012 with no nodes affected, had a mastectomy following  a lumpectomy that didn't show clear marginsand followed up with chemo FEC and radiotherapy and still on  letrozole. As a precaution I opted for a second mastectomy Nov 2013.

    The waiting for results is pretty awful, as has been the waiting for the 2nd ct scan to happen- I am fearing the worst! I am just grateful that I am not alone with my fears.

     


     

     

  • Offline in reply to loves to sing

    Hi

     

    Not been on here for a while but i have just read some replies, i have now had my third scan after 6 cycles of ec chemo, i was told after 2 i had a response, im now waiting results on tuesday, im praying for good news, i now know i have had er positive  c and it was the same as in 2011, again really hoping my news is good thankyou for your reply and i hope you well

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